Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Very Ill

jennyj

By jennyj
in Coping with Celiac Disease

Recommended Posts

jennyj Collaborator
jennyj
Posted

I wrote a few days ago that I had been severly ill. I went to the doctor yeterday and today. I haven't eaten for 5 days and am still sipping some fluids. He said my hemoglobin is 10. I have had since Monday (sorry a little gross) very watery black stools. I had to take specimens in today and am waiting to hear the results. He started me on Promethazine tonight and did more blood work today. I am just so tired and want to know what is going on. Please keep me in your thoughts and prayers so I can start to feel better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rinne Apprentice
rinne
Posted

I sorry to hear that you have been ill, I hope they can find some answers for you and that you feel better soon.

CarlaB Enthusiast
CarlaB
Posted

I hope you feel better soon. Ten is awfully low! Are you bleeding? Is that what they are suspecting?

key Contributor
key
Posted

I am sorry you are so sick. That is miserable. I hope they figure out what it is soon, so you will feel better!! You are in my thoughts and prayers.

Monica

Lisa Mentor
Lisa
Posted

If you are not eating, please drink lots of fluids...gatoraid is good. It could be just a flu bug. But, never the less keep hydrated.

Check in soon.

Lisa

SchnauzerMom Rookie
SchnauzerMom
Posted

You will be in my thoughts and prayers. I hope they figure out what is wrong and deal with it soon!

penguin Community Regular
penguin
Posted

I'm sorry you're sick :(

The promethazine (phenergan) will help you get relief, though.

I hope they figure out what's wrong soon, gluten is often not the/only problem.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

I hope they quickly solve this problem for you. Thoughts and prayers.

babygirl1234 Rookie
babygirl1234
Posted

i hope that you feel better soon

AndreaB Contributor
AndreaB
Posted

Sorry you are so ill. Please make sure you get your liquids if you can't eat.

Thoughts and prayers coming your way. :)

Post when you can.

jesscarmel Enthusiast
jesscarmel
Posted

hi

i hope you feel better :(

also pedialyte is good for dehyrdation and is gluten free! you can get it at cvs.

-Jess

jennyj Collaborator
jennyj
Posted
  • Author

Thank you for all the kind thoughts and words. I still haven't heard from the doctor on my specimens or my blood work. It is so frustrating to sit and wait for them to call. I did manage to eat a little rice last night. I will keep you all updated. Thanks again for the support, it really helps.

key Contributor
key
Posted

I hope you figure out what is going on soon. It is terrible not to know. Have things slowed down at all? ARe you still nauseated?

Hugs,

Monica

jennyj Collaborator
jennyj
Posted
  • Author

My doctor's nurse finally called. She said that what she could tell me is that my iron level that was supposed to be between 15 and 55 was at 9. My hemoglobin had dropped below 10 and my hematacrit?? was at 20 something ( I do not remember) My stool tests came back negative for salmonella, e coli, and parasites. It did show signs of blood loss (duh). I am scheduled to do another IV iron infusion on Monday. She said there is a bad stomach flu going around and with my system already injured that this really got to me. I did eat some potato soup broth tonight and so far so good. Thanks again

AmandaD Community Regular
AmandaD
Posted

JennyJ - It does sound like you're going to be okay...rest and take care of yourself!!!

almostnrn Explorer
almostnrn
Posted

My thoughts and prayers are with you. I hope they find a solution for you soon!

lindalee Enthusiast
lindalee
Posted

Hope things are better for you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Adeling
      - Adeling commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

      What's missing, for me, from this article, is a timeline for implementation in countries. Western countries are often quite slow to implement, and some countries I've been to have no labelling whatsoever...
    2. Sue7171
      - Sue7171 replied to Ginger38's topic in Related Issues & Disorders
      24

      Shingles - Could It Be Related to Gluten/ Celiac

      My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral. Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every...
    3. sc'Que?
      - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

      This is FANTASTIC--especially that they are recognising barley and (potentially) oats as sources of gluten/contamination! Now if only we can get labeling guidelines to clarify "spices" and "natural flavors" for those of us with other severe allergies.
    4. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    5. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,176
    • Most Online (within 30 mins)
      7,748
    sandragonez962
    Newest Member
    sandragonez962
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Sue7171
      Shingles - Could It Be Related to Gluten/ Celiac

      By Sue7171 · Posted

      My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral.  Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every 6 hrs. Hope this helps  The lidocaine cream is by tylenol and is available in a large tube on Amazon or at Walmart 
    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.