Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee?


holdthegluten

Recommended Posts

holdthegluten Rising Star

Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Piccolo Apprentice

Dear holdthe gluten,

I can't drink coffee either. I get sick just like you do. Tea has cafeen in it but not as much. Coke has it too, but tht adds sugar also. I drink tea.

Susan

Piccolo Apprentice

Dear holdthegluten,

I can't drink coffee either. I get sick just like you do. Tea has cafeen in it but not as much. Coke has it too, but tht adds sugar also. I drink tea.

Susan

flowergirl Rookie

You don't want to be drinking coffee while recovering on the gluten-free diet or if you have inflammation... if ever. Coffee is a strong gut irritant and will slow your progress significantly. Google the words "coffee gut irritant" and you'll find heaps of proof.

darlindeb25 Collaborator

You don't want to be drinking coffee while recovering on the gluten-free diet or if you have inflammation... if ever. Coffee is a strong gut irritant and will slow your progress significantly

This is only true for some, not for all. Coffee has never bothered me, never. Tea has bothered me. I stopped drinking tea for a long time after going gluten free, I never stopped with my coffee. We are all different and no standard other than being completely gluten free is true for "all".

Some gluten intolerant have to give up dairy, but not all, I didn't. Some gluten intolerant can tolerate soy, some of us can't.

Coffee is bad for those who can't tolerate it, but it is fine for those of us who can.

Fiddle-Faddle Community Regular

Coffee has always given me the runs, but the real reason I don't drink it is the post-caffeine crash.

There seems to be a link between gluten and bipolar syndrome--and there is a very strong link between coffee/caffeine and bipolar syndrome. Like Deb says, we are all different--but if you have any tendencies toward neuro issues, I would steer clear of both gluten AND caffeine!

That said, because of coffee's acidity, I would agree that it is a likely irritant to a not-yet-recovered leaky gut.

yellowbird22 Newbie

Coffee does terrible things to my stomach and sleep patterns. I drink green tea with soy milk!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Samanthasmomma Apprentice

2 cups black tea every morning with splenda and milk. Its my "fake" coffee, much better on my tummy.

Felidae Enthusiast

I can drink coffee or tea without any problems.

gfp Enthusiast

Some little known facts about coffee....

The cheapest coffee has far more caffine in it because it uses robusta beans which naturally have more caffine....

So the first move is go for something 100% arabica.

Second.. the more water you run through coffee the more caffine gets taken out... so even though you'd think that filter coffee would be better than a real strong expresso its actually not....

Honestly I know that one take a bit of believing....

If you take a ristretto its half the water of a expresso and 1/5th of a "long" type coffee ....

Personally i like a good ristretto but if you prefer something "longer" then start with a ristretto and then add water instead of pushing more water through the beans... which at this point is mainly just leaching out more caffine and hardly any flavor...

The worst coffee is greek/turkish or I guess what you americans might call cowboy coffee where you leave the grounds to steep i the water thus leaching out the max amount of caffine...

If you google there are quite a few analyses of different coffee's ... I seem to remember the McDo's was the highest in caffine ...

Anyway....its a different way to look at it I suppose.... its just one of those things that is at first counter intuitive.

Felidae Enthusiast
The worst coffee is greek/turkish or I guess what you americans might call cowboy coffee where you leave the grounds to steep i the water thus leaching out the max amount of caffine...

Do you mean coffee made in a French Press? The taste depends on the coffee you use. Also, I think the taste is a personal preference.

sfm Apprentice
Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.

I had to give up coffee... :(

And boy, did I fight it!!

I drink chai tea now, as it is spiced, so it has a bite to it, which is a little more interesting to me than plain tea. It has made a big difference with my acid reflux - which could be causing your nauseau. Sometimes when we get rid of the gluten, we start noticing all the other things that are sensitive, I think.

Sheryll

CraigN Newbie
Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.

Yes - I stopped drinking about a week ago and have noticed a tremendous decrease in the pain in the left side of my gut. I started drinking tea in the morning and haven't missed the coffee a bit.

SunnyDyRain Enthusiast

I still drink coffee, but had to get rid of the sweet and low - had to go to real sugar. I limit my real coffee to one cup every 12 hours. If i am really jonesing for coffee after the first one, I go decaf.

larry mac Enthusiast
I still drink coffee, but had to get rid of the sweet and low - had to go to real sugar. I limit my real coffee to one cup every 12 hours. If i am really jonesing for coffee after the first one, I go decaf.

sdr,

May I ask why you had to give up sweet & low (sacchharin) ? I've never used it (it's very bitter to my taste buds), but my wife uses lots of it (not celiac). I have read that of the main three sugar substitutes, it is the least objectionable (health nut wise, and I say that with all due respect as I may be one myownself), with equal (apertame) next and then splenda (sucralose).

