Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Self Sleuthing


nama shivaya

Recommended Posts

nama shivaya Explorer

Ok, so canola makes my guts quiver. Yesterday Ben & Jerry's Cherry Garcia gave me immediate D. And this morning eating an egg seems to have made my legs weak. Wow. All I seem to be able to eat is whole meats and veggies right now!!! It's getting a bit tedious! I have an appt later this month with an integrative med doc to try to figure out what in the world is going on with me!! Even if I do have MS (still going through testing -- have had inconclusive MRI's and getting my lumbar puncture next week) I still think that food sensitivity is messing with my systems!!

So, question: Do any of you have immediate physical symtoms such as muscle aches, weakness, etc. from food insensitivities?

Any input is valuable! Thanks!

Nama B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chefling Newbie
Ok, so canola makes my guts quiver. Yesterday Ben & Jerry's Cherry Garcia gave me immediate D. And this morning eating an egg seems to have made my legs weak. Wow. All I seem to be able to eat is whole meats and veggies right now!!! It's getting a bit tedious! I have an appt later this month with an integrative med doc to try to figure out what in the world is going on with me!! Even if I do have MS (still going through testing -- have had inconclusive MRI's and getting my lumbar puncture next week) I still think that food sensitivity is messing with my systems!!

So, question: Do any of you have immediate physical symtoms such as muscle aches, weakness, etc. from food insensitivities?

Any input is valuable! Thanks!

Nama B)

That's a good question.. I had been gluten free for a month while eating dairy and seemed to be doing well but came along and ate someone elses rice casserole where I didn't know the ingredients and had immediate D. Then I went on a binge of wheat products for 2 days. Then off gluten and dairy for several weeks until yesterday when I began to introduce small amounts of gluten to get ready for a blood test I'm having on the 15th. Yesterday the foul smelling gas returned and today after having a sandwich I felt extremely weak and my heart rate felt like it was racing. Is this what being 'glutened' is like?

Can anyone help us out?

CarlaB Enthusiast

It varies from person to person. My stomach starts feeling funny during the meal if I got glutened by it. Some people don't get sick for a couple days.

chefling, you shouldn't have been gluten-free until after your blood test. You want to be sure to eat a lot of gluten every day to TRY to make up for not eating it for a month. If you healed enough during the month, two weeks won't be enough for the blood test. I guess it all depends on how badly your intestine was damaged before you were gluten-free, if it was damaged at all .... also on how fast you heal.

Nama, it's not uncommon to be sensitive to a lot of things in the beginning. Many of us start out with just meat and veggies.

I can't answer the questions about muscle aches and weakness because mine comes from the Lyme. Maybe someone else can answer that one.

Lisa Mentor

I have learned that lactose is absorbed on the tips of the villi. So it makes sense that with villi damage caused by a gluten intollerance, lactose cannot be absorbed and can be an irritant.. It is often heard here that dairy, other than gluten, can cause gluten-like symptoms, ie the BIG D.

I think that I can handle a little dairy, but not much. I don't have the brain fog with dairy that I have with gluten.

I have not had the joint aches, but a cronic back ache while on gluten and pre dx'd.

I don't know whether that is a help of not.

Debbie65 Apprentice

I used to have chronic backache which has disappeared since I went gluten-free.

My first symptom of being glutened is that my stomach makes the wierdest noises that can be heard above a surround sound TV and it feels as though something is crawling around inside it. Sometimes I feel like John Hurt in the Alien scene but I don

nama shivaya Explorer

Wow -- the alien analogy is a cool one! lol Thanks for all the input everyone. I think I'll just have to calm down and take it one day at a time. I'll let the meat and veggies do their thing and stay away from the more exciting foods for now (until I get a handle on my situation.)

I'm thinking of adding an enzyme or something to my supplement regimine. Any suggestions? I'm feeling a bit C today.

CarlaB Enthusiast

Do you take probiotics?

For the C, maybe you need more magnesium. Stewed prunes also help ... just boil them in water and they'll absorb the water. It makes them easier to eat, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Slackermommy Rookie

The alien thing, LOL!! :lol:

I keep feeling like I am pregnant, but the alien comparison is much more appropriate!

I think probiotics are great too, and I like the stewed prunes idea..I may try that for myself.

nama shivaya Explorer

What are probiotics? And where do I get them?

CarlaB Enthusiast
I like the stewed prunes idea..I may try that for myself.

My problem is I can sit there and eat the whole bowl! :o:ph34r: I have to limit myself! :lol:

CarlaB Enthusiast
What are probiotics? And where do I get them?

Probiotics are beneficial bacteria. Many times our guts do not have enough of the "good" bacteria. You can get some at the health food store in the refrigerated section of the supplement dept.

I take Theralac, which you can order off the internet. I like it because it has more kinds of bacteria than most and more of it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748

    Cbear
    Newest Member
    Cbear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.