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Endo,fibroids And Cysts


Firegirl43

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Firegirl43 Contributor

Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?


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jerseyangel Proficient

I honestly don't know if there's a link. I have cysts, fibroids and also uterine polyps (found and removed when doing another procedure).

georgie Enthusiast

I have this too. My Dr tested me and found I was oestrogen dominent and I now use a bio identical Progesterone Cream each day to get my hormones balanced. It was dx by a saliva test. Do a Google search for oestrogen dominence and endo, fibroids, cysts. Don't know about Celiac causing them.

Audiori J Newbie

Strange, I also had a cyst. But mine was in my sinuses.

Deej Newbie

I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

georgie Enthusiast

I have just had my 6 month post op checkup and scan today and NO CYST has regrown ! I don't know if its the Armour Thyroid meds, the Iodine, the bio identical Progesterone Cream to normalise my oestrogen dominence or the Celiac diet - but am sticking to all 4 !! :lol:

whitball Explorer

I had several surgeries in my life time. Three c-sections, two laparoscopies to take out ovarian cysts and a hysterectomy. Now I have intersistial cystitis and chronic pelvic pain. I wonder if they were related too.


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  • 1 year later...
ncyim Newbie
I don't know if they are related. I had a hysterectomy, bi-lateral oopherectomy due to endometriosis nearly twenty years ago, before I was diagnosed with Celiac Disease.

Hi Deej - I'm writing a paper for school about women's experiences with hysterectomy and would love to interview you! Please let me know if you are interested - ncyim - hotmale ;-)

BTW - I've been reading a lot about gluten-free helping with gyn pain and bleeding issues. Is anyone studying this relationship?

Nyxie63 Apprentice

I've got cysts in my thyroid, breasts, ovaries and cervix. Oddly enough, they're all on the left side. Go figure. :huh: Been dx'd with PCOS, but no sign of endometriosis or fibroids on the pelvic or trans-vag u/s. The Holistic MD told me to cut out all processed foods, as it was a contributing factor to cyst growth. He didn't go into any further detail on this.

Georgie,

Glad to hear of your success! :) I'm also on iodine supplementation. Take 8 drops of Lugol's daily. The dr recently rx'd 1/2 grain of Nature-Thyroid, but I haven't taken it yet. Still waiting on my ferritin results before starting on that again. I'm hoping the combination of iodine and thyroid med will get rid of all of the cysts, given time.

SpikeMoore Apprentice

I have looked into the relationship and one of the things that they suggest you avoid eating with endo is wheat. (I think it should be gluten). They are now looking at endo as an autoimmune condition and once you have one...

Here's my theory at this point. If you have "mediators of inflammation" in your abdomen from celiac (=chemicals relased in inflammatory processes such as gluten ingestion) it is only going to make other inflammatory conditions, such as endo, worse.

Looking back, the two started about the same time, around 15 years old or me. Who knows.

HAK1031 Enthusiast

I was just about to post this topic! I was dx'ed with endo about 3 months before my celiac symptoms started...since going gluten-free I've been somewhat better. interesting...

JodiC Apprentice

Hi,

I also have had a hysterectomy due to endo. I've discussed this with my doctors and they agree that these conditions are linked to Celiac. Not that everyone has celiac but if you do then the problems can be more severe and effect more systems. Had I been diagnosed with Celiac ages ago I probably would still have my uterus and ovaries. I would have had "normal" pregnancies and less cysts. After my hysterectomy I wasn't able to take HRT due to flare ups but now am able to. Incidently, I had the operation before the diagnosis of Celiac. I wish I had known about the Celiac as I probably would have been able to save some of my parts :) Live, Learn and Educate.

  • 10 months later...
JenCO Newbie

I was diagnosed with a very large fibroid (size of 5 month pregnancy) in 2003. It was growing rapidly, and my doctor said I had candida, so I went on a yeast-free diet. Co-incidentally, I also pretty much gave up wheat because I noticed it was making me feel very tired after eating it. My fibroid stopped growing. In fact, I found that it grew only when I went on holiday, and these were the times that I found it difficult to stick to being yeast & wheat free. This happened 4 times.

Fibroids are usually associated with high estrogen levels, however my estrogen is extemely high, but it's not growing at the moment.

I already knew I was lactose intolerant (pasteurised makes me feel nauseous, and unpasteurised gives me eczema), so in March 2008 I decided to have a food intolerances test done. They measured IgG antibodies. I'm intolerant of 14 foods, including gluten (gliadin), wheat, yeast, dairy, eggs, sesame, oats, tomato, peppers.

I suspect I have celiac disease because I have daily diarrhea and a strange itchy rash if I accidentally eat wheat.

I also have hypoglycemia (not diabetes), and my gallbladder area feels uncomfortable, so I'll soon find out if I have a problem there too.

So I've given up gluten, wheat, dairy & yeast completely, and mainly given up the rest.

You'd think with all that going on, I'd be pretty downbeat, but I'm not.

Instead, I'm now wondering when things are going to start turning around.

debmidge Rising Star
Ok I just had a laprascopy for pelvic pain and all sorts of other stuff and they told me that they found endometreosis , fibroids and a cysts. My mom asked me if it ( or some of it )could be becase of being a celiac. Could it?

These were my health problems too (over the reproductive years) and probably since I was

a teenager and I do not have celiac....

Nancym Enthusiast

I learned recently that people with hypothyroid have more fibroids and/or endometriosis. So you might want to have your thyroid checked. I suspect I have endo, I know I have fibroids. My thyroid condition has been undertreated for probably 20 years. :(

Yenni Enthusiast

I have endo and fibroids. I had a lap last February and will maybe have another this year. Some say endo is an autoimmune disease...so who knows.. I had a cyst last Christmas, but don't seem to have them regularly..

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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