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Gfcf Diet

dalma

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dalma Newbie
dalma
Posted

I don't have any problem as far as I know with milk or dairy products, but I was tested positive for casein antibodies. I was wondering if I need to be cautious about consuming hidden casein as I need to be with gluten?

Thanks!

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Lisa Mentor
Lisa
Posted

I would concentrate on the gluten because that is the bad guy that does the damage. As you heal from the gluten damage, you may find that you become more sensitive to casein. To my understanding, gluten will cause damage, but casein causes symptoms and not intestinal damage. I am not 100% on that, though.

Others are more informed.

CarlaB Enthusiast
CarlaB
Posted

If you have a casein intolerance, you need to read ingredients.

I tested positive for casein intolerance, went casein free for six months, then challenged it. I don't have any problems with casein. I noticed no difference whether I was consuming it or not.

dalma Newbie
dalma
Posted
  • Author

Thank you very much for your replays. I am really not sure if any of my symptoms are either casein or gluten related but I am giving it try. It has been only couple of weeks since I've been on diet and don't feel any different yet, but I am willing to try.

kookaburra Rookie
kookaburra
Posted
If you have a casein intolerance, you need to read ingredients.

I tested positive for casein intolerance, went casein free for six months, then challenged it. I don't have any problems with casein. I noticed no difference whether I was consuming it or not.

What is the test for casein intolerance? Thanks!

dalma Newbie
dalma
Posted
  • Author
What is the test for casein intolerance? Thanks!

I had Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value from Enterolab. This test includes: Antigliadin, anti-tissue transglutaminase, malabsorption test, gene test, and milk sensitivity test.

CMCM Rising Star
CMCM
Posted

I thought my entire life until last year that I had severe dairy problems. Last year I tested positive for casein and gluten. I eliminated both for quite some time, then later discovered that when not eating gluten, I actually did fine with somewhat limited casein (dairy) in my diet. However, I questioned Enterolab about this, and they told me that if one tests casein sensitive, you should not eat dairy any more than you should eat gluten, that eating casein could also do damage. I don't know what to think at this point, but for what it's worth, my obvious dairy problems seemed to be linked with eating gluten. I seem to do OK with limited dairy, but if I have too much, I do get digestive and D problems with it. :(

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dalma Newbie
dalma
Posted
  • Author
I thought my entire life until last year that I had severe dairy problems. Last year I tested positive for casein and gluten. I eliminated both for quite some time, then later discovered that when not eating gluten, I actually did fine with somewhat limited casein (dairy) in my diet. However, I questioned Enterolab about this, and they told me that if one tests casein sensitive, you should not eat dairy any more than you should eat gluten, that eating casein could also do damage. I don't know what to think at this point, but for what it's worth, my obvious dairy problems seemed to be linked with eating gluten. I seem to do OK with limited dairy, but if I have too much, I do get digestive and D problems with it. :(

I pour regular milk by mistake (hard to get used to all this) in my gluten-free cereal. Didn't want to waste so I ate it, I didn't think it would hurt. Soon later I got nauseated and my heart started beating harder, not so much faster, but stronger. I wonder if that was because of the milk? I would need to do it again just out of curiosity.

Nancym Enthusiast
Nancym
Posted

I tested positive for casein and I "cheat" every now on then, on the casein. I usually end up with a good case of "wind" (shall we say...) if not worse. So there's definitely stuff going on down under that brings on some stormy weather.

hathor Contributor
hathor
Posted

At first it would probably be good if you were as strict with the casein. You can always challenge later once your system is doing well on a Gluten-free Casein-free diet. You won't know if CF will make you feel better if you never truly go CF.

Just because you never noticed a problem doesn't mean it doesn't exist. I never noticed a problem with soy. But my test results said I had one. I cut out soy and found a few things improving that I had no idea were related. But since I was having soy all the time before, I never knew.

Another thing to consider is how high your score was and how much casein you had been having before the test. I was having very, very little casein and yet my score was pretty high. If you are used to lots of casein and your score was just over the threshold I don't know if you should be as concerned. Just thinking out loud ... I don't know if one can interpret the test results the way I am :rolleyes:

My husband and I are still arguing about whether I have a problem with yeast or not. My test result was just over the threshold. When I cut out yeast, I saw no impact. I also read of a test where a number of newly diagnosed celiacs also had yeast antibodies; after a year on a gluten-free diet, some of them were no longer creating them. I suppose the same thing could happen with anticasein antibodies, but I haven't run across any studies showing this happening. Yeast is the one I am planning on challenging at some point myself.

dalma Newbie
dalma
Posted
  • Author
At first it would probably be good if you were as strict with the casein. You can always challenge later once your system is doing well on a Gluten-free Casein-free diet. You won't know if CF will make you feel better if you never truly go CF.

Just because you never noticed a problem doesn't mean it doesn't exist. I never noticed a problem with soy. But my test results said I had one. I cut out soy and found a few things improving that I had no idea were related. But since I was having soy all the time before, I never knew.

Another thing to consider is how high your score was and how much casein you had been having before the test. I was having very, very little casein and yet my score was pretty high. If you are used to lots of casein and your score was just over the threshold I don't know if you should be as concerned. Just thinking out loud ... I don't know if one can interpret the test results the way I am :rolleyes:

My husband and I are still arguing about whether I have a problem with yeast or not. My test result was just over the threshold. When I cut out yeast, I saw no impact. I also read of a test where a number of newly diagnosed celiacs also had yeast antibodies; after a year on a gluten-free diet, some of them were no longer creating them. I suppose the same thing could happen with anticasein antibodies, but I haven't run across any studies showing this happening. Yeast is the one I am planning on challenging at some point myself.

Thank for you the reply.

I am trying to avoid soy too because I have hypothyroidism and I know it's not good for me. I am not 100% soy free, though. I cook a lot but when you have to do it every single day it's not fun any more.

I was not high at all in any of antibodies that I have been tested positive. I had some milk on the day or the night before of the test.

Fecal Antigliadin IgA 23 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 15 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow

sfm Apprentice
sfm
Posted
I don't have any problem as far as I know with milk or dairy products, but I was tested positive for casein antibodies. I was wondering if I need to be cautious about consuming hidden casein as I need to be with gluten?

Thanks!

I was diagnosed casein sensitive, as well - but I notice that as long as I don't overdo it, I'm okay - where with gluten the slightest bit makes me violently ill. So I don't think it's the same - at least for me.

Sheryll

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

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    • trents
      Accuracy of testing concerns

      By trents · Posted

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    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
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      By trents · Posted

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      By Peace lily · Posted

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