Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Members In Need.....ongoing Support Thread

AndreaB

By AndreaB
in Introduce Yourself / Share Stuff

Recommended Posts

AndreaB Contributor
AndreaB
Posted

This thread is designed to be a place where those that need prayers, good thoughts, vibes, energy for situations they need support for to come.

A centralized thread will help keep those members needs in one place for others to see.

For those who subscribe to this thread......if it's not active at times, please make sure to re-add it to your subscriptions after 30 days. That way no one will be left without the support they need.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Thanks Andrea :)

nutralady2001 Newbie
nutralady2001
Posted

Thank you this is an excellent idea xx

Judyin Philly Enthusiast
Judyin Philly
Posted

thanks Andrea

Great idea. Is this a new forum topic so we can go there to ck or just a thread?

judy

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Thank you, Andrea!!

blueeyedmanda Community Regular
blueeyedmanda
Posted

Thanks Andrea :):)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

So here is my first "in need" post on this thread:

My son's friend Noah, age 8 1/2, is STILL in terrible trouble.

He has been in a medically induced coma since Labor Day because of encephalitis-caused seizures. The latest cat scans show extensive brain damage. They are still unable to bring him out of the coma without further seizures.

I am not sure what to ask for here--maybe visualizing his brain tissue recovering against all odds? Seizures ending? His opening his eyes, smiling, and hugging his parents?

Prayers?

Our family--and our whole community--is heartbroken. And that's gotta be nothing compared to what his family is going through.

Thanks, everybody.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted
  • Author

Judy,

It's a thread devoted to those in need of support.

Alison,

I'm sorry to hear about Noah still not doing well. I'll let my family know about him too.

Judyin Philly Enthusiast
Judyin Philly
Posted

Alison.....Noah has been in my nightly prayers since I learned about him and his family.

They will continue as for those for you....who cared enough to bring them to our attention.

judy

Cheri A Contributor
Cheri A
Posted

I was wondering how Noah was doing... I'm :( to read your post. He and his family, the medical staff, and your family continue to be in my prayers also.

Canadian Karen Community Regular
Canadian Karen
Posted

Allison, I too was wondering about Noah. Sad to hear things have not taken a turn for the better....

Continuing to pray....

Hugs

Karen

Ursa Major Collaborator
Ursa Major
Posted

Alison, I will pray for Noah right now.

I could sure use prayer. Things are deteriorating here at home, it is getting unbearable for Susie and me.

Her vice principal in charge of her at school is a complete jerk, and her and my husband are getting to be great buddies, which is very upsetting to Susie and me. They seem to be doing everything they can to make life miserable for Susie, who doesn't deserve that, she is a sweet kid.

I am glad that she is going to move to live with her older sister and her family in February (our second-oldest, ten years older than Susie), for her sake. But her being gone will make things harder for me.

Anyway, I won't go into more detail than that. But I am at the end of my rope.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Fiddle faddle- Noah and his family are in my prayers, I hope things turn around for him soon.

Ursa- Im so sorry you are having family problems, I will be praying for you also and your daughter Susie.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Alison, I will pray for Noah right now.

I could sure use prayer. Things are deteriorating here at home, it is getting unbearable for Susie and me.

Her vice principal in charge of her at school is a complete jerk, and her and my husband are getting to be great buddies, which is very upsetting to Susie and me. They seem to be doing everything they can to make life miserable for Susie, who doesn't deserve that, she is a sweet kid.

I am glad that she is going to move to live with her older sister and her family in February (our second-oldest, ten years older than Susie), for her sake. But her being gone will make things harder for me.

Anyway, I won't go into more detail than that. But I am at the end of my rope.

Sorry things are so frustrating, Ursa.

I don't suppose it would help if Susie were to smile and pretend to agree with your husband and the vice principal? Just until February? Sort of as a survival thing...

Anyway, prayers sent!

jerseyangel Proficient
jerseyangel
Posted

Alison,

I will keep Noah and his family in my prayers. :( We need to keep that positive energy flowing his way.

Ursa,

Gosh, I'm so sorry about you and Susie. You are in my thoughts, too :)

confused Community Regular
confused
Posted

I will of course pray for noah, i feel so sad for everyone involved. Please keep us posted on him and the whole family.

Ursa, im so sorry things are that bad. Is there a way you can just leave your hubby and you and susie go live with your oldest dtr.

paula

confused Community Regular
confused
Posted

I am also in need for thoughts for 2 reasons.

1. that this family can come into agreement on mnay issues and that i have the strngbth to keep supporting my husband, this week has been very difficult on us both.

2. my uncle(the one that had cancer a few months back) got bit by an brown recluse, he had it drained but it gbot p%$#@# again and posion puss was coming out of his ears. They are doing an mri on him today, they dotn feel they can operate cause the poison has spread to far. I am so worried for him.

paula

Judyin Philly Enthusiast
Judyin Philly
Posted

Allison, Paula, Ursa.........such saddness.

Your all in my prayers.

judy

nutralady2001 Newbie
nutralady2001
Posted
Allison, Paula, Ursa.........such saddness.

Your all in my prayers.

judy

You are all in my prayers as well xx :wub:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.