Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Origin Of Celiacs?


C'smum

Recommended Posts

SacGFGirl Explorer

I'm Polish and German and the only one in my family who has celiac, although my sister seems to be developing a gluten intolerance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 97
  • Created
  • Last Reply
Jenny (AZ via TX) Enthusiast

Wow, it looks like there's a little of everything here. I'm mostly French, then Spanish and a little Irish and Welsh(sp). My gastro asked me if I was Irish.

I reside in Ontario but grew up with my family in England.My family believed themselves to be true English.Recently we found out that we are of Irish decent through my fathers side the same side that has passed on Celiacs to me.There is some belief that Celiacs originate from Ireland.Whats your background?
  • 2 weeks later...
raen Apprentice

i am inclined to beleive celiac is dominantly european/"white" based on everything ive read to date.

i am only three things - my mom is cherokee and i got celiac from my dad who is a combo english-scottish.

i read somewhere that the first (assumed) celiacs were roman, though.

  • 2 weeks later...
Maryellen Newbie

I am of Irish, English and Scottish descent but I don't think it has to do with "nationality" per say. When I remember back to my childhood some of the elders from Europe knew that bread, cakes, cookies and gravies were not for "our type of people". My paternal grandmother was absolutely firm about it and I remember a pretty heated moment between my grandmother and my father one holiday about barring bakery cookies from the house. They always said that we should "stick to the old ways" and that our "mother lineage" had a particular style of cookery that kept us well. This was why so many of them wouldn't change from Cahtolicism because the explanation was that the Church had the only continuous written records internationally of births, deaths and marriages thereby tying one back to their original mother lineage. We were all supposed to stick to something called the "strict code of names" which ties this together. It really is quite fascinating to me and the more I research it the more it becomes understood that you could live in the NW of Ireland and be of the same mother tribe as someone in the Southern tip of Italy. My Dad's parents were from Ireland and Scotland, most were of a tribe called D'Anu. Every firstborn girl was named a derivation of Anna; Maryann, Oona, Enya and when they became the elder of the clan they put the "N" in front of the name, hence, the title "Nana" or "Nanny" in English. In Italy it would be Nona or Nonni, Anglo Norman is Nancy. Every first born son was supposed to be William but as years went on the names were jumbled around a bit. My mom's people were from England and Scotland and were Brigends and they have almost the same name sequencing. I later found out all Brigends are a direct descendant tribe of D'Anu. I believe now that many of them had Celiac in one form or another and consequently had horrible disease and suffering in their lives and ultimately died young.

MauriceReed Newbie
The first description of childhood and adult coeliac disease was written in the second half of the second century A.D. by a contemporary of the ancient Roman Physician, Galen. He is known as Aretaeus of Cappadocia and his writings which have survived to more recent times were edited and translated by Francis Adams and printed for the Sydenham Society in 1856. The original Greek Text of the sections on "The Coeliac Affection" suggests that Aretaeus may possibly have understood a remarkable amount about the coeliac condition.

So, the Romans were aware of this some 1,800 years ago which show that the condition is not as recent as some may think. Take a look at the following article which makes interesting reading:

Open Original Shared Link

samcarter Contributor

Heinz 57. :D

Seriously, all I know about my ancestry for sure is that my dad is 1/2 German, 1/4 Irish, 1/4 Hungarian. My mom's ancestry is pretty much a mystery, since her people were so busy making the farms produce something that they were too busy to write down where everybody came from. :huh: So I have no idea what my ancestry is on my maternal side.

mslee Apprentice

Wow!

Interesting!

I am also a German, Irish, Scottish, Welsh, Swedish, Choctaw, Black Foot Mutt!

I wonder if those of pure Native American (both North and South) blood have a better tolerance to nightshades? Or do they just make everyone feel cruddy?

oooh, yeah on second thought ... probably none of those left

....but in theory :huh: ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hawaiimama Apprentice

I am 1/4 Irish 1/4 English, 1/4 from the Channel Islands and 1/4 scottish.

My kids have half chinese thrown in for good mix of the breeding gene pool ;)

suett Newbie

Hi,

I am Norwegian and Kroacian, Scottish, and Italian

aorona Rookie

I am 1/2 swedish, from my mother's side (the side celiac came from), part german, & french from my father's side. The fair skin has nothing to do with gluten. I have an olive skin tone and my mom tan's pretty good too.

dogle Apprentice

Mother: Asturian ancestry (Northern Spain) and Portuguese ancestry. She is white, blue eyes and strawberry hair.

Father: Spain ancestry and Native American (Aztec). My father is browned-skinned with brown hair but his family is a mix of aztec apparience people and red-hair white people.

