Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Send Good Thoughts For My Little Niece

blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular
blueeyedmanda
Posted

On Friday night, my 5 month old niece started to feel sick and had a slight fever. All of a sudden the fever spiked and she had a seizure. They sent her home from the ER and gave her an antibiotic and said it was an infection....today she was doing well and then out of no where another seizure and once again a tmep spike.

She is a tiny baby too. So we are really worried, plus it is my sisters first. They are back at the hospital and I am waiting on news.

Please keep them in your thoughts.

Amanda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Oh no, Amanda, that's horrible! I'm sure everything will be okay, but its always so scary when a new baby is sick, especially when they're THAT sick. Hang in there and I'm sure time will work its magic and she'll be back to normal in no time. I'm glad they got her to the hospital right away. I'm sure she's in good hands.

imsohungry Collaborator
imsohungry
Posted

Oh Amanda,

(((Hugs))) I'm so sorry to hear this. I know this must be so difficult for everyone in your family. I will definitely keep you and your loved ones in my prayers! Please keep us posted on how your little niece is doing.

Peace and blessings to your family. -Julie

confused Community Regular
confused
Posted

I am so sorry, i will for sure keep her in my thoughts. I hope they keep her overnight. Please keep us updated on her. She is too little to be going threw this, poor little thing.

paula

Canadian Karen Community Regular
Canadian Karen
Posted

Sending prayers her way!

Friends of mine had a baby the same time we had Eileen (who is now 14). Well, for the first two years, their girl Tori, used to spike fevers very quickly and have seizures. She outgrew them by the time she was 2. It was really scary for the parents though.....

Hugs

Karen

Cheri A Contributor
Cheri A
Posted

Oh no! :( Prayers for little Sylvia and your family!!

jerseyangel Proficient
jerseyangel
Posted

Oh Amanda,

I'm just seeing this--I will keep your little niece in my prayers. I hope that by now she is doing much better. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Darn210 Enthusiast
Darn210
Posted

Amanda,

Good Luck and Prayers to your family!!!

My good friends daughter had febrile seizures. Kids usually outgrow them by the time they are five. It is not dependant on how high the temp gets but by how fast it gets there. By the time her daughter was 3, she could actually tell her mom it was coming . . . actually, she would say in a moaning voice "Mommy, medicine", then the mom would immediately give her tylenol and strip her down and use cool wash cloths. Of course they had no idea if they actually prevented another seizure, but the believed they did. Hopefully, it's nothing more serious than that . . . but knowing what they are and knowing that they will outgrow them doesn't make them any less scary.

Hopefully, you will all have answers soon!!

Hugs and Take Care,

buffettbride Enthusiast
buffettbride
Posted

Awww. Poor thing. :( I hope she's on to feeling better soon.

Guhlia Rising Star
Guhlia
Posted

Any updates, Amanda?

little d Enthusiast
little d
Posted

Amanda I hope everything is going ok with your niece.

A month ago one of my nurses that I work with she had her grandson in the back seat of her car taking him to the store to get some medicine for his cold and with the car being hot from the sun it was a 100 plus day outside so the car was even hotter, when they got back into the car his lowgrade fever spiked really fast that he had started having febrile seizure, she at that moment looked in her rear view mirror say that he was blue and having a seizure that luckily she was still in the parking lot of the store. She got him out of the car and stopped cars passing by her by standing infront of the cars while giving rescue breaths and telling the ladies who stopped to call 911, her daughter here at work and everybody else. Thank goodness it was her and not the other grandmother because it may not have been as pretty. It turns out that he had a double ear infection in both ears, the ER docs told her that he was lucky that she had enough sense to get him out of the car like she did.

Amanda my daughter and I will keep your niece in our prayers

donna

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
Any updates, Amanda?

No word yet, she is home again and seems to be herself again, they keep saying infection...

SunnyDyRain Enthusiast
SunnyDyRain
Posted

Hope things continue to be ok. Keep us posted!

*hugs*

lmvrbaby Newbie
lmvrbaby
Posted

Hi, sorry to hear about your neice. My oldest son had what they call febrile seizures. He was 13 months old when they started and lasted until about age 3. He was put on phenobarbitol. He had to take this medicaine 2 to 3 times a day every day. Usually tylenol doesnt help except bring the fever down. The phenobarbitol would help aid with the seizure. When he would even get a temp just below 100 he would start with a seizure. It may very well be infection related but I would also try to get a second opinion. In my sons case, as I found out later, I had the same thing at approximately the same age my son was. I had no clue and was trying to get a history on his father as he was not in the picture.

