Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Fluke Or Are We Really Seeing Results Already?

girlfromclare

Recommended Posts

girlfromclare Apprentice
girlfromclare
Posted

Well technically its been two weeks but I dont think the first week can count as we made so many mistakes and unwittingly gave our son food with gluten - and I expect we will make lots more mistakes too... but since going gluten free (strictly) about five days ago, things have changed in our house and I dont know whether its a fluke or not! I really only started noticing the changes in his behaviour during the last two days more so... he's waking up happy... he's playing happily... everything isnt a problem... which is rare! He didnt have gastro issues but then he hasnt had dairy in his system for almost two years now and while he was having dairy, he had a lot of gastro issues. However, his mood swings have almost compleletly settled down! Is it possible to see results so quickly??? He tested negative for celiac and the doctor seemed pretty sure that meant he didnt have it.... but I am so sure that this is a positive and fast result... I know that if this is an indication of what life will be like in the future then I will be perfectly content to spend my days baking bread and rummaging through health food shops.. .and spending a goddamn fortune!!... I posted a few days ago about how I had spent hours crying recently... I had such a bout of the 'are we doing the right thing?' blues... and now I really believe that 'yes we are!!! I'll keep you all posted on his progress but if this is not a coincidence, then I am seriously impressed (and a lot more relaxed!)

Thanks for everything everyone... thanks for the advice...

Liz in Ireland.

x x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kbtoyssni Contributor
kbtoyssni
Posted

You're definitely seeing results! Congrats! I also had positive results within a few days. I had a few setbacks and it was probably 6-9 months before I was 100% again, but the immediate results made it so much easier to continue with the diet. From your positive dietary response, I'd say your son definitely has celiac disease.

FeedIndy Contributor
FeedIndy
Posted

I noticed a difference in DD's disposition and energy levels within 2 days! I thought I was just seeing things until we weighed her at day 5 and found she had already gained 5 ounces after losing 2 ounces the month before. She's a completely different and very happy baby now! When I get sad about what she may be missing out on as she's older (like pizza night the other day!) I just remember when she was teeny and lethargic, look at her now and know we are doing the right thing!

celiacgirls Apprentice
celiacgirls
Posted

I saw results in myself and my daughter in a few days. We didn't have any stomach issues to begin with but our moods and her behaviour improved dramatically. Our house is a different place now than it was 6 months ago as far as our family life. Some days I feel sorry for my kids but mostly I am just glad we know what was causing their problems. After more than 6 months, it still seems hard to believe that the answer was so "simple". Like you, I am glad to spend time cooking and baking to keep it up.

vampella Contributor
vampella
Posted

I also saw these changes with in a few day's with my DD and about a week, we had NORMAl bowel movements and still are 1 1/2 months into. My dd also had a neg blood test, 2 actually but her doctor know's she's a celiac kid!!

Congrats, I am glad you are seeing improvment!!!

Guest nini
Guest nini
Posted

yep we saw results in my daughter that fast and she was having behavioral issues prior to going gluten-free... I'm telling ya, the tantrums were uncontrollable and frightening and would come on about an hour after eating and would last about an hour with her kicking, screaming, biting, thrashing around on the floor, not wanting to be held at all and on and on... it would pass just as quickly as it would come on and she would lay in a heap on the floor sweaty and sobbing and saying "sorry mommy, I couldn't help it"... I'm SO GLAD we found out that gluten was the problem. One of the first indications to me that she's been accidentally glutened is when her attitude takes a major downturn and then the tummy starts hurting and she begs for some pepto bismol...

Lymetoo Contributor
Lymetoo
Posted

I felt better in one week!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I noticed amazing changes within a day! It is definitely not a fluke, that is fantastic, you must be so happy!

Nic Collaborator
Nic
Posted

My father saw results that quickly too. Within the first week his D had stopped. My son's symptom was constipation so I took longer to see any change. I think that is a harder problem to turn around. We still have issues but my father swears he felt much better within that first week.

