Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Mono :(

Mtndog

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

Well, as some of you know I haven't been doing so hot for the last ten days. Right after I finished school, I became extremely exhausted. I woke up on Friday December 21st and was so tired I tripped over the furball in my avatar and crashed into my VERY hard bureau. We thought it was a reaction to some trigger point injections I'd had. I was sort of up and down all week, sleeping like 12 hours at night and still needing naps. Just zonked. Couldn't even make it to Christmas Dinner.

Got worse NYE, sore throat, swollen glands. Slept all day New Year's so finally called doc today and got in. She said it's mono but they can't test you for it because I've already had it (in 6th grade!!!!!!!!!!!) so the antibodies stay in your system and you would test positive.

So, I'm supposed to rest (I'm the worst patient in the world!But I ampretty tired). Another vacation bites the dust!

Sorry- just having a wee pity party!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

So sorry!!! :( How can she be sure if she couldn't test for it?

mtdawber Apprentice
mtdawber
Posted

Oh dear. I hope you feel better soon.

Mtndog Collaborator
Mtndog
Posted
  • Author

She couldn't but based on my symptoms, she made the diagnosis. I've always thought you could only have it once, but that's not the case. It's actually a variation of the Epstein-Barr virus and they think that recurring mono may be what's behind chronic fatigue syndrome. I'll tell ya, the last time I was this tired was before I went gluten-free. :(

Lisa Mentor
Lisa
Posted
Well, as some of you know I haven't been doing so hot for the last ten days. Right after I finished school, I became extremely exhausted. I woke up on Friday December 21st and was so tired I tripped over the furball in my avatar and crashed into my VERY hard bureau. We thought it was a reaction to some trigger point injections I'd had. I was sort of up and down all week, sleeping like 12 hours at night and still needing naps. Just zonked. Couldn't even make it to Christmas Dinner.

Got worse NYE, sore throat, swollen glands. Slept all day New Year's so finally called doc today and got in. She said it's mono but they can't test you for it because I've already had it (in 6th grade!!!!!!!!!!!) so the antibodies stay in your system and you would test positive.

So, I'm supposed to rest (I'm the worst patient in the world!But I ampretty tired). Another vacation bites the dust!

Sorry- just having a wee pity party!

I thought once you got mono, you could not get it again? Sorry Bev that you feel so crappy, but yet you ask about others. :)

I do hope you get your mojo back soon.

xxoo Lisa

Rest well, a good thing that school is out. OOOH, I guess school is back in session.

DingoGirl Enthusiast
DingoGirl
Posted

awwwwwwww Bev, this is not good. :( Just rest and sleep TONS and cuddle with that bundle of fur. I am so sorry, you'll be in my prayers for speedy recovery. You have had a really heinous year, let's hope this is the worst of 2007 for you.

{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}

marciab Enthusiast
marciab
Posted

Bummer ... It's good you lasted till school was out ... Hope you feel better soon. Marcia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Aw Bev, I hope this runs it's course quickly. I knew someone in high school that had it and it seemed to stick around for awhile. :(

Ursa Major Collaborator
Ursa Major
Posted

I am sorry it ruined Christmas and New Years for you. I hope you'll feel better soon.

happygirl Collaborator
happygirl
Posted

Bev,

I have struggled with mono/EBV issues since before my celiac disease dx.

Do you have a copy of your test results? They should have run the IgM and IgG for EBV, and, potentially, CMV (which can also be involved in mono). If your IgM is positive, that is an indicator that you have a current active infection. Once you have had EBV/mono, you will always have some IgGs, which doesn't differentiate between active/inactive infection. They are usually ordered together. (I am dealing with testing for it right now, and figuring out where to go from here).

Hope that you recover quickly....make sure you rest. I didn't follow doctor's advice very well.

Thinking of you,

Laura

Mtndog Collaborator
Mtndog
Posted
  • Author

Laura- What is CMV?

Thanks for all your good wishes! School is not back in session until the 16th (university) so I can sleep until then. :blink:

dlp252 Apprentice
dlp252
Posted

WOW, so sorry you are hit with this after so many other things. Gosh that sounds a LOT like what I had...and I had it around the same time you did. On Christmas Eve, I basically just sat in a chair like a slug...didn't move, lol. Fortunately we had just a small family gathering this year so my mom and aunt don't care if I sleep. :lol: And, on NYE, went to bed at 9:00! :lol:

StrongerToday Enthusiast
StrongerToday
Posted

I've had mono, it's so awful. Send someone to the video store to stock up and just sleep, sleep, sleep. Feel better soon!

happygirl Collaborator
happygirl
Posted

I never got better after mono...I believe it 'triggered' my Celiac/Celiac symptoms.

