Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gfcf Diet


dalma

Recommended Posts

dalma Newbie

I don't have any problem as far as I know with milk or dairy products, but I was tested positive for casein antibodies. I was wondering if I need to be cautious about consuming hidden casein as I need to be with gluten?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I would concentrate on the gluten because that is the bad guy that does the damage. As you heal from the gluten damage, you may find that you become more sensitive to casein. To my understanding, gluten will cause damage, but casein causes symptoms and not intestinal damage. I am not 100% on that, though.

Others are more informed.

CarlaB Enthusiast

If you have a casein intolerance, you need to read ingredients.

I tested positive for casein intolerance, went casein free for six months, then challenged it. I don't have any problems with casein. I noticed no difference whether I was consuming it or not.

dalma Newbie

Thank you very much for your replays. I am really not sure if any of my symptoms are either casein or gluten related but I am giving it try. It has been only couple of weeks since I've been on diet and don't feel any different yet, but I am willing to try.

kookaburra Rookie
If you have a casein intolerance, you need to read ingredients.

I tested positive for casein intolerance, went casein free for six months, then challenged it. I don't have any problems with casein. I noticed no difference whether I was consuming it or not.

What is the test for casein intolerance? Thanks!

dalma Newbie
What is the test for casein intolerance? Thanks!

I had Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value from Enterolab. This test includes: Antigliadin, anti-tissue transglutaminase, malabsorption test, gene test, and milk sensitivity test.

CMCM Rising Star

I thought my entire life until last year that I had severe dairy problems. Last year I tested positive for casein and gluten. I eliminated both for quite some time, then later discovered that when not eating gluten, I actually did fine with somewhat limited casein (dairy) in my diet. However, I questioned Enterolab about this, and they told me that if one tests casein sensitive, you should not eat dairy any more than you should eat gluten, that eating casein could also do damage. I don't know what to think at this point, but for what it's worth, my obvious dairy problems seemed to be linked with eating gluten. I seem to do OK with limited dairy, but if I have too much, I do get digestive and D problems with it. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dalma Newbie
I thought my entire life until last year that I had severe dairy problems. Last year I tested positive for casein and gluten. I eliminated both for quite some time, then later discovered that when not eating gluten, I actually did fine with somewhat limited casein (dairy) in my diet. However, I questioned Enterolab about this, and they told me that if one tests casein sensitive, you should not eat dairy any more than you should eat gluten, that eating casein could also do damage. I don't know what to think at this point, but for what it's worth, my obvious dairy problems seemed to be linked with eating gluten. I seem to do OK with limited dairy, but if I have too much, I do get digestive and D problems with it. :(

I pour regular milk by mistake (hard to get used to all this) in my gluten-free cereal. Didn't want to waste so I ate it, I didn't think it would hurt. Soon later I got nauseated and my heart started beating harder, not so much faster, but stronger. I wonder if that was because of the milk? I would need to do it again just out of curiosity.

Nancym Enthusiast

I tested positive for casein and I "cheat" every now on then, on the casein. I usually end up with a good case of "wind" (shall we say...) if not worse. So there's definitely stuff going on down under that brings on some stormy weather.

hathor Contributor

At first it would probably be good if you were as strict with the casein. You can always challenge later once your system is doing well on a Gluten-free Casein-free diet. You won't know if CF will make you feel better if you never truly go CF.

Just because you never noticed a problem doesn't mean it doesn't exist. I never noticed a problem with soy. But my test results said I had one. I cut out soy and found a few things improving that I had no idea were related. But since I was having soy all the time before, I never knew.

Another thing to consider is how high your score was and how much casein you had been having before the test. I was having very, very little casein and yet my score was pretty high. If you are used to lots of casein and your score was just over the threshold I don't know if you should be as concerned. Just thinking out loud ... I don't know if one can interpret the test results the way I am :rolleyes:

My husband and I are still arguing about whether I have a problem with yeast or not. My test result was just over the threshold. When I cut out yeast, I saw no impact. I also read of a test where a number of newly diagnosed celiacs also had yeast antibodies; after a year on a gluten-free diet, some of them were no longer creating them. I suppose the same thing could happen with anticasein antibodies, but I haven't run across any studies showing this happening. Yeast is the one I am planning on challenging at some point myself.

dalma Newbie
At first it would probably be good if you were as strict with the casein. You can always challenge later once your system is doing well on a Gluten-free Casein-free diet. You won't know if CF will make you feel better if you never truly go CF.

Just because you never noticed a problem doesn't mean it doesn't exist. I never noticed a problem with soy. But my test results said I had one. I cut out soy and found a few things improving that I had no idea were related. But since I was having soy all the time before, I never knew.

Another thing to consider is how high your score was and how much casein you had been having before the test. I was having very, very little casein and yet my score was pretty high. If you are used to lots of casein and your score was just over the threshold I don't know if you should be as concerned. Just thinking out loud ... I don't know if one can interpret the test results the way I am :rolleyes:

My husband and I are still arguing about whether I have a problem with yeast or not. My test result was just over the threshold. When I cut out yeast, I saw no impact. I also read of a test where a number of newly diagnosed celiacs also had yeast antibodies; after a year on a gluten-free diet, some of them were no longer creating them. I suppose the same thing could happen with anticasein antibodies, but I haven't run across any studies showing this happening. Yeast is the one I am planning on challenging at some point myself.

Thank for you the reply.

I am trying to avoid soy too because I have hypothyroidism and I know it's not good for me. I am not 100% soy free, though. I cook a lot but when you have to do it every single day it's not fun any more.

I was not high at all in any of antibodies that I have been tested positive. I had some milk on the day or the night before of the test.

Fecal Antigliadin IgA 23 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 15 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow

sfm Apprentice
I don't have any problem as far as I know with milk or dairy products, but I was tested positive for casein antibodies. I was wondering if I need to be cautious about consuming hidden casein as I need to be with gluten?

Thanks!

I was diagnosed casein sensitive, as well - but I notice that as long as I don't overdo it, I'm okay - where with gluten the slightest bit makes me violently ill. So I don't think it's the same - at least for me.

Sheryll

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.