Nicole

taweavmo3 Enthusiast
taweavmo3
Posted

Yep, we saw results that fast too......it is truly one of the best feelings in the world, to see your child become happy again. You don't realize how much you lost until they start to become the children they should have been all along. I will never forget how thrilled we were those first few weeks!

Congratulations to you....and I hope things just continue to improve!

girlfromclare Apprentice
girlfromclare
Posted
  • Author

Thank you everyone. Wow... i definitely feel we are on the right track... I am so glad that you all so improvements so quickly too... so I know this isnt a fluke. Nini, our experience with the tantrums is exactly the same... exactly!!! And then afterwards the pain in the tummy... oh boy we've had it for so long now that they were a daily occurence for the past four years and that alone would drain every ounce of energy from you... I can truly empathise... and now they have stopped we are so relieved and happy. My husband is quite genuinely surprised to see the results.. i dont think he expected any... and we are both thrilled to have finally discovered the problem that has been holding our little boy back for so long. thanks everyone... i really mean it... you guys are all so wonderful

a million hugs x x liz

wolfie Enthusiast
wolfie
Posted

We also saw results quickly....within the first week or 2, for both me & my son. DS had behavioral issues and he is just genuinely a nicer person all around off of gluten. His grades have improved, too!

Keep up the good work!!!! :)

Confused in Iowa Rookie
Confused in Iowa
Posted
Well technically its been two weeks but I dont think the first week can count as we made so many mistakes and unwittingly gave our son food with gluten - and I expect we will make lots more mistakes too... but since going gluten free (strictly) about five days ago, things have changed in our house and I dont know whether its a fluke or not! I really only started noticing the changes in his behaviour during the last two days more so... he's waking up happy... he's playing happily... everything isnt a problem... which is rare! He didnt have gastro issues but then he hasnt had dairy in his system for almost two years now and while he was having dairy, he had a lot of gastro issues. However, his mood swings have almost compleletly settled down! Is it possible to see results so quickly??? He tested negative for celiac and the doctor seemed pretty sure that meant he didnt have it.... but I am so sure that this is a positive and fast result... I know that if this is an indication of what life will be like in the future then I will be perfectly content to spend my days baking bread and rummaging through health food shops.. .and spending a goddamn fortune!!... I posted a few days ago about how I had spent hours crying recently... I had such a bout of the 'are we doing the right thing?' blues... and now I really believe that 'yes we are!!! I'll keep you all posted on his progress but if this is not a coincidence, then I am seriously impressed (and a lot more relaxed!)

Thanks for everything everyone... thanks for the advice...

Liz in Ireland.

x x

I agree with you - i saw differences in my son as quickly as you did. Not only with his personality, but his school work...last year struggled with a D average and this year in 6th grade he made the honor roll! I was so proud. So I'm like you. As much of a pain it is to figure this diet out, I'm with you that it is so worth it to have a happy son.......i always just blamed his personality on him getting it from his father, but it's so nice now to have him be so angry all the time.

My son never has had any stomach troubles, so when he was diagnosed, I was sooo in the denial thing, and thought the Dr. was just crazy and this was the health fad of the now type thing...but seeing the results that we've gotten so far, it is just amazing.

Now if they'd just find some miracle cure for it, this would be a beautiful thing!

Juliet Newbie
Juliet
Posted

My son (who was two years old and awake for only 3 hours total every day before going gluten free and looked like one of the starving kids with the distended bellies) got his energy back in 9 days - and we were making mistakes that whole time (Rice Krispies, O's cereal made from oat flour, other things w/ malt). He didn't nap at all (he still normally takes naps now, but he was so happy to have energy), and he was practically stumbling at the end of the day trying to still move, but his muscles were so atrophied he could barely do it! The next day he was sore from the exercise but still had energy! It's tough sometimes dealing with it, but to see your extremely sick child turn into a normal, happy kid makes it all worthwhile!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748
    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.