Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recovering From A Glutening

Mtndog

By Mtndog
in Coping with Celiac Disease

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

I got glutened 10 days ago and I am still wretched. Normally, if I get cross-contaminated it's about 3-4 days of wretchedness but this is just going on and on and on and on........

I think I just want someone to tell me it's going to end :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted
I got glutened 10 days ago and I am still wretched. Normally, if I get cross-contaminated it's about 3-4 days of wretchedness but this is just going on and on and on and on........

I think I just want someone to tell me it's going to end :(

Well I can't do that....

For me its not a simple number of days.. but a gradual reduction in the frequency and severity of the symptoms.

From times Ive been in complete control Ive had batches of D after 4-5 weeks, of course it could be something else but I think we all get to know the feeling.

One thing helps me gauge is actually my casein sensitivity. When Im 100% gluten-free its really unnoticable but after an incident I can be casein intolerant for 4-5 weeks...

Lisa Mentor
Lisa
Posted

I've been going through something similar for a week now. I am revisiting all my personal products and making a few inquiries from companies for the new products that I have introduced.

With a one time gluten, it takes me about three days to feel better. I usually don't have digestive issues but more motor issues and a dry mouth is my first indicator. It is also very difficult to type as my fingers are all over the keyboard and shake terribly.

I suspect that it is the new face lotion that I have been using for over a week now.

Hope we both feel better soon.

jerseyangel Proficient
jerseyangel
Posted

Hi Bev, you poor thing :(

I used to take a week--week and a half to get over it. Even then, I didn't feel back to normal for a while.

Lately though, I get GI stuff for a day or two, but then neuro issues like anxiety, crabbyness, dry mouth, trouble talking and itchiness. The itchies and dry mouth can go on for days. :angry:

I'm still itching from over a week ago.

Guest cassidy
Guest cassidy
Posted

It takes me 3 weeks to feel 100% again. The longest D has lasted is one week. I usualy feel better and better but I get terrible heartburn that does last for 3 weeks. I sometimes wonder if I've been glutened again while I'm still getting over the first one but I really only get glutened every 4-5 months so I doubt that it would happen twice within a week. I am very careful so this is glutening from very small amounts.

Hope you feel better soon.

SchnauzerMom Rookie
SchnauzerMom
Posted

I hope you feel better soon!

It takes 3 or 4 days for me to get over the worst of a glutening. The last time happened about a month ago.

Mtndog Collaborator
Mtndog
Posted
  • Author

Thanks everyone! It makes me feel like I am somewhat in the spectrum of normal :P (whatever the heck that means). It's been 10 days and I actually was starting to wonder if I reglutened myself but I checked everything so I'm starting to suspect that those gluten-free breadcrumbs were REAL :angry:

I hope you feel better soon too Lisa.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted
It takes me 3 weeks to feel 100% again. The longest D has lasted is one week. I usualy feel better and better but I get terrible heartburn that does last for 3 weeks. I sometimes wonder if I've been glutened again while I'm still getting over the first one but I really only get glutened every 4-5 months so I doubt that it would happen twice within a week. I am very careful so this is glutening from very small amounts.

Hope you feel better soon.

This is exactly what I used to think....

When I found out the average person has D 2-3 times a year maximum and even high risk groups like nursing mothers 4-5 max per year I started to realise it wasn't just something else giving me the runs.

When I have been in a position to do what I call 100% gluten-free where I don't eat any packets or tins or anything that can't be 100% guaranteed I started to realise the whole process for me goes in cycles... at first its D 2-3 times a day or more but after a week I could be fine for a week then get another epidode or two... then even 4-5 weeks later I can still get an odd unexplained bout...

before I realised this i used to confuse myself by thinking I had somehow been glutened...

flagbabyds Collaborator
flagbabyds
Posted

i always find that going lactose free for a while makes me feel better and doens't make the glutening worse. It is just liek when you are first diagnosed many people go lactose free for some time while their intestines heal and then they can go back on it. It just makes my glutening less intense and more bareable so i CAN go to school with lots of fenergen in my body so i don't start throwing up.

My glutenings usually last at least a week-2 weeks and sometimes more, but I can deal with them with fenergen every 4 hours and I am usually fine cause I can't manage to miss more school this year. :o

Mtndog Collaborator
Mtndog
Posted
  • Author
i always find that going lactose free for a while makes me feel better and doens't make the glutening worse. It is just liek when you are first diagnosed many people go lactose free for some time while their intestines heal and then they can go back on it. It just makes my glutening less intense and more bareable so i CAN go to school with lots of fenergen in my body so i don't start throwing up.

My glutenings usually last at least a week-2 weeks and sometimes more, but I can deal with them with fenergen every 4 hours and I am usually fine cause I can't manage to miss more school this year. :o

That is a very good point! I take phenergan when glutened too Molly! It really works but it makes me pretty dopey (not that I'm not dopey anyway) :P . I took some last night and feel better today. It's nice to know I'm not the only one.

key Contributor
key
Posted

Have you two tried Zofran for gluttening. My doctor gave it to me for my colonoscopy so I wouldn't throw up with the prep. It worked great and I had no side effects, such as drowsiness.

