Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Local Celiac Support Group's Leader Makes Me Nervous!


Electra

Recommended Posts

ravenwoodglass Mentor
Ravenwoodglass,

I have no idea what it would be. I don't think oat hulls are a standard source of cellulose in food.

richard

It was gluten in the mozzarella. This was from Sargento's website, figured you'd rather see that than hear what the rep said when I called. And it was not on the label or I never would have eaten it.

Q. Is there gluten in Sargento cheeses?

We are pleased to tell you that most Sargento natural cheeses should be acceptable to a gluten-free diet. However, there are a few exceptions.

There is wheat gluten in Sargento Blue Cheese. Sargento Imitation Mozzarella Shredded Cheese contains a modified food starch that may contain gluten


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 80
  • Created
  • Last Reply
tarnalberry Community Regular
It was gluten in the mozzarella. This was from Sargento's website, figured you'd rather see that than hear what the rep said when I called. And it was not on the label or I never would have eaten it.

Q. Is there gluten in Sargento cheeses?

We are pleased to tell you that most Sargento natural cheeses should be acceptable to a gluten-free diet. However, there are a few exceptions.

There is wheat gluten in Sargento Blue Cheese. Sargento Imitation Mozzarella Shredded Cheese contains a modified food starch that may contain gluten

Well, I think it's important to note that we were talking about *cheese* - not *imitation cheese*. Those are two very different things in many ways.

kbtoyssni Contributor

I'm way late in replying to this, but I'd interpret her comment as "If it isn't labeled gluten-free, you must verify it's gluten-free-ness before eating". Obviously not everything that's gluten-free is labeled, so it is best to call and confirm if it isn't explicitly stated. Good luck at your meeting! You can learn a lot from these "paranoid" types - they may have discovered gluten in places you would never imagine!

jazminecat Newbie
They were exclusively gluten free and extremely junk food oriented. I know full well that I wasn't the only celiac there with other allergies or who would rather not eat tons of starch, shortening and white sugar.

I hear you there! I tried going to the local gluten-free support group once - and not only did not a single person come up and say hello, even though we were the only people there without nametags on - but it was all about what junk food we could safely eat. isn't that what got us into this mess in the first place? I don't eat meat, although I eat fish, eat gluten and dairy free, avoid sugar as much as possible, and still struggle with tomatoes - and not one thing they offered would fit into my diet - not only that, but they weren't even aware what was in things, and i was. I would have thought that people who have to be careful enough to read labels on everything would be sensitive to other people's allergies, but got the brush off when I asked if something had dairy or sugar in it.

Nancym Enthusiast

Well, to be fair, it is a gluten-free group, not a healthy diet group. Expecting people to be into healthy foods just because they're gluten-free is probably not realistic for most people. From what I can tell, most gluten-free people are concerned more about eating as close to however they were eating before they were diagnosed, not in making any additional changes.

Now for me, it changed a lot more than just my gluten status. I started looking at foods as things that can tear down your health or build it.

VegasCeliacBuckeye Collaborator

FYI, I wasn't considering the imitation stuff - That stuff is so gross, I don't know how you could stomach it in the first place :)

The Bleu cheese is a safeguard due to the process that it undergoes. Again, there has been new research and a recent Livin Without article which discusses the bleu cheese dilemma indepth.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.