Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gross Bowel Stuff

AmandaD

By AmandaD
in Coping with Celiac Disease

Recommended Posts

AmandaD Community Regular
AmandaD
Posted

All right. I have a nasty question, but I've been wondering about this stuff because I'm too embarrassed to ask anyone who doesn't have Celiac, too.

Okay, so I'll have normal stools which are fine in diameter, etc., etc...but then occasionally (and I've been biopsied and sigmoidoscopied up the wazoo...so don't tell me I'm dying of something) I'll get some thin stools that sort of come out with gas, they're solid but smaller.

Anybody else have this occasionally...Like this morning. I had one sort of normally long stool, then had to go back to the toilet and had some of these smaller stools come out.

I'm sick of being obsessed with my poo.

What kinds of things are normal?

Never going to ask these questions, again, I swear! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 63
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted

If that's not normal, I'm not normal either.

AmandaD Community Regular
AmandaD
Posted
  • Author

Carla - You're a peach - a hug to a fellow pooper right now...

If that's not normal, I'm not normal either.
jerseyangel Proficient
jerseyangel
Posted

Hi Amanda,

That exact thing happens to me occasionaly, too. Actually, in the last 16 months since I've been gluten-free, nothing I see in there surprises me anymore :ph34r:

That wasn't very gross--I was expecting much worse from the thread title! :lol:

emcmaster Collaborator
emcmaster
Posted

From my experience, that's due to too much fiber.

I have chronic constipation but through careful management of magnesium supplements and Zelnorm every few days, I usually have great poops. However, if I eat too much fiber, I have the exact same poops you are talking about.

They're so unsatisfying! (Did I really just post that? Yes, yes I did)

AmandaD Community Regular
AmandaD
Posted
  • Author

You know - since I was diagnosed last September it's so weird. I have awesome poop days. Then I have days where after every meal I get the sensation to poop and go. Then I have days where I have to wipe my butt three times.

Celiac should be called Confusing Poop Syndrome...or something more appropo...

eleep Enthusiast
eleep
Posted

Actually, could someone describe "normal" to me? Aside from stuff that doesn't break apart, float or generally indicate some kind of gastro-horror D., I'm not sure what "normal" size means!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AmandaD Community Regular
AmandaD
Posted
  • Author

Quite frankly I don't know either...but I swear I read two different things - everything should be formed but can break apart when flushed and then somewhere else I read "toothpaste" -like.

I'm clueless. Can a poop expert help us?

schuyler Apprentice
schuyler
Posted
Celiac should be called Confusing Poop Syndrome...or something more appropo...

:D:D Agreed! :D:D

IrishKelly Contributor
IrishKelly
Posted
All right. I have a nasty question, but I've been wondering about this stuff because I'm too embarrassed to ask anyone who doesn't have Celiac, too.

Okay, so I'll have normal stools which are fine in diameter, etc., etc...but then occasionally (and I've been biopsied and sigmoidoscopied up the wazoo...so don't tell me I'm dying of something) I'll get some thin stools that sort of come out with gas, they're solid but smaller.

Anybody else have this occasionally...Like this morning. I had one sort of normally long stool, then had to go back to the toilet and had some of these smaller stools come out.

I'm sick of being obsessed with my poo.

What kinds of things are normal?

Never going to ask these questions, again, I swear! :D

Does it come out really skinny at times?? That happens to me and i've been wanting to ask someone on here :ph34r: ...boy am i glad you started this :rolleyes:

Turtle Enthusiast
Turtle
Posted

You are NOT alone!!!! I concur with everything that's been written here!

I'll leave it at that :P

AmandaD Community Regular
AmandaD
Posted
  • Author

Yes, guys, it comes out really skinny sometimes - and then it totally stumps me and I'm like wait - I just had a big poop and now I'm pooping a worm. I'm thinking sometimes it follows after I've had too much dairy or like too much coffee or tea...

I give up with my butt!

Terch Apprentice
Terch
Posted

I heard on Oprah that it should be shaped like an S..... what the heck does that mean?

Terch

Kaycee Collaborator
Kaycee
Posted

I agree totally with all the above.

One time it can be normal, then an hour later skinny.

But even if I have had a bout of D, the next time can be normal. Or else, if I've missed the loo visit for a day, the next time it can be loose, but not constipated. It is confusing, but I just try not to sweat over it. To me this all feels normal now. At least it is not D everyday, so that is a positive thing isn't it?

Catherine

AmandaD Community Regular
AmandaD
Posted
  • Author

Catherine -

I was just thinking that today. At least I'm not pooping out humongous amounts of soft poo that looks like...ew...I don't even want to say!!!!!!!!

Sorry for the nasty, nasty graphic.

But we all have to agree - we're a heck of a lot better off now, aren't we?

BRUMI1968 Collaborator
BRUMI1968
Posted

For "normal", check out the Bristol Scale. You can google it, or wikipedia. It's pretty funny, really. Then you can rate each poop with a number.