Monica

Oh, first question. I haven't really been able to tell how long my gluttenings last, but before my bowel habits return to normal it is about 3 days. The idea of not eating dairy for awhile afterwards is great. I am going to try this one next time. My GI doctor just recently gave me some antispasmodics for when this happens too, so I hope that works. I had a bad gluttening right at Christmas and twice in one week! I thought I was going to have to go to the ER. I hope I never get that bad off again. It started me on a bad road. I lost like 6 pounds. Tried Nexium and that made me even sicker, which took me six weeks to figure out that I couldn't digest my food while taking that stuff. I think it is poison to my body.

I hope you feel better.

Monica

hez Enthusiast
hez
Posted

I have been sick since before Christmas. I now have a doctor appointment at the end of this month. I just can't take feeling this bad all the time.

Usually, it takes me a full month to feel back up to 100%. However, I have had what I think might be slight cc and the "d" lastet a couple of days.

I really wish I knew what made me so sick! It was not anything obviously gluten. I do not eat gluten. I will not eat it here or there I will not eat it anywhere! Can you tell I have been reading Green Eggs and Ham :rolleyes:

I have rechecked everything and even put myself on a bland diet. I have not noticed a difference.

It sounds like you are in the normal range for feeling like crap.

I hope you feel better soon Bev.

Hez

blueeyedmanda Community Regular
blueeyedmanda
Posted

I would say 1-3 days for me, when it comes to "D" some of my other less bothersome symptoms can last longer but the "D" is the one that slows me down and it is by far the most annoying one to try and go to work or live a life with.

darlindeb25 Collaborator
darlindeb25
Posted

It takes me 3 or 4 days to get pass the intial symptoms and then 3 weeks to recover.

  • 3 weeks later...
Mtndog Collaborator
Mtndog
Posted
  • Author
I do not eat gluten. I will not eat it here or there I will not eat it anywhere! Can you tell I have been reading Green Eggs and Ham :rolleyes:

Hez

Omg- I love that. :lol:

CMCM Rising Star
CMCM
Posted

I just had to comment on this. I've noticed the exact same thing with gluten and casein! I always thought I was so terribly dairy intolerant (hence casein intolerant, since I tested that way, and perhaps lactose was a problem too). But now that I'm being 100% gluten free, the dairy problems are gone. :P

Well I can't do that....

For me its not a simple number of days.. but a gradual reduction in the frequency and severity of the symptoms.

From times Ive been in complete control Ive had batches of D after 4-5 weeks, of course it could be something else but I think we all get to know the feeling.

One thing helps me gauge is actually my casein sensitivity. When Im 100% gluten-free its really unnoticable but after an incident I can be casein intolerant for 4-5 weeks...

oceangirl Collaborator
oceangirl
Posted
I just had to comment on this. I've noticed the exact same thing with gluten and casein! I always thought I was so terribly dairy intolerant (hence casein intolerant, since I tested that way, and perhaps lactose was a problem too). But now that I'm being 100% gluten free, the dairy problems are gone. :P

Bev and Lisa,

Sorry you are unwell and I hope you are better soon. I am going on 3 weeks of feeling "glutened" after doing very well (for the most part) for awhile. In fact it's a year ago I was being scheduled for endoscopy and colonoscopy. I feel quite miserable and can't find the culprit- I don't know what to eat anymore! How long can you last on bananas and rice? I am starting to think, dread, that I have something else wrong but I'm so sick of going to doctors! Anyway, in the past 9 months, getting over a glutening took approximately a week and a little more for me.

Feel better soon,

lisa

Mtndog Collaborator
Mtndog
Posted
  • Author
Bev and Lisa,

Sorry you are unwell and I hope you are better soon. I am going on 3 weeks of feeling "glutened" after doing very well (for the most part) for awhile. In fact it's a year ago I was being scheduled for endoscopy and colonoscopy. I feel quite miserable and can't find the culprit- I don't know what to eat anymore! How long can you last on bananas and rice? I am starting to think, dread, that I have something else wrong but I'm so sick of going to doctors! Anyway, in the past 9 months, getting over a glutening took approximately a week and a little more for me.

Feel better soon,

lisa

I hear you!!!!!!!!! I actually called my GI but can't get in until late March. I think the last week it's been stomach flu. I said this in another post..it's amazing how the symptoms are the same bur FEEL entirely different. Different kind of headache, different kind of nausea, etc. I hope you feel better too!

mellajane Explorer
mellajane
Posted

I as well get sick for 5 to 7 days sometimes. It is so rough hang in there it will be over soon... I dont know if this helps but when i get sick i take a lot of baths and just let the water run on my stomach... Its very relaxing and usually helps me sleep...Good luck it will be over soon!

eleep Enthusiast
eleep
Posted

When I got glutened in October, it took three weeks for the emotional, flu-ish, brainfoggy and digestive issues to subside. Since then, I've finished up a course of acupuncture treatment and I just got glutened last week -- it took about six days for all that stuff to fade away, so I think the acupuncture has helped my body rally to the cause better.

Tash-n-tail Rookie
Tash-n-tail
Posted

My experiences tend to cycle and have a correlation on my immediate reaction or dealing with the gluttening.

On a "good" cycle, 3 to 4 days of misery. A "bad" cycle and I'm out for four weeks and another two to recover and move again. :blink: The main reason that I take all this so seriously and strive to be disciplined.

Get better soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.