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Extreme Pain And Bizzare Symptoms!

num1habsfan

By num1habsfan
in Coping with Celiac Disease

Recommended Posts

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I haven't eaten anything out of the ordinary, that's for sure. My diet mainly consists of breads and pastas.

~ Lisa ~

I'm assuming you mean gluten-free breads and pastas??

That would give ME terrible tummy pains! Now that my intestines have healed, I can eat occasional gluten-free bread and pasta, but not a lot, or else it feels like I've swallowed a brick, which then seems to turn into glue inside me.

Is it possible that, in addition to likely gall bladder problems, your diet is screwing up your body? I don't mean to be pointing fingers of blame at you, I'm sure you just didn't know better, but a diet of gluten-free bread and pasta is nearly as bad for you as a diet of gluteny bread and pasta! THe whole point is that all those starches turn to glue inside your body, and you need fruits and vegetables. I know you wrote in your sig that you react to most vegetables and that is certainly possible, but the reaction could also have been from an unhealed gut.

You might want to PM Ursa Major, who has successfully dealt with an ENORMOUS number of additional food intolerances, and find out what worked for her. I remember reading that she was able to tolerate some specific veggies if they were cooked enough.

Are you able to have brown rice? That at least has some fiber in it, though it seems to me that I read that brown rice pasta, for some reason, does not have nearly as much as plain brown rice.

Please let us know how you are doing!!!!

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  • Replies 93
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2kids4me Contributor
2kids4me
Posted
Oh gees, that would be the last thing I need. I wish I could just phone home and ask the doctor myself what to do!!! Because if I went to ER here it may be like last time that I don't get out til tomorrow and don't get to eat or drink anything and can't take my meds. Think that would be worse.....do these extreme random issues EVER stop happening? Man i hate being unhealthy.

If I go to a doc I know the first thing they'll accuse of and test for: being pregnant :angry:

~ Lisa ~

White stool usually indicates a liver /gallbladder problem as stated in prior post.

Dont get so upset about them wanting to do pregnancy test. Dont receive it as an accusation! Do you know how many young women come to ER saying - I can't possibly be pregnant.. but they are, and have suffered an ectopic pregnancy that is bleeding or perhaps rutured. This is medical emergency that the woman will die if not diagnosed.

They run to test to rule out a pregnancy because that is good medicine...not becasue they think you are pregnant or lying about anything.

I suffered severe abdominal pain a couple of years ago - turned out to be a ruptiured cyst on my ovary...they still did a pregnancy test [and I have had tubal ligation done].

Sandy

Now get that white poop checked out...

num1habsfan Rising Star
num1habsfan
Posted
  • Author

OK guys, i'm definitely NOT feeling any better, in fact worse here, so I'm going to the office now in a few minutes.....this could be an interesting day. Send me lots of luck....

~ Lisa ~

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Luck, good vibes, and prayers sent your way!!!!!!

ravenwoodglass Mentor
ravenwoodglass
Posted
Luck, good vibes, and prayers sent your way!!!!!!

Ditto Please let us know how your doing when you can.

jerseyangel Proficient
jerseyangel
Posted

Ack! I'm just seeing this now--hope it went ok and I'll be waiting to hear how you did.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Finally home, got out of hospital 2:30 am....to exhausted, gonna have some tea and food then sleep. I'll post details tomorrow. All i'll say for now is the only relief I got is some tylenol and am still clueless to what the problem is. *cries*

~ Lisa ~

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ravenwoodglass Mentor
ravenwoodglass
Posted

(((((((HUGS))))))))

I hope they figure this out soon. They hopefully at least did some blood work.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Im sorry! Did they do an u/s on you?

jerseyangel Proficient
jerseyangel
Posted

Oh Lisa--I'm sorry :(

Offthegrid Explorer
Offthegrid
Posted

How awful! I'm thinking about you ...

