Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Send Good Thoughts For My Little Niece

blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular
blueeyedmanda
Posted

On Friday night, my 5 month old niece started to feel sick and had a slight fever. All of a sudden the fever spiked and she had a seizure. They sent her home from the ER and gave her an antibiotic and said it was an infection....today she was doing well and then out of no where another seizure and once again a tmep spike.

She is a tiny baby too. So we are really worried, plus it is my sisters first. They are back at the hospital and I am waiting on news.

Please keep them in your thoughts.

Amanda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Oh no, Amanda, that's horrible! I'm sure everything will be okay, but its always so scary when a new baby is sick, especially when they're THAT sick. Hang in there and I'm sure time will work its magic and she'll be back to normal in no time. I'm glad they got her to the hospital right away. I'm sure she's in good hands.

imsohungry Collaborator
imsohungry
Posted

Oh Amanda,

(((Hugs))) I'm so sorry to hear this. I know this must be so difficult for everyone in your family. I will definitely keep you and your loved ones in my prayers! Please keep us posted on how your little niece is doing.

Peace and blessings to your family. -Julie

confused Community Regular
confused
Posted

I am so sorry, i will for sure keep her in my thoughts. I hope they keep her overnight. Please keep us updated on her. She is too little to be going threw this, poor little thing.

paula

Canadian Karen Community Regular
Canadian Karen
Posted

Sending prayers her way!

Friends of mine had a baby the same time we had Eileen (who is now 14). Well, for the first two years, their girl Tori, used to spike fevers very quickly and have seizures. She outgrew them by the time she was 2. It was really scary for the parents though.....

Hugs

Karen

Cheri A Contributor
Cheri A
Posted

Oh no! :( Prayers for little Sylvia and your family!!

jerseyangel Proficient
jerseyangel
Posted

Oh Amanda,

I'm just seeing this--I will keep your little niece in my prayers. I hope that by now she is doing much better. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Darn210 Enthusiast
Darn210
Posted

Amanda,

Good Luck and Prayers to your family!!!

My good friends daughter had febrile seizures. Kids usually outgrow them by the time they are five. It is not dependant on how high the temp gets but by how fast it gets there. By the time her daughter was 3, she could actually tell her mom it was coming . . . actually, she would say in a moaning voice "Mommy, medicine", then the mom would immediately give her tylenol and strip her down and use cool wash cloths. Of course they had no idea if they actually prevented another seizure, but the believed they did. Hopefully, it's nothing more serious than that . . . but knowing what they are and knowing that they will outgrow them doesn't make them any less scary.

Hopefully, you will all have answers soon!!

Hugs and Take Care,

buffettbride Enthusiast
buffettbride
Posted

Awww. Poor thing. :( I hope she's on to feeling better soon.

Guhlia Rising Star
Guhlia
Posted

Any updates, Amanda?

little d Enthusiast
little d
Posted

Amanda I hope everything is going ok with your niece.

A month ago one of my nurses that I work with she had her grandson in the back seat of her car taking him to the store to get some medicine for his cold and with the car being hot from the sun it was a 100 plus day outside so the car was even hotter, when they got back into the car his lowgrade fever spiked really fast that he had started having febrile seizure, she at that moment looked in her rear view mirror say that he was blue and having a seizure that luckily she was still in the parking lot of the store. She got him out of the car and stopped cars passing by her by standing infront of the cars while giving rescue breaths and telling the ladies who stopped to call 911, her daughter here at work and everybody else. Thank goodness it was her and not the other grandmother because it may not have been as pretty. It turns out that he had a double ear infection in both ears, the ER docs told her that he was lucky that she had enough sense to get him out of the car like she did.

Amanda my daughter and I will keep your niece in our prayers

donna

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
Any updates, Amanda?

No word yet, she is home again and seems to be herself again, they keep saying infection...

SunnyDyRain Enthusiast
SunnyDyRain
Posted

Hope things continue to be ok. Keep us posted!

*hugs*

lmvrbaby Newbie
lmvrbaby
Posted

Hi, sorry to hear about your neice. My oldest son had what they call febrile seizures. He was 13 months old when they started and lasted until about age 3. He was put on phenobarbitol. He had to take this medicaine 2 to 3 times a day every day. Usually tylenol doesnt help except bring the fever down. The phenobarbitol would help aid with the seizure. When he would even get a temp just below 100 he would start with a seizure. It may very well be infection related but I would also try to get a second opinion. In my sons case, as I found out later, I had the same thing at approximately the same age my son was. I had no clue and was trying to get a history on his father as he was not in the picture.