So good luck and see if they can get a second opinion just to be sure. Babies being sick is no fun. I do hope they find out what is wrong and can help her

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
Hi, sorry to hear about your neice. My oldest son had what they call febrile seizures. He was 13 months old when they started and lasted until about age 3. He was put on phenobarbitol. He had to take this medicaine 2 to 3 times a day every day. Usually tylenol doesnt help except bring the fever down. The phenobarbitol would help aid with the seizure. When he would even get a temp just below 100 he would start with a seizure. It may very well be infection related but I would also try to get a second opinion. In my sons case, as I found out later, I had the same thing at approximately the same age my son was. I had no clue and was trying to get a history on his father as he was not in the picture.

So good luck and see if they can get a second opinion just to be sure. Babies being sick is no fun. I do hope they find out what is wrong and can help her

She followed up with the Ped dr this morning, who is saying it is a viral infection. So we are keeping our fingers crossed that the meds will kick it and she will be her smiling self again.

BTW. I love your avatar!

Thanks Everyone for the kind words :) We all appreciate it.

2kids4me Contributor
2kids4me
Posted

I will keep your niece in my prayers. Never any fun to have a sick child ...esp when they get seizures from fever. Kathryn had them when she was little - with a temperature spike.

Actually Kathyrn had a seizure when she was 13 and needed an appendectomy - she went from 102 to 104.5 in a matter of 30 minutes...luckily we were in emerg and they got an IV into her and they cooled her off a bit.

Even though intellectually I knew it was febrile seizure and due to a sudden rise in her temperature...it is frightening! It is all the more scary when a baby or small child has them - becasue they are little and so helpless.

Keep us updated...

Sandy

PS - make sure her mom is insistent about second opinion if the fever stays and doesnt go back to normal. Kawasaki disease is characterized by fever that is unresponsive to tylenol or ibuprofen and persists for 5 - 10 days, accompanied by rashes and lethargy (out of proportion to fever), as well as some other signs. Kathryn had it and was not diagnosed til 20 days after the initial fever....they can do a lot if they catch it early.

Guhlia Rising Star
Guhlia
Posted

Amanda, how's the little sweetheart doing by now?

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

actually very well, no fevers, smiling and playful again. Viral Infection was the final outcome. She checked out fine with her Ped Md as well. I'm glad :) She is such a little peanut. Thats her nickname.

DingoGirl Enthusiast
DingoGirl
Posted
actually very well, no fevers, smiling and playful again. Viral Infection was the final outcome. She checked out fine with her Ped Md as well. I'm glad :) She is such a little peanut. Thats her nickname.

:o I just saw this! How did I miss it????

SO SO glad the little peanut is doing better. :) Let us pray is stays this way! Keep us updated.

  • 2 weeks later...
blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

So this weekend Silvia cut her first tooth, so when she had another fever and some D my mom assured Tammy that sometimes when they cut teeth they do not feel as well. (no painful cutting of teeth though :)) SO today the seziures started again and the baby was taken to the ER. In the ER she stopped breathing. They did a lot of tests and she was diagnosed with aferbile seziures.

They also did a urine test and her WBC is high which is indicating that she is fighting an infection. Tomorrow she is having an EEg to see what if anything else could cause the seziures.

Just a little update for you guys....not exactly good news....:(

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I only just saw this thread--I'm so sorry! Sending prayers and good thoughts Silvia's way and yours, too, Amanda! Please keep us posted.

When I was looking up Noah's encephalitis, I saw several links to "vaccine-induced encephalitis." Given her history, I would delay all vaccines until she is much, much older.

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
I only just saw this thread--I'm so sorry! Sending prayers and good thoughts Silvia's way and yours, too, Amanda! Please keep us posted.

When I was looking up Noah's encephalitis, I saw several links to "vaccine-induced encephalitis." Given her history, I would delay all vaccines until she is much, much older.

Thanks for the heads up, I will pass along that info. I know my sister is very scared right now.

debmidge Rising Star
debmidge
Posted

Great news she's Ok and now just getting normal baby things like new teeth!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.