I hate to imagine the "research" that went into making this scale.

ArtGirl Enthusiast
ArtGirl
Posted

Funny - I was just thinking about this.. um... subject... today. Was even going to post a question. But I think it's been covered already.

My conclusion today is: I'm going to stop trying to figure out how my health is (hour by hour and day by day) by how my poop looks. After just a few months on the diet the major D has not been an issue (just the minor D - like maybe a couple times a day, every 4-6 days - not bad considering how it was pre-gluten-free days). I'm going to assume it'll take much more time heal up and am going to stop looking at it everytime and just act like a normal person and check back in a couple months! I tell myself that I have other things to do than watch poop!

MistressIsis Apprentice
MistressIsis
Posted

I figure as long as it isn't the weird glob stuff & there's no pain, it's normal

"a poo expert' ROTFLMAO!!

Kaycee Collaborator
Kaycee
Posted
For "normal", check out the Bristol Scale. You can google it, or wikipedia. It's pretty funny, really. Then you can rate each poop with a number.

I hate to imagine the "research" that went into making this scale.

If Bristol Stools need people for improving the scale or revising it, where would they go? But do we really fit into the rigid scale they have produced as there does not seem to be much room for variations.

I've checked out this Scale before, and I have never got back to a three. When was I last a 3? Still linger in the 4's, but most of the times, it is probably closer to five. Oh for perfect 4's all the time. For me that would be perfection. But I am getting there, and a long way from my 6's earlier this year.

Too much information? I thought so.

Time to go buy a toilet bowl rinse that bubbles so that I don't and can't peer into the bowl to calculate numbers. When I go buy that, I will know I have lost my fixation with numbers.

I tell you since diagnosis I have really gotten to hate numbers. I now have to count calories, check labels which have funny numbers that need deciphering, loo numbers, numbers on the bathroom scales, counting the amount of loo rolls left (I remember as a kid, being told I used too much paper), hours since eating and if there is any relation to the current stomach problems, etc etc.

I'm going to take up reading.

Catherine

Turtle Enthusiast
Turtle
Posted

TO MAKE YOU LAUGH:

Larry the Cable guy was talking about his butt issues last night on tv and he said that he was almost certain his butt had a leak in it. I laughed so hard and thought about this post!

Then he went so far as to say that he had to use plumbers caulk to seal off his butth#@e to try to stop the leak. :o I hope nobody here has resorted to plumbers caulk...that would NOT be good! :lol:

AmandaD Community Regular
AmandaD
Posted
  • Author

Funny, funny Turtle!

All right - somebody else out there just please tell me what comes out of you on what you consider a normal day...I'm so utterly curious right now what other Celiacs experience.

I know, I'm being gross...but like I've said before,I've been diagnosed since last September and I feel like this is all such an overwhelming learning process. I read something from Clan Thompson the other day that Smuckers jams can't be guaranteed gluten free now...good lord....sometimes I just feel like screaming!

I think sometimes I'm either accidentally getting glutened or I'm starting to get intolerant to weird things...

MistressIsis Apprentice
MistressIsis
Posted

my doc told me Anything that sinks to the bottom of the bowl is normal. Loose or tight depends on what you've been eating (notice the difference when you eat alot of nuts?)

I hate when you go and finally get up to leave only to turn around again cause you're not quite done

Mtndog Collaborator
Mtndog
Posted
Yes, guys, it comes out really skinny sometimes - and then it totally stumps me and I'm like wait - I just had a big poop and now I'm pooping a worm. I'm thinking sometimes it follows after I've had too much dairy or like too much coffee or tea...

I give up with my butt!

:lol::lol::lol::lol::lol::lol::lol::lol::lol::lol::lol::lol::lol::lol:

I gave up with my butt a long time ago! I have the EXACT same poops as you.

I think the S thing on Oprh was that your intestines are curved so your poop shou;d be too.

Mine comes out in the shape of every letter in the flippin alphabet! :P

AmandaD Community Regular
AmandaD
Posted
  • Author

Thanks to all of you. I feel much better about my weird Celiac butt, intestines, so on and so forth...

Hee, Hee!

(You know what really cracks me up: I've seen my husband go to the bathroom sometimes, and I don't want to nag him...but man, that's a Celiac if I ever saw one...stubborn man...)

luvs2eat Collaborator
luvs2eat
Posted

I've had every shape, color, consistency... that there is no more "normal" in my vocab.

I've had exploding butt acid that requires immediate toilet bowl cleaner, I've had perfectly formed... just like before celiac disease, I've had small pieces that are almost like "sheets" of poop, if you can imagine that. I've had dark brown... sort of dark green... and borderline dark yellow.

Been dieting lately... almost a paleo kind of diet... lean meats, veggies, fruits, very little grain. My bowels are better now than they've been since I was diagnosed w/ celiac disease.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,665
    • Most Online (within 30 mins)
      7,748
    Christa Cook
    Newest Member
    Christa Cook
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.