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Recent Activity
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- HectorConvector replied to HectorConvector's topic in Related Issues & Disorders315
Terrible Neurological Symptoms
These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have... -
- Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease15
9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease... -
- Jane02 replied to HectorConvector's topic in Related Issues & Disorders315
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- Jane02 replied to HectorConvector's topic in Related Issues & Disorders315
Terrible Neurological Symptoms
Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores).
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