Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im Freaked Out :(

Lister

By Lister
in Introduce Yourself / Share Stuff

Recommended Posts

Lister Rising Star
Lister
Posted

so there is a chance i may finally have a answer for my constant health probelms (including my mysteries stomich problems) and its not a good answer...... im so freaked out right now its not even funny

my ex-gluten-free has been sick recently and a wierd lesion hole thing showed up on the back of her tonsel its a very wierd infection and she had it once before about 2 years ago, its causing a soar throat but nothing else. she went to the doctor today and because of the type of infection it is and without any other symptoms the doctor desided to tell her it has a possibility of beeing hiv related. So they drew her blood and we are waiting on the results.. but for a doctor to even suggest something of that nature im completly freaked out.. and now we have to wait for the results so i cant stop dwelling. she told me not to tell anyone but i figure this way is confendential and i get it off my chest because im seriusly pulling hairs at this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I'd be scared, too. I'll pray it turns out negative ... no matter what you have, that's NOT the answer you want!

Lisa Mentor
Lisa
Posted

Lister:

Take a deep breath and another. Take one day at a time. Get a good night sleep and see what tomorrow will bring.

Thinkin about you.

Mango04 Enthusiast
Mango04
Posted

Sorry Lister :(. Try not to freak out too much. Everything might turn out completely okay. I'll be hoping for you that it does.

Guhlia Rising Star
Guhlia
Posted

Lister, I know this must be incredibly hard for you. Please remember that we are your friends and we're here for you, Celiac or not. You can tell us anything. If ever need a shoulder to cry on, we will be there for you. If you need to share a laugh, we will be there for you. You don't have to do this alone. Please let us know the results of her test when you get them. I will say a prayer for you and your ex-girlfriend. I hope things turn out well for you. Keep in touch.

Guest AutumnE
Guest AutumnE
Posted

Im sorry you are dealing with this. I had a scare also. My ex from years ago cheated on me with a stripper, drug addicted also :angry: He said he was tested and was fine. I called them and they said to have me come in to get tested even if his came back fine because the antibodies is what is picked up and people develop antibodies at different rates.

I went to the health dept since it was anonymous and was so thankful when two weeks later it came back negative. I would get yourself checked too just to make sure.

Also just repeating what others have said, remember we are here for you.

I'll be praying for you and your ex-girlfriend.

Lister Rising Star
Lister
Posted
  • Author

if she does (hope to god not) but if she does is it 100% i have it? i figure so since we were together for 3 years

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest AutumnE
Guest AutumnE
Posted

No its not 100% Magic Johnson had it and his wife and daughter did not and obviously their sex was unprotected since she became pregnant with their daughter.

Rachel--24 Collaborator
Rachel--24
Posted

Lister, I will keep you in my thoughts and in my prayers.

If it makes you feel any better I had alot of the same symptoms you do and I dont have AIDS.

The first time I got in to see a GI he didnt test me for any of the things I thought he would test me for...instead he asked me if I'd been tested for AIDS. He gave me a paper and sent me to be tested.

I was really scared even though deep down I knew it wasnt that...and I'm at low risk for getting AIDS...but its still BY FAR the scariest test I had the entire time I've been sick. So I definately know how you're feeling. :(

Also....dont be alarmed when they call her and tell her she needs to come in because they have the results. This is standard....they will not give results over the phone. Thats what happened to me and I freaked because they wouldnt tell me it was negative...they told me they needed to see me. I was almost crying. It was scary....but I was negative and I pray that your ex is too.

Generic Apprentice
Generic
Posted

And remember Dr.s are wrong ALL the time. If I would have tested positive for all the things they thought I had, I think I would be died years ago. Sending prayers and good thoughts your way.

