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Hi All.


missy'smom

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missy'smom Collaborator

I never really introduced myself to the forum. I "lurked" for a few weeks and then joined but I'm not the kind of person to walk into an unfamiliar situation and just step up and announce "Hi, I'm...." I didn't know how a forum worked and had gotten used to figuring things out myself, which includes my problem with gluten. Plus I was having problems with memory, processing and concentration. On top of that I never learned how to type so it really slows me down and limits what I can say. I wanted to come back and introduce myself properly because I've hit a new level of healing at six months into this. Yeah! I've still got more to do and possibly other issues with food. But, thank you all for you help for myself and for others. I've learned alot from this board that goes beyond Celiac Disease. It's kind of one stop shopping here sometimes :) When I'm up to it and if I can find it again, maybe I'lll add my story to the "What's your Story" thread.


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Jestgar Rising Star

Hi missy'smom!

I'm glad you didn't wait for a formal introduction before trying out the forum.

Welcome to the group!

nikki-uk Enthusiast

Hi Missy's Mom!

Yep, I remembered I 'lurked' for a while when I joined working things out and reading before I posted too! :)

Hope you continue to feel better and look forward to 'your story' ! (maybe! ;) )

lonewolf Collaborator

Welcome! We've "met" on my thread about kidney problems. Please stick around and keep joining in!

dlp252 Apprentice

Hi and welcome! Glad you decided to introduce yourself!

Nancym Enthusiast

Hello there! You know, it is never too late to learn to type. Even my 80 year old Mom was teaching herself with some computerized typing trainer, I think she really enjoyed it.

Canadian Karen Community Regular

Welcome to our world!

Hugs.

Karen


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Guhlia Rising Star

Welcome welcome welcome! So glad you're starting to feel much better. Healing is a long process, but the week to week improvements are amazing.

Oh, and Nancym said about computerized training programs... If you're interested in using one, try Mavis Beacon. It's the most fun one that I've ever tried. I used to "play" it like a video game when I was younger. I type pretty quickly now, though I don't think I ever got over 65 words a minute.

Creative-Soul Newbie

Hello and welcome! I lurked around here for about eight months or so myself before I joined, so it's great to have you here. I'm glad that you've finally introduced yourself - nothing too late about it - hope you feel at home!

blueeyedmanda Community Regular

It's never too late Welcome!!!

happygirl Collaborator

Its definitely never too late...and most of us here "lurked" at some point as well. The more the merrier!

Happy you are here!!!!!!

Laura

kbtoyssni Contributor

Welcome!

jerseyangel Proficient
:D Welcome :D
angel-jd1 Community Regular
I never really introduced myself to the forum. I "lurked" for a few weeks and then joined but I'm not the kind of person to walk into an unfamiliar situation and just step up and announce "Hi, I'm...." I didn't know how a forum worked and had gotten used to figuring things out myself, which includes my Celiac. Plus I was having problems with memory, processing and concentration. On top of that I never learned how to type so it really slows me down and limits what I can say. I wanted to come back and introduce myself properly because I've hit a new level of healing at six months into this. Yeah! I've still got more to do and possibly other issues with food. But, thank you all for you help for myself and for others. I've learned alot from this board that goes beyond Celiac. It's kind of one stop shopping here sometimes :) When I'm up to it and if I can find it again, maybe I'lll add my story to the "What's your Story" thread.

Never too late to say hi!! Welcome :)

-Jessica :rolleyes:

SchnauzerMom Rookie

Welcome! It's nice to meet you.

debmidge Rising Star

Glad you jumped on. Don't worry about being a slow typist....hunt and peck will give you the same results.

missy'smom Collaborator

Thanks Guys. :D

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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