Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Know

shan

Recommended Posts

shan Contributor
shan
Posted

how do i know what it is that is making my daughter get the reaction? fromwhat i and her teacher are giving her, it would seem she is fine, yet every second week she seems to be getting a reaction!!! does baby powder have gluten? could that be a problem? and if i bake at night, with regular flour, could there still be flour in the air the next morning and could that be a problem? does baking paper have gluten? and paper cases for cup cakes? do i have to get these from special shops? i am so confused!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Juliet Newbie
Juliet
Posted

Honestly, this is the hardest aspect of going gluten free - cross contamination. And it will always be an issue, even if it only occurs occasionally, until a drug or possibly the much touted enzyme therapy becomes available. There's a good chance it is the regular flour floating in the air or covering the counters/dishes/silverware, or maybe the baby powder. I used corn starch for baby powder just to be on the safe side. No baking paper (cup cake liners, parchment paper) I've come across has gluten, but there's always a chance yours might I guess. It could also be the plates or pans you use if you haven't replaced them or bought separate stuff for your daughter since the diagnosis. Our kitchen & house is completely gluten free, and we had been this way for over a year when my son started reacting to gluten somewhere in his life. He doesn't eat the food from restaurants, but he does occasionally eat out with food we bring, and he of course plays with other kids. However, he never eats their food. His soap, toothpaste, shampoo, and lotion were all OK. So I had no idea where it was coming from. I resorted to wiping down every table & chair he ever ate on that wasn't at his house, wiping his own hands twice before eating whenever we're out (even if he hasn't played or really touched anything), and checking my own cosmetics again to make sure they had nothing in it. I did find that one lip balm I was using very occasionally had wheat germ oil in it, and a lotion that I also used very rarely had wheat germ oil in it, too. I know these two items did not account for everything, but it could have accounted for some. And the extra diligence in keeping everything clean seems to have helped as well. We haven't had a cross contamination issue for over a month now.

ArtGirl Enthusiast
ArtGirl
Posted
and if i bake at night, with regular flour, could there still be flour in the air the next morning and could that be a problem?

That's a real possibility. It would be better if you stopped using regular flour. If others in the family must have gluten foods, then buy them ready made and keep them separate.

You can make many very delicious baked goods that the whole family will like just as much as if it had gluten in it. Another positive aspect of this is that your daughter will at least have a gluten-safe home and where she isn't always confronted with being told she can't have something the rest of the family has.

Nantzie Collaborator
Nantzie
Posted

Also keep in mind that baking paper does not provide enough of a barrier on a cookie sheet or whatever to protect her food from previous gluten on the cookie sheet. It actually can leech up through the paper. If you line the pan with foil first, then put the baking paper on, it should be fine. If your pan is scrupulously clean, I'd worry less about this, but for the life of me I have the hardest time getting that gummy residue (from cooking spray) off my baking pans. If you always use baking paper, your pans are probably much safer than mine ever were.

If you bake with gluten, you really need to do a good cleaning afterward. Get all the stuff you need out before you touch the flour so you're not reaching into drawers or cabinets to grab something, leaving gluten residue on the rest of the stuff in the drawer.

I don't think that cupcake liners have gluten. I know I've never had a problem with them.

You didn't mention how old your daughter is, but if she's in the younger years, you have to make sure that all her arts and crafts supplies are gluten-free. For example, Play-Doh IS gluten. It's a wheat dough. There are other brands that also have wheat, but some that are fine.

Her teacher should also check her hand lotions (lots of them have gluten). I know my aunt who is a teacher is always having to use lotion because all the paper she works with dries her hands out.

It can be really frustrating knowing that she's getting glutened, but not being able to figure it out. It does get easier to figure out after a while though. After a while you feel like you'd make a good crime scene investigator. :lol:

Nancy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,192
    • Most Online (within 30 mins)
      7,748
    teresa1955
    Newest Member
    teresa1955
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Bread choice for a newbie

      By Kris2093u4 · Posted

      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...