Did you have actual reactions to it, or just gave it up on general principals?

best regards, lm

little d Enthusiast

Hi ya'll Donna here

I can drink coffee with my sugar and cream (Coffee Mate Cream) is Gluten Free ya!(International Creamers) are not that i know of. But I can not drink the dark blends they tend to really hurt my tummy. Soft drinks have to be diet (I know aspertame is not good for me as well), regular hurt my tummy. I mistakely on Friday morning (I work nights I drank it at 3AM for everybody else that would be 3 in the afternoon you have to look at it that way) a regular Cherry Pepsi and my stomach burned for a while, and I think that contributed to my Migrane that I had on Sunday that started on Saturday night, My system is slow so my reaction time is about 1 to 2 days, sometime sooner. But I saw somewhere that flavored coffees are a no no for people who suffer from celiac disease or might suffer from celiac disease. So I stopped drinking flavored did not miss it too much. I do go to 7-11 for coffee and sometime choose to put the flavor syrup but i have to put sugar free flavor because the reg has high fructose corn syrup.

VioletBlue Contributor

Oh well poop. Just burst my bubble why don't you? I buy the really good stuff and drink only espresso. So that dark dark brew actually contains LESS caffine? Uggggg. Well, I still prefer the taste, particularly since 2/3 of what I drink it decaf. Only way I've ever found to make decaf drinkable.

Some little known facts about coffee....

The cheapest coffee has far more caffine in it because it uses robusta beans which naturally have more caffine....

So the first move is go for something 100% arabica.

Second.. the more water you run through coffee the more caffine gets taken out... so even though you'd think that filter coffee would be better than a real strong expresso its actually not....

Honestly I know that one take a bit of believing....

sugarlust Newbie

heya

i must say for myself my tummy has never been able to handle much caffine. i have been a 3 cup a day coffee drinker for 5+ years now and recently gave it up about 1 month ago (also briefly gave up 1 year ago but only for 1 month) I like the 'high' caffine gives me' but most ppl i know think i am depressed whenever coming down from the high. i tell them my brain is just having a rest! lol i am very sensative to all sorts be it caffine, alcohol or drugs (over the counter/prescibed ones. havent done any illegal ones apart from trying pot twice when i was 18, just didnt interest me)

but since i gave up coffee i have noticed a 'calm' within myself when i was always tense on coffee and of course it added to my tummy probs i think. and now whenever i have a high caffine cola drink or just too much cola, i get Horrible pains (last time i had some unknowingly. wasnt till my BF checked the label as he thought it Smelled like coffee, turned out to be coffee flavoured cola and higher caffine content in it)

and on the other hand, caffineated tea tends to Help me go to the toilet often, if i am a bit 'stuck' (thought some of u may like that info lol)

  • 8 months later...
Natasha H. Newbie

Trouble with coffee: YES. I am newly diagnosed and of course am still sorting it out like the rest of us, so here I am, sitting with the biggest bloated sore belly ever. I can't ever remember coffee not doing a number on me, but isn't it strange what we will put up with for a buzz? I think that coffee is really rough on the entire digestive system, and possibly there could be some gluten traces in it. Why not? Everything else seems to have gluten in it!

VioletBlue Contributor

Pure coffee is highly unlikely to have gluten in it. Coffee beans live in the company of other coffee beans when they're harvested roasted and ground. The roasting equipment and processes are unique to coffee beans so they would not be sharing equipment with anything else. The exception would be some flavored coffees. Added flavorings can have gluten in them. The flavoring is not in the bean but added to the coffee as or after it's ground. I personally carefully check for those few companies that think chicory belongs in coffee. I'm allergic to chicory. But pure ground coffee beans are going to be gluten free unless someone deliberatly adds gluten to them, cross contaminates them in the process of brewing your cup of coffee, or perhaps uses the coffee grinder for grinding something other than coffee beans.

There is also the matter of what creamers and sweetners are used. I'm highly allergic to that Stevia crap. My reaction to Stevia is horrendous, much worse than to gluten. Others have allergic reactions to other sweetners. Some people, particually those newly diagnosed have issues with concentrated amounts of sugar and or milk products. Not all non dairy creamers are gluten free.

Trouble with coffee: YES. I am newly diagnosed and of course am still sorting it out like the rest of us, so here I am, sitting with the biggest bloated sore belly ever. I can't ever remember coffee not doing a number on me, but isn't it strange what we will put up with for a buzz? I think that coffee is really rough on the entire digestive system, and possibly there could be some gluten traces in it. Why not? Everything else seems to have gluten in it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.