I have green-hazel eyes, fair skin and freckles all over my face, chest, back, arms. I was blonde as a kid but my hair now is brown.

angieInCA Apprentice

another mutt here. Mother's side- Lakota Sioux and Irish. Father's side - Northern Italian and Irish.

So, not only did I get a double wammy of Irish but I get to be Native American Indian lactose intollerent too :rolleyes:

Chrissyb Enthusiast

German, Polish and Irish. My kids are German, Polish, Irish and Spanish they have the Spanish look dark hair, eyes and skin where I am fair skin, blue green eyes and dark blonde hair. Nobody ever believes they are my kids. Works well when the misbehave :lol:

healthiernow Newbie

Irish/English/Mohegan/Swiss

I see a lot of Irish on here

nasalady Contributor

Sounds like the luck of the Irish to me! :lol:

My background is mostly Irish and English, but I'm 1/4 Austrian because of my maternal grandfather from Salzburg.

Blueberry Newbie

My mother's side is mostly Irish (they came over here on the ships in 1862 from Ireland) and some English on her mother's side. My father is Scottish through and through. I think I got more of the Irish side though... I have fair skin, hazel eyes, and the lightest hair out of all my family. The other thing, my mother is also celiac. We also think my brother and sister may have it, but refuse to acknowledge it. I think that other people are right in thinking their may be an Irish connection, since alot of poeple seem to have Irish ancestory...

land-turtle Newbie
I agree. I think it is no longer an issue with where your family is from. The fact of the matter is that our food suppliers are poisioning us! Too many hormones, too many fillers, too many additives etc... Our Government is allowing this to happen. (We should start a new post.) Let me ask everyone here a question (30 and older) When you were growing up did you kow anyone that had cancer? If you did wasn't it a BIG deal? How many people do you know that have it or have had it now? Big difference right? How many new diseases and ailments have you read about/heard about? It's our food and the toxic chemicals that we use everyday.The US is now poisioning other countries. I will say this to all of you that may say something negative to what I posted: I have only been gluten-free for 6 days. I was never worried about what I ate etc... although I did try to eat somewhat healthier foods. I was aware of some of the chemicals in my food, but I had no idea the affects that it had until this happened to me. The population isn't educated enough. I know that I wasn't. I just rolled with "the times." I figured I would probably die of a heart realted disease,but I just didn't GEt how bad all of this stuff was. I had never even heard of celiac disease even through my medical training. We now have tons of cancer, autism, thyroid diseases, ADHD, ADD, OCD, RLS, celiac disease, Chronic Fatigue (not spelled right lol) IBS, Addisons, Parkinsons, allergies, COPD, mad cow disease, avian flu, SARS, AIDS, HIV, Hepatitis through the roof (and a new addition to it every 5 years or so), drug addiction, seziures, depression, ulcers, diabetes is skyrocketing, we have CFS oh my goodness I could go on forever. The sad part is this: there is no cure for most of these. It is sad. Please educate people about what they are putting into their bodies and allowing their children to eat. It's scary. We have done this to ourselves unknowingly. I know that I also did it to my children unknowingly and that hurts me. I always bought what was cheap because of funds, but when I look back I could've done better. We ate out a lot. I could've bought healthier foods instead of eating out, and probably had money left over. I know I am devestated by celiac disease, and the affects it has had on my family. I am ranting in the wrong place, I'm sorry. :) My point is that no one is "safe" anymore. I'm sure at one time there was a link, but it would be impossible to track now due to US food CC.
land-turtle Newbie
I agree. I think it is no longer an issue with where your family is from. The fact of the matter is that our food suppliers are poisioning us! Too many hormones, too many fillers, too many additives etc... Our Government is allowing this to happen. (We should start a new post.) Let me ask everyone here a question (30 and older) When you were growing up did you kow anyone that had cancer? If you did wasn't it a BIG deal? How many people do you know that have it or have had it now? Big difference right? How many new diseases and ailments have you read about/heard about? It's our food and the toxic chemicals that we use everyday.The US is now poisioning other countries. I will say this to all of you that may say something negative to what I posted: I have only been gluten-free for 6 days. I was never worried about what I ate etc... although I did try to eat somewhat healthier foods. I was aware of some of the chemicals in my food, but I had no idea the affects that it had until this happened to me. The population isn't educated enough. I know that I wasn't. I just rolled with "the times." I figured I would probably die of a heart realted disease,but I just didn't GEt how bad all of this stuff was. I had never even heard of celiac disease even through my medical training. We now have tons of cancer