Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help--gaining Weight!


Annie/NM

Recommended Posts

Annie/NM Apprentice

I was dx with Celiac's two month's ago through blood screening and positive biopsy. They also did the Gene test so I can test my 2 children (4 year old already dx). I have the DQ2 gene. I started with my screening in July but have only been gluten-free for two months and good news is my blood is back in the normal range. But at my appointment I weighed 170 pounds versus the 148 in July. I know I"m absorbing my food now so that's good but I don't feel good about my weight gain/body right now. Iknow I should just be glad I'm health but has anyone else experienced this much gain? How do I go about loosing it? I feel already I'm limited in finding food sometimes and then to diet on top of that seems so sad me! I need to exercise but with 3 kids and working part time I have a hard time finding the time~ Thanks for letting me vent~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Annie/NM Apprentice

I started the dx process in July positive bloodwork and biopsy. I have only been gluten-free for 2 months due to waiting to get into a gastro dr. So I have gained 20 pounds since July but my blood is normal now. I know I should be happy about my negative bloodwork but now I'm sad about my weight gain and not feeling good about myself. Has anyone gained this much too? I need to exercise more, that's a give but with 3 kids under 6 I find it hard to do! Any suggestions and/or help? Does your body get more regulated? Thanks!

cajun celiac Rookie

I was diagnosed in Jan and have been gluten-free since. I too am now gaining weight and I am very upset about it. I am anxious to see the responses...

sherylj Rookie
I was dx with Celiac's two month's ago through blood screening and positive biopsy. They also did the Gene test so I can test my 2 children (4 year old already dx). I have the DQ2 gene. I started with my screening in July but have only been gluten-free for two months and good news is my blood is back in the normal range. But at my appointment I weighed 170 pounds versus the 148 in July. I know I"m absorbing my food now so that's good but I don't feel good about my weight gain/body right now. Iknow I should just be glad I'm health but has anyone else experienced this much gain? How do I go about loosing it? I feel already I'm limited in finding food sometimes and then to diet on top of that seems so sad me! I need to exercise but with 3 kids and working part time I have a hard time finding the time~ Thanks for letting me vent~

Annie,,I thought I might lose on the gluten free diet as well and I feel like I need to eat all the time to "make up" for what I can't have. Don't know if this is part of what is going on but there are alot of things out there that are gluten free that are NOT good for us. (like the bag of potato chips I had tonight) Weight watchers worked for me in the past. Don't give up...you know what you need to do,,,just getting motivated is the other half of the formula

sunshinen Apprentice

It's hard to reframe how you think about food. But really that's the only way to make it work. You can't think about it as a diet, but as a better lifestyle that is going to make your life MUCH better. I have hereditary high cholesterol, and after a while of eating healthier food, the bad stuff actually tastes bad to me. You kind of have to go on a cooking adventure. Instead of replacing gluten with all the gluten-free products, find vegetarian dishes and other ways to eat gluten-free, non-processed, healthy food. I was a meat and potatoes kind of girl, but now half my meals are all vegies. I eat healthy, and I feel good about it, not deprived. The mindset makes all the difference in being able to actually do it. You can't call it going on a diet. That just doesn't work for me at least. If I focus on the can't haves, I end up binging on the bad stuff I can have, even if I don't like what I'm eating. It's silly, but I think we're all that way to a degree. But you can get a good grasp on it. Just make small changes little by little, never beat yourself up.

lovegrov Collaborator

I know that at first I was eating enormous amounts of food. But even when that slowed I continued to gain. The only answer for me -- and really the only answer for most people -- is that I had to eat less (I still ate almost anything I wanted, but I ate much less of the empty calorie stuff) and I had to exercise more. There's no magic pill, cream or machine.

richard

LoveBeingATwin Enthusiast

Annie!

I totally know how you feel. I was diagnosed with celiac in december and have only been gluten free for a couple of months and dairy free about one month. Over the last year, I have put on over 25 pounds. When I was going through all of the testing process, they found out that my liquids were not absorbing like they should. So to say the least, I have a severe malabsorption problem and when you have that it makes it really hard to get your body back in line. I feel like my body is trying to hold onto everything that I give it. I did go and get some gluten free vitamins at the health food store and since then I feel a little bit better. I read that with malabsorption, your body lacks certain vitamins and minerals. Once I started taking these vitamins I started feeling better. I also had to eliminate dairy because my body couldn't absorb that either. However, I still have not lost weight, but I know that will take sometime. So the only advice I can give you is to listen to your body. Once your medical issues are under control your body will start working better. Right now I am just trying to eat more fruits,veggies and lean protein and less gluten free processed foods. I also started riding my bike to get some sort of exercise in. Sorry this is so long but I know how you feel. It will just take time and patience. Just remember that your body is trying to heal in it's own way. Best of luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    2. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,230
    • Most Online (within 30 mins)
      7,748

    DJD
    Newest Member
    DJD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.