Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Let's Talk To Oprah


wethree

Recommended Posts

wethree Newbie

On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jacqui Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

done-going ther now. My family and I keep saying I ned her doc's - Dr. Oz and Dr. Rosen(?). We were very disappointed in the View talk about celiac disease. My Mom told me they dedicated a whole show to depresasion, which is commercially announced every commercial celiac needed a whole show, not the last 10 minutes!!eak. Sorry but celiac needed a whole show as it barely scratched the surface.

confused Community Regular
done-going ther now. My family and I keep saying I ned her doc's - Dr. Oz and Dr. Rosen(?). We were very disappointed in the View talk about celiac disease. My Mom told me they dedicated a whole show to depresasion, which is commercially announced every commercial celiac needed a whole show, not the last 10 minutes!!eak. Sorry but celiac needed a whole show as it barely scratched the surface.

I think it would be awesome if dr. oz talked about celiac. I was not impresses with the segment on the View either. I felt it did not cover it enough and it was all rushed. I was happy to see it on television, just wish it was longer and gave a more detailed view of the whole aspect of celiac. Ten minutes is not enough time to talk about something that so many have no idea what it is.

paula

jacqui Apprentice
I think it would be awesome if dr. oz talked about celiac. I was not impresses with the segment on the View either. I felt it did not cover it enough and it was all rushed. I was happy to see it on television, just wish it was longer and gave a more detailed view of the whole aspect of celiac. Ten minutes is not enough time to talk about something that so many have no idea what it is.

paula

Ditto.

It is almost a year now and I am sooo tired of people including most of the doctors I or family have had to deal with. NO ONE takes Celiac serious, well at least the people(including family!!) I have been dealing with have been completely ignorant.

I can't go on it is late and I feel a rage of frustration coming on... :angry:

jacqui Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

I went, I signed up, But I couldn't find what you were talking about so I started to e-mail them and then got side tracked...

Where do I look?

My husband and I will do it this morning...

darlindeb25 Collaborator

Click on her site and scroll down to "email us". When that window opens, there are different guestions you can click on and one is, Do you have an idea for our show?

UNCHeel Rookie

I think you all read my mind. I will log in and make the suggestion as well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

GREAT IDEA!!!!

I'm rushing out the door right now--can someone please post a link to tempt those who are either lazy, rushed, not good with Oprah's sites, etc? That way, we might get more of us getting the message across to Oprah!

jerseyangel Proficient

Here's the link--

Open Original Shared Link

confused Community Regular

Done, i so hope she listens to all of us that send in this idea. I really belive she will listen to us.

Has anyone ever tried to get Dr Phil to do an show on celiac?

paula

luvs2eat Collaborator

Don't like Oprah... won't watch Oprah... the only time I've written was the first and last time to tell her to please scrape her nose off the ceiling... cause I don't CARE what she thinks!!

(bah, humbug... I'm not usually so crabby...)

Fiddle-Faddle Community Regular

Thanks, Patti!

I sent my request in. This is the second time I've written (I tried last summer, too), but maybe it'll catch her attention if a whole bunch of us keep peppering her with emails!

finally diagnosed Apprentice
On Oprah's site she is asking for show ideas now. I went on and suggested she do a show on celiac. I know we have tried this before, but with Elisabeth on THE VIEW coming out now we need to stike while the iron is hot. Just go to www.oprah.com and give your opinion on a show on celiac.

all set. i sent an email with a suggestion. i hope it works. lorrie

UNCHeel Rookie

Mine is in too. We'll keep our fingers crossed.

  • 2 weeks later...
angelbender Newbie

Well, a bit later than these other postings but I just sent my request to Oprah's Show too. I also am not very fond of her anymore.....she pretty much does whatever she pleases/suits her. I had written a number of times years ago about covering Fibromyalgia and got a nasty reply. Perhaps this will turn out better.

I haven't checked all of the postings yet but did anybody see the article on Elizabeth Hasselback in the April 09 issue (it came out last Friday) of People Magazine where it mentions her Celiac Disease twice?

  • 2 weeks later...
brendygirl Community Regular

Today they show Oprah After the Show and it had Oprah's trainer, Bob Greene talking about his book The Best Life about diet and exercise. A woman in the audience asked how she could accommodate her diet since she is allergic to peanuts, dairy, and gluten.

Bob said there are gluten free recipes on his book's website and that when you register you can set parameters so you can only receive Gluten-free recipes.

