Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endo,fibroids And Cysts

Firegirl43

By Firegirl43
in Related Issues & Disorders

Recommended Posts

Firegirl43 Contributor
Firegirl43
Posted

Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I honestly don't know if there's a link. I have cysts, fibroids and also uterine polyps (found and removed when doing another procedure).

georgie Enthusiast
georgie
Posted

I have this too. My Dr tested me and found I was oestrogen dominent and I now use a bio identical Progesterone Cream each day to get my hormones balanced. It was dx by a saliva test. Do a Google search for oestrogen dominence and endo, fibroids, cysts. Don't know about Celiac causing them.

Audiori J Newbie
Audiori J
Posted

Strange, I also had a cyst. But mine was in my sinuses.

Deej Newbie
Deej
Posted

I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

georgie Enthusiast
georgie
Posted

I have just had my 6 month post op checkup and scan today and NO CYST has regrown ! I don't know if its the Armour Thyroid meds, the Iodine, the bio identical Progesterone Cream to normalise my oestrogen dominence or the Celiac diet - but am sticking to all 4 !! :lol:

whitball Explorer
whitball
Posted

I had several surgeries in my life time. Three c-sections, two laparoscopies to take out ovarian cysts and a hysterectomy. Now I have intersistial cystitis and chronic pelvic pain. I wonder if they were related too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 year later...
ncyim Newbie
ncyim
Posted
I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

Hi Deej - I'm writing a paper for school about women's experiences with hysterectomy and would love to interview you! Please let me know if you are interested - ncyim - hotmale ;-)

BTW - I've been reading a lot about gluten-free helping with gyn pain and bleeding issues. Is anyone studying this relationship?

Nyxie63 Apprentice
Nyxie63
Posted

I've got cysts in my thyroid, breasts, ovaries and cervix. Oddly enough, they're all on the left side. Go figure. :huh: Been dx'd with PCOS, but no sign of endometriosis or fibroids on the pelvic or trans-vag u/s. The Holistic MD told me to cut out all processed foods, as it was a contributing factor to cyst growth. He didn't go into any further detail on this.

Georgie,

Glad to hear of your success! :) I'm also on iodine supplementation. Take 8 drops of Lugol's daily. The dr recently rx'd 1/2 grain of Nature-Thyroid, but I haven't taken it yet. Still waiting on my ferritin results before starting on that again. I'm hoping the combination of iodine and thyroid med will get rid of all of the cysts, given time.

SpikeMoore Apprentice
SpikeMoore
Posted

I have looked into the relationship and one of the things that they suggest you avoid eating with endo is wheat. (I think it should be gluten). They are now looking at endo as an autoimmune condition and once you have one...

Here's my theory at this point. If you have "mediators of inflammation" in your abdomen from celiac (=chemicals relased in inflammatory processes such as gluten ingestion) it is only going to make other inflammatory conditions, such as endo, worse.

Looking back, the two started about the same time, around 15 years old or me. Who knows.

HAK1031 Enthusiast
HAK1031
Posted

I was just about to post this topic! I was dx'ed with endo about 3 months before my celiac symptoms started...since going gluten-free I've been somewhat better. interesting...

JodiC Apprentice
JodiC
Posted

Hi,

I also have had a hysterectomy due to endo. I've discussed this with my doctors and they agree that these conditions are linked to Celiac. Not that everyone has celiac but if you do then the problems can be more severe and effect more systems. Had I been diagnosed with Celiac ages ago I probably would still have my uterus and ovaries. I would have had "normal" pregnancies and less cysts. After my hysterectomy I wasn't able to take HRT due to flare ups but now am able to. Incidently, I had the operation before the diagnosis of Celiac. I wish I had known about the Celiac as I probably would have been able to save some of my parts :) Live, Learn and Educate.

  • 10 months later...
JenCO Newbie
JenCO
Posted

I was diagnosed with a very large fibroid (size of 5 month pregnancy) in 2003. It was growing rapidly, and my doctor said I had candida, so I went on a yeast-free diet. Co-incidentally, I also pretty much gave up wheat because I noticed it was making me feel very tired after eating it. My fibroid stopped growing. In fact, I found that it grew only when I went on holiday, and these were the times that I found it difficult to stick to being yeast & wheat free. This happened 4 times.

Fibroids are usually associated with high estrogen levels, however my estrogen is extemely high, but it's not growing at the moment.

I already knew I was lactose intolerant (pasteurised makes me feel nauseous, and unpasteurised gives me eczema), so in March 2008 I decided to have a food intolerances test done. They measured IgG antibodies. I'm intolerant of 14 foods, including gluten (gliadin), wheat, yeast, dairy, eggs, sesame, oats, tomato, peppers.

I suspect I have celiac disease because I have daily diarrhea and a strange itchy rash if I accidentally eat wheat.

I also have hypoglycemia (not diabetes), and my gallbladder area feels uncomfortable, so I'll soon find out if I have a problem there too.

So I've given up gluten, wheat, dairy & yeast completely, and mainly given up the rest.

You'd think with all that going on, I'd be pretty downbeat, but I'm not.

Instead, I'm now wondering when things are going to start turning around.

debmidge Rising Star
debmidge
Posted
Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?

These were my health problems too (over the reproductive years) and probably since I was

a teenager and I do not have celiac....

Nancym Enthusiast
Nancym
Posted

I learned recently that people with hypothyroid have more fibroids and/or endometriosis. So you might want to have your thyroid checked. I suspect I have endo, I know I have fibroids. My thyroid condition has been undertreated for probably 20 years. :(

Yenni Enthusiast
Yenni
Posted

I have endo and fibroids. I had a lap last February and will maybe have another this year. Some say endo is an autoimmune disease...so who knows.. I had a cyst last Christmas, but don't seem to have them regularly..

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.