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Here's the details:

1:30pm got to walk-in clinic. Only had to wait 30 mins to get in to see a doc. He felt my stomach and when he pressed on the side around gallbladder I said "that really hurts". He said I definitely am tender on the gallbladder. He then sent me to the lab which is in the same building for bloodwork and to give a urine sample. He said wait there for results. I came back to his office and he wanted to do an ECG on me because of the chest pains I talked about. Went back to his office and he said he's not quite sure what it is but to go to ER. Apparently something showed up in the urine. He asked me which hospital I live the closest to.

This is where the day goes from bad to worse: He called there to ask for a specific doc who could see me immediately because he didn't want me waiting, since he wanted more tests done and to see them ASAP. He gave me a copy of the bloodwork/urine samples and put it in an envelope with the docs name. WELL they said I couldn't. I sat there for 2 1/2 hours then told them AGAIN I'm supposed to see that certain guy and finally I got the answer to why I haven't been called in yet: they said I can't see anyone specifically because they are just a general doc and I have to wait just as everyone else. Next time I go home to Canora I'm going to the gov't office and reporting this. If I had things arranged to see someone IMMEDIATELY that means taking it seriously. Now I don

JNBunnie1 Community Regular
JNBunnie1
Posted

I think you should inform the walk-in clinic doctor of how you were treated at the hospital and also, make him tell you what in your urinalysis made him send you to the ER in the firstplace. What tests do they have at the ER that the walk-in clinic doc didn't have?

num1habsfan Rising Star
num1habsfan
Posted
  • Author
I think you should inform the walk-in clinic doctor of how you were treated at the hospital and also, make him tell you what in your urinalysis made him send you to the ER in the firstplace. What tests do they have at the ER that the walk-in clinic doc didn't have?

Yeah I'll tell him when I go take back a stool sample. He wanted me to have an ultrasound...and I was supposed to be put on IV too. It's what he told that guy I was supposed to see..

~ Lisa ~

Darn210 Enthusiast
Darn210
Posted

Yep, I would contact the walk-in doc. Maybe he can get ahold of your x-rays and bloodwork that were done yesterday and interpret them . . . he had something in mind when he sent you.

I'm sorry you didn't get your answers. I hope you will get them soon and get some relief!!!

Ridgewalker Contributor
Ridgewalker
Posted

This is where the day goes from bad to worse: He called there to ask for a specific doc who could see me immediately because he didn't want me waiting, since he wanted more tests done and to see them ASAP. He gave me a copy of the bloodwork/urine samples and put it in an envelope with the docs name. WELL they said I couldn't. I sat there for 2 1/2 hours then told them AGAIN I'm supposed to see that certain guy and finally I got the answer to why I haven't been called in yet: they said I can't see anyone specifically because they are just a general doc and I have to wait just as everyone else. Next time I go home to Canora I'm going to the gov't office and reporting this. If I had things arranged to see someone IMMEDIATELY that means taking it seriously. Now I don

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

That is crazy that they didnt do an u/s on you! Xray is not going to show if your gallbladder is acting up. I would call the walk in doc and tell them how you were treated and if they cannot get the testing done make an appointment with your primary dr to thoroughly get it checked out. I never got anywhere with the ER either.

Some insurances are a pain in the arse about gallbladder removal. If its your gallbladder you might need tests to show how much functioning you have left in it. Some insurances require it to be below a certain percent of function before they will take it out which is what I think Ridgewalker is talking about. I was very very lucky that my insurance didnt require it, even the nurse at the office was shocked. If it is your gallbladder you need to get these tests underway and set a baseline for function levels if they make you wait. Gluten causes gallbladder problems too so it might be damage throughout the years.

Please pursue this and dont let this setback stop you.

Phyllis28 Apprentice
Phyllis28
Posted

Lisa,

Definitely make sure the Dr. explains your test results. According to my doctor when the gallbladder is "sick" the liver and pancreatic enzymes can be elevated. That is why they suspected gallstones with me. I found some relief from a very low fat diet and using a heating pad where the pain was until I was able to have the gallbladder removed.