I thought it was great to hear them speak about gluten free! It seemed he was quite familiar with it.

elye Community Regular

Unfortunately, he isn't as familiar with the disease as we all are, or he'd be ALL OVER Oprah to do a complete show on celiac and its myriad debilitating symptoms... :(

Canadian Karen Community Regular

Personally, I think it is negligent of Oprah to be all over the autism issue without bringing up the gluten connection at all...... :angry:

gfp Enthusiast
Personally, I think it is negligent of Oprah to be all over the autism issue without bringing up the gluten connection at all...... :angry:

LOL... no offense.... but Oprah will do what makes for viewing figures....fits neatly into a show.... etc. and has the right components to make her look good...

So the problem really is her Dr's probably have no idea about celiac disease.... (above and beyond what our MD's do)....

We can probably see 101 reasons it actually would make a good show.... and all the different avenues she could explore whereas her advisors and script writers just see a dull disease....

Basically and I know this sounds tough.... a few avenues she'd love to cover would be

"My husband had moods and beat up on me when he was glutened"

"I lost my job/baby/marriage due to celiac"

"My employer discriminated against me because of my disease"

Not poor (mainly) white (often) middle class Americans ... or perhaps I'm just cynical...

More chance of getting on Jerry Springer by saying you'll get glutened and start pulling the hair out of the MD they bring on to say brain fog is all in your head.... :ph34r:

However its definately worth a go.... I just think y'all have more chance if yoos rights yoos emails like this!

elye Community Regular

That is a great idea!

The producers of Oprah's show are simply rolling their eyes at stories of weekends spent in the bathroom with unrelenting D, of nagging migraines, of brain fog, of stomachs that look nine months pregnant...I can just see their eyes glazing over. They need to hear from those who have had countless miscarriages, a failed marriage, spectacular seizures and memory loss, the cancer diagnosis that could have been halted had celiac been diagnosed in time. Unfortunately, it is only the gut-wrenching stories that they will glance twice at--the stories that would make her audience stammer, "WHAT? Eating wheat can do THAT?!" If anyone is brave enough to write to Queen O with a personal account of the truly tragic and debilitating sides of this disease (and you must sound desparate and committed to getting the word out) I think then we have a chance of bending her ear. Gfp, you are onto something...

gfp Enthusiast
Gfp, you are onto something...

Sometimes I actually hate to be correct....!

Its just entertainment... people tune in for sensationalism.... I don't think Quenn O is bad... she's just dfoing her job which is entertainment.... and in some ways she does actually help.... but only when it fits the sensationalism and promotes her... but that is what entertainment is all about...

I always remember hearing a newspaper writeup for Jerry Springer doing a show at Cambridge univerity.... he started the show by asking what the heck intellengent people were doing watching his show.... then continued saying he doesn't care if it makes him money.. (at least its honest)...

The thing is there is some sensationalist thing in all of us to some extent.... its the slow down to see the traffic accident syndrome...

but it makes for good viewing figures and these people are just following their job....

I honestly think unless there is sensationalism its not going to be considered... and that means as you say someone willing to share (on national TV) some very personal stories....

Suzanne M. Rookie

I also have written to Oprah about doing a show. She reaches so many households. I run into people every week that seem to have symptoms of Celiac, but, have never heard of it, and they are not getting diagnosed correctly.

elye Community Regular

I'm afraid my personal account to Oprah was just too eye-rolling and boring...low iron and vague GI stuff. But I am serious when I put the call out to the countless people who have eye-opening, incredible stories about what gluten has done to them. Really, I'm certain that this is the magic bullet to get Oprah finally to look our way, after all the posts we have shared together over the last few years on this problem of getting her attention.

  • 2 weeks later...
brendygirl Community Regular

Oprah tends to do shows based on topics of interest to people she knows. For example, she just did a whole show on the topic of Russell Simmons' book, Do You. Oprah does not have celiac disease, and it is NOT her responsibility to do a show about it.

ELISABETH HASSELBECK DOES have celiac disease and SHE should be using HER celebrity status to push the issue and SHE should talk to Oprah about how she felt the best she ever had while on Survivor- eating only fish and rice! (the mini-segment The View did on celiac disease was downplaying and confusing- it seemed her mission was to show how NORMAL she is rather than to educate people about it)

eleep Enthusiast

Hey -- if she needs someone to talk about losing a relationship because of celiac, I'll dish about my breakup for celiac publicity!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.