Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endo,fibroids And Cysts


Firegirl43

Recommended Posts

Firegirl43 Contributor

Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I honestly don't know if there's a link. I have cysts, fibroids and also uterine polyps (found and removed when doing another procedure).

georgie Enthusiast

I have this too. My Dr tested me and found I was oestrogen dominent and I now use a bio identical Progesterone Cream each day to get my hormones balanced. It was dx by a saliva test. Do a Google search for oestrogen dominence and endo, fibroids, cysts. Don't know about Celiac causing them.

Audiori J Newbie

Strange, I also had a cyst. But mine was in my sinuses.

Deej Newbie

I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

georgie Enthusiast

I have just had my 6 month post op checkup and scan today and NO CYST has regrown ! I don't know if its the Armour Thyroid meds, the Iodine, the bio identical Progesterone Cream to normalise my oestrogen dominence or the Celiac diet - but am sticking to all 4 !! :lol:

whitball Explorer

I had several surgeries in my life time. Three c-sections, two laparoscopies to take out ovarian cysts and a hysterectomy. Now I have intersistial cystitis and chronic pelvic pain. I wonder if they were related too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
ncyim Newbie
I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

Hi Deej - I'm writing a paper for school about women's experiences with hysterectomy and would love to interview you! Please let me know if you are interested - ncyim - hotmale ;-)

BTW - I've been reading a lot about gluten-free helping with gyn pain and bleeding issues. Is anyone studying this relationship?

Nyxie63 Apprentice

I've got cysts in my thyroid, breasts, ovaries and cervix. Oddly enough, they're all on the left side. Go figure. :huh: Been dx'd with PCOS, but no sign of endometriosis or fibroids on the pelvic or trans-vag u/s. The Holistic MD told me to cut out all processed foods, as it was a contributing factor to cyst growth. He didn't go into any further detail on this.

Georgie,

Glad to hear of your success! :) I'm also on iodine supplementation. Take 8 drops of Lugol's daily. The dr recently rx'd 1/2 grain of Nature-Thyroid, but I haven't taken it yet. Still waiting on my ferritin results before starting on that again. I'm hoping the combination of iodine and thyroid med will get rid of all of the cysts, given time.

SpikeMoore Apprentice

I have looked into the relationship and one of the things that they suggest you avoid eating with endo is wheat. (I think it should be gluten). They are now looking at endo as an autoimmune condition and once you have one...

Here's my theory at this point. If you have "mediators of inflammation" in your abdomen from celiac (=chemicals relased in inflammatory processes such as gluten ingestion) it is only going to make other inflammatory conditions, such as endo, worse.

Looking back, the two started about the same time, around 15 years old or me. Who knows.

HAK1031 Enthusiast

I was just about to post this topic! I was dx'ed with endo about 3 months before my celiac symptoms started...since going gluten-free I've been somewhat better. interesting...

JodiC Apprentice

Hi,

I also have had a hysterectomy due to endo. I've discussed this with my doctors and they agree that these conditions are linked to Celiac. Not that everyone has celiac but if you do then the problems can be more severe and effect more systems. Had I been diagnosed with Celiac ages ago I probably would still have my uterus and ovaries. I would have had "normal" pregnancies and less cysts. After my hysterectomy I wasn't able to take HRT due to flare ups but now am able to. Incidently, I had the operation before the diagnosis of Celiac. I wish I had known about the Celiac as I probably would have been able to save some of my parts :) Live, Learn and Educate.

  • 10 months later...
JenCO Newbie

I was diagnosed with a very large fibroid (size of 5 month pregnancy) in 2003. It was growing rapidly, and my doctor said I had candida, so I went on a yeast-free diet. Co-incidentally, I also pretty much gave up wheat because I noticed it was making me feel very tired after eating it. My fibroid stopped growing. In fact, I found that it grew only when I went on holiday, and these were the times that I found it difficult to stick to being yeast & wheat free. This happened 4 times.

Fibroids are usually associated with high estrogen levels, however my estrogen is extemely high, but it's not growing at the moment.

I already knew I was lactose intolerant (pasteurised makes me feel nauseous, and unpasteurised gives me eczema), so in March 2008 I decided to have a food intolerances test done. They measured IgG antibodies. I'm intolerant of 14 foods, including gluten (gliadin), wheat, yeast, dairy, eggs, sesame, oats, tomato, peppers.

I suspect I have celiac disease because I have daily diarrhea and a strange itchy rash if I accidentally eat wheat.

I also have hypoglycemia (not diabetes), and my gallbladder area feels uncomfortable, so I'll soon find out if I have a problem there too.

So I've given up gluten, wheat, dairy & yeast completely, and mainly given up the rest.

You'd think with all that going on, I'd be pretty downbeat, but I'm not.

Instead, I'm now wondering when things are going to start turning around.

debmidge Rising Star
Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?

These were my health problems too (over the reproductive years) and probably since I was

a teenager and I do not have celiac....

Nancym Enthusiast

I learned recently that people with hypothyroid have more fibroids and/or endometriosis. So you might want to have your thyroid checked. I suspect I have endo, I know I have fibroids. My thyroid condition has been undertreated for probably 20 years. :(

Yenni Enthusiast

I have endo and fibroids. I had a lap last February and will maybe have another this year. Some say endo is an autoimmune disease...so who knows.. I had a cyst last Christmas, but don't seem to have them regularly..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,034
    • Most Online (within 30 mins)
      7,748

    PitbullTeacher
    Newest Member
    PitbullTeacher
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.