-Laurie

Lister Rising Star
Lister
Posted
  • Author

im going to die just waiting for the results. its eating at me so bad i got no sleep last night. im so scared. i desided to do a search for most common symptoms and every single one on the list i have besides constant thrush other then that i match it 100% so im even more freaked out now YAY

i can not stop crying and thinking about it. and i do not even no the results yet but for some reason in my mind all i can think is its positive. i dont even know what i will do if it shows up positive,... i was finally turning around my life and now this.

jerseyangel Proficient
jerseyangel
Posted

Hi Lister,

I'm so sorry about all of this. I will keep you and your ex girlfriend in my thoughts and prayers.

Remember that most of what we worry about never actually happens.

Guhlia Rising Star
Guhlia
Posted

Do you know when she will be getting the results back?

Keep in mind that probably all of your symptoms that match up to HIV symptoms could also be the product of other issues. Plus, if I recall correctly, you do have other symptoms that don't match up with HIV symptoms. Keep that in mind throughout this whole process. It's likely that you don't have HIV and that your symptoms could all be attributed to other things.

I know it's hard, but try to relax. If you're really worried, you may want to contact clinics in your area to find out who does free or low cost HIV testing. It might be worth it to ease your mind to get yourself tested whether or not she's positive. Also keep in mind that HIV is much more frequently passed from male to female than it is passed from female to male so if she has it it's certainly not a given that you have it. Even if she does test positive, it's likely that you didn't contract it, especially if you used protection regularly.

Again, we're all here for you.

CarlaB Enthusiast
CarlaB
Posted

Lister, it's normal to think the worst and to convince yourself that the worst HAS to be true. Try to stop thinking about it and definately stop reading about it ... that probably isn't helping you ... I know that it's impossible not to think about it at all, but try to keep busy with something other than dwelling on it.

debmidge Rising Star
debmidge
Posted

Lister: I barely believe in God anymore but I will definitely say a prayer for you to have peace of mind and hope before I go to bed tonight. HIV is not 100% definite as someone mentioned earlier.

D.

amybeth Enthusiast
amybeth
Posted

Hi, Lister!

Hopefully today is a little bit better for you than yesterday......my only advice was try to avoid looking up symptoms and self-diagnosing......a friend of mine had herself fully convinced once that she had a rare tropical disease.......because she found a list of symptoms on-line

(she actually had the flu)

when you're preparing for the worst it's easy to fall into that "Oh my gosh, that describes me perfectly" mentality.

Save yourself the additional heartache and try to avoid it.

If her results are going to take a while, I would go ahead and get myself tested in the meantime. That's the most positive step you can take right now. I think they'll do it for free, but I'm not certain.

If you're still looking focus on your job search and maybe it will keep your mind as preoccupied as possible until you hear back from her.

Although right now your anxiety level must be very high - it was nice of her to let you know the circumstances. That must have been difficult for her to do.

Thinking of you.

Adelle Enthusiast
Adelle
Posted

I'm not gonna tell you to calm down... Cause I know u won't.

HIV has as many varied symptoms as Celiac. HIV "symptoms" can be atributed to a million other things! Docs often want to test for HIV as a rather safe than sorry thing. I had a friend who had unprotected sex with her partner for years before they found out he was positive. She was negative (I lost contact with them when they moved to another state). So even if she does have it, you probably don't. And even if you do, we're all here for you. I'm sending all the good vibes I've got your way. *hugs*

amybeth Enthusiast
amybeth
Posted

Lister,

How are you doing? Just checking in.

jkmunchkin Rising Star
jkmunchkin
Posted

Lister - I just read this post, and as so many others have said, don't freak out. There are so many symptoms that are common to so many things. Just like with celiac. Think how many of those symptoms can be the same for a zillion other things.

Please keep us posted. I will definately be thinking of you.

  • 2 weeks later...
Guhlia Rising Star
Guhlia
Posted

Has anyone heard from Lister since this post? I was wondering how he was doing and how his ex's test results turned out.

Mango04 Enthusiast
Mango04
Posted
Has anyone heard from Lister since this post? I was wondering how he was doing and how his ex's test results turned out.

I was wondering too. Come back Lister and let us know how you're doing...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.