CMV is cytomeglavirus. It can also be a cause of mono. I was lucky enough to have both EBV and CMV. Same thing with the IgM and IgG.

nikki-uk Enthusiast
nikki-uk
Posted
Well, as some of you know I haven't been doing so hot for the last ten days. Right after I finished school, I became extremely exhausted. I woke up on Friday December 21st and was so tired I tripped over the furball in my avatar and crashed into my VERY hard bureau. We thought it was a reaction to some trigger point injections I'd had. I was sort of up and down all week, sleeping like 12 hours at night and still needing naps. Just zonked. Couldn't even make it to Christmas Dinner.

Got worse NYE, sore throat, swollen glands. Slept all day New Year's so finally called doc today and got in. She said it's mono but they can't test you for it because I've already had it (in 6th grade!!!!!!!!!!!) so the antibodies stay in your system and you would test positive.

So, I'm supposed to rest (I'm the worst patient in the world!But I ampretty tired). Another vacation bites the dust!

Sorry- just having a wee pity party!

Bev,what a pain,- it's like 1 step forward 2 back :angry: ..it must be very frustrating for you.

I remember my cousin had it yrs ago and was off school for 6 months(!) 'cos she was sooo tired and achey.

I didn't realise it could reoccur <_<

Stupid virus!!! <_<

Get plenty of rest and you must also (like Patti!) let dear hubby do all the chores (and puppy poopy scooping ) ;)

Feel better soon!! :)

Mtndog Collaborator
Mtndog
Posted
  • Author

Thank you all. Too bad Patti and I can't hole up at some spa in the desert and recover together!

Laura- I looked up CMV. Yikes!

Rachel--24 Collaborator
Rachel--24
Posted

Bev,

That sucks. I'm sorry that you're holidays got wrecked by this. :(

I agree with Laura about getting tested to find out if its really mono thats causing this. If you only have IgG's for mono it would indicate a past infection and you might actually have something else going on. It would suck if it was something else and you are not getting treatment for it.

I hope you feel better soon. :)

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I am so sorry, Mtndog. Let's hope you recover fast and don't get sick of being sick- thatmakes it worse. Good luck and have sweet dreams.

Mtndog Collaborator
Mtndog
Posted
  • Author

You guys are so sweet! :wub: :wub: :wub: :wub:

She (the doc) basically explained to me that once you've had it (mono EBV) it lays dormant and your system and when you are run-down you can get active symptoms again. So basically, it's just a virus caused by seriously being run down.

I finally feel like I am waking up a bit today and I'm more hungry so I'll take that as a good sign :D

I think after spending like 30 hours conferencing with students in addition to teaching and the correcting 720 pages worth of research papers and Christmas shopping, I just dropped (hey- shopped till I dropped! :P ) my body just said, "That's it!" It literally happened (the start of the fatigue) the day after I finished correcting papers.

I'll keep an eye on it though.

happygirl Collaborator
happygirl
Posted

Bev,

Your doc is correct....from what I know at least! You can have high levels of IgG that can cause problems, or it can go back over to IgMs, meaning current infection. But very high IgGs can cause problems (it apparently, is one of mine) by being somewhat "heightened" versus being fully re-activated (IgM). (Can you tell I'm in the middle of this?!!!)

I hope you continue to improve, my dear!

Laura

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hope you feel better soon, Bev!

Two words:

CHICKEN SOUP!!!!!!!!!

Drink as much as you can get down. Go to the Chinese Take-out and get some egg drop soup if you can't make your own. My friend who has his own Chinese take-out restaurant says that they never use wheat in the soup, only cornstarch to thicken and turmeric to make it that funny yellow color, but better ask to make sure it's gluten-free.

Or, to fake-make it (you might need a little more energy for this):

2 cartons Kitchen Basics chicken stock

1 tsp bottled chopped garlic

1 tsp bottled chopped ginger

1 pinch turmeric

one handful preshredded carrots

1 handful frozen peas.

1 fresh or frozen boneless chicken breast

Boil all together for 8 minutes or until meat is cooked. Take out meat and let cool. To still-boiling broth, gently stir in 2 or 3 beaten eggs (pour it in slowly so it makes those nice ribbons of egg). Shred the chicken, add back in with some chopped green onions.

I like adding a pinch of curry powder to this, too.

Pee that virus out and flush it down the toilet!!!! :lol:

Mtndog Collaborator
Mtndog
Posted
  • Author
Pee that virus out and flush it down the toilet!!!! :lol:

:lol: :lol: :lol: :lol: :lol: :lol: That's AWESOME!

After I flush it all away, can I go lie on a warm beach somehwhere?

AndreaB Contributor
AndreaB
Posted

I'm going to pull a Susan and go totall off topic here. Love you Susan. :wub:

Alison,

Thanks for always being willing to post recipes. I copied over the soup one. We'd be lost without your taco seasoning recipe. I'm forever grateful. :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I'm going to pull a Susan and go totall off topic here. Love you Susan. :wub:

Alison,

Thanks for always being willing to post recipes. I copied over the soup one. We'd be lost without your taco seasoning recipe. I'm forever grateful. :)

Aw, shucks.... :wub:

Nantzie Collaborator
Nantzie
Posted

Oh Ugh. I hope you feel better soon.

:(

Nancy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.