Also, if you are not feeling well enough to fight your way through the health care bueracracy (sp??) you might want to find someone (friend, teacher, school staff ect...) who can assist you, the kind of person who won't take "No" for an answer. It is tough enough just being sick.

Hope you get better very soon.

elye Community Regular
elye
Posted

(((((((HUGS)))))))))))))))))), Lisa!

I know you're Canadian, so you don't need to worry about insurance coverage, but this is a perfect example of how "univeral" health care just doesn't cut it anymore!

Keep fightin' like the amazing Roughrider fan I know you are! :):)

newceliac Enthusiast
newceliac
Posted

Some bloodwork and tests don't detect a gallbladder problem if you don't have gallstones.

Ask the doctors to do an ejection fraction test on your gallbladder. I had my gallbladder removed several years ago and the problem showed up on an ejection fraction. This test measures the pressure and frequency of bile injecting from through your gallbladder. If it is too low, it indicates a problem.

I did not have gallstones but when the removed the gallbladder, the lining was thick and velvety green.

Gallbladder problems can cause intense pain.

Hope you get to feeling better.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Yeah once I get my stool sample I'll ask to see that same guy at the walk-in. I realized an easier way to file my complaint -- get that phone # for the Regina health region. Would be better than filing the complaint locally..

The doc in the walk-in is the one who said I was supposed to be on IV and get an ultra-sound so I hope there's a way I can get one of these done.

I forgot to mention that the doc at ER gave me the phone # to find a family doctor here in the city, so once I get back to having cell minutes in a few days I'll give it a call and find one.

Thanks everyone for your hugs and supports. I will continue to need you for the next few days...

~ Lisa ~

ravenwoodglass Mentor
ravenwoodglass
Posted

We are all here for you to the extent that we can be. It sounds like a real nightmare experience. I hope your pain is relieved soon. It does sound like it could be gallbladder or liver problems and the way you were treated was terrible. I would try to use a payphone or a freinds phone to get ahold of a doctor rather than waiting till I had minutes. If you can call without waiting please do so.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Oh gees. Now i have my time of the month AGAIN even tho it just finished about 2 weeks ago. So now the stool sample will have to wait til its over, meaning so will my visit with the doctor have to wait :(

~ Lisa ~

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

If you have the name of the doc at the walk-in clinic, maybe you can send him a registered letter? Tell him everything that has happened since you left his office, and repeat what his instructions (IV and unltrasound) were and the fact that those things never happened. Send a registered copy to the hopsital where the ER was as well and keep a copy for yourself.

The fact that the letter is registered mail might motivate SOMEONE to do something for you. Sometimes just documenting things is enough to scare people into thinking a lawsuit is coming, and then they scramble to cover their tushes.

You have had such LOUSY medical care for so long. From now on, I suggest you keep copies of absolutely EVERYTHING. IF the walk-in clinic doc gives you a letter with recommendation for ultrasound and IV, make a copy of it or ask the receptionist to make a copy for your records.

Hope you feel better soon!

num1habsfan Rising Star
num1habsfan
Posted
  • Author
If you have the name of the doc at the walk-in clinic, maybe you can send him a registered letter? Tell him everything that has happened since you left his office, and repeat what his instructions (IV and unltrasound) were and the fact that those things never happened. Send a registered copy to the hopsital where the ER was as well and keep a copy for yourself.

The fact that the letter is registered mail might motivate SOMEONE to do something for you. Sometimes just documenting things is enough to scare people into thinking a lawsuit is coming, and then they scramble to cover their tushes.

You have had such LOUSY medical care for so long. From now on, I suggest you keep copies of absolutely EVERYTHING. IF the walk-in clinic doc gives you a letter with recommendation for ultrasound and IV, make a copy of it or ask the receptionist to make a copy for your records.

Hope you feel better soon!

I'm not quite sure of his name :huh: I remember his last name, but I don't know the address or whatever. I'll hopefully be going back soon...I'm still so cranky from this, more than you can probably imagine. Today again I broke out in tears just from not being able to handle pains jabbing me in two places...

~ Lisa ~

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