So good luck and see if they can get a second opinion just to be sure. Babies being sick is no fun. I do hope they find out what is wrong and can help her

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
Hi, sorry to hear about your neice. My oldest son had what they call febrile seizures. He was 13 months old when they started and lasted until about age 3. He was put on phenobarbitol. He had to take this medicaine 2 to 3 times a day every day. Usually tylenol doesnt help except bring the fever down. The phenobarbitol would help aid with the seizure. When he would even get a temp just below 100 he would start with a seizure. It may very well be infection related but I would also try to get a second opinion. In my sons case, as I found out later, I had the same thing at approximately the same age my son was. I had no clue and was trying to get a history on his father as he was not in the picture.

So good luck and see if they can get a second opinion just to be sure. Babies being sick is no fun. I do hope they find out what is wrong and can help her

She followed up with the Ped dr this morning, who is saying it is a viral infection. So we are keeping our fingers crossed that the meds will kick it and she will be her smiling self again.

BTW. I love your avatar!

Thanks Everyone for the kind words :) We all appreciate it.

2kids4me Contributor
2kids4me
Posted

I will keep your niece in my prayers. Never any fun to have a sick child ...esp when they get seizures from fever. Kathryn had them when she was little - with a temperature spike.

Actually Kathyrn had a seizure when she was 13 and needed an appendectomy - she went from 102 to 104.5 in a matter of 30 minutes...luckily we were in emerg and they got an IV into her and they cooled her off a bit.

Even though intellectually I knew it was febrile seizure and due to a sudden rise in her temperature...it is frightening! It is all the more scary when a baby or small child has them - becasue they are little and so helpless.

Keep us updated...

Sandy

PS - make sure her mom is insistent about second opinion if the fever stays and doesnt go back to normal. Kawasaki disease is characterized by fever that is unresponsive to tylenol or ibuprofen and persists for 5 - 10 days, accompanied by rashes and lethargy (out of proportion to fever), as well as some other signs. Kathryn had it and was not diagnosed til 20 days after the initial fever....they can do a lot if they catch it early.

Guhlia Rising Star
Guhlia
Posted

Amanda, how's the little sweetheart doing by now?

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

actually very well, no fevers, smiling and playful again. Viral Infection was the final outcome. She checked out fine with her Ped Md as well. I'm glad :) She is such a little peanut. Thats her nickname.

DingoGirl Enthusiast
DingoGirl
Posted
actually very well, no fevers, smiling and playful again. Viral Infection was the final outcome. She checked out fine with her Ped Md as well. I'm glad :) She is such a little peanut. Thats her nickname.

:o I just saw this! How did I miss it????

SO SO glad the little peanut is doing better. :) Let us pray is stays this way! Keep us updated.

  • 2 weeks later...
blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

So this weekend Silvia cut her first tooth, so when she had another fever and some D my mom assured Tammy that sometimes when they cut teeth they do not feel as well. (no painful cutting of teeth though :)) SO today the seziures started again and the baby was taken to the ER. In the ER she stopped breathing. They did a lot of tests and she was diagnosed with aferbile seziures.

They also did a urine test and her WBC is high which is indicating that she is fighting an infection. Tomorrow she is having an EEg to see what if anything else could cause the seziures.

Just a little update for you guys....not exactly good news....:(

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I only just saw this thread--I'm so sorry! Sending prayers and good thoughts Silvia's way and yours, too, Amanda! Please keep us posted.

When I was looking up Noah's encephalitis, I saw several links to "vaccine-induced encephalitis." Given her history, I would delay all vaccines until she is much, much older.

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
I only just saw this thread--I'm so sorry! Sending prayers and good thoughts Silvia's way and yours, too, Amanda! Please keep us posted.

When I was looking up Noah's encephalitis, I saw several links to "vaccine-induced encephalitis." Given her history, I would delay all vaccines until she is much, much older.

Thanks for the heads up, I will pass along that info. I know my sister is very scared right now.

debmidge Rising Star
debmidge
Posted

Great news she's Ok and now just getting normal baby things like new teeth!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

      @Jmartes71, Sorry you've been feeling so poorly. Are you taking any medication to treat the SIBO? Are you taking any Benfotiamine? Benfotiamine will help get control of the SIBO. Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks? Carbon Monoxide poisoning...
    2. knitty kitty
      - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States. In European countries, different cooking methods and longer fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat. Gluten content can...
    3. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound...
    4. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals. Dietary changes (low carb/paleo) may be beneficial for you. Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet? It's harder to get all the vitamins needed from a gluten free diet. Gluten containing products are...
    5. Caligirl57
      - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant. I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748
    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      New issue

      By knitty kitty · Posted

      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      Blood Test for Celiac wheat type matters?

      By knitty kitty · Posted

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      Severe severe mouth pain

      By trents · Posted

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      Severe severe mouth pain

      By Caligirl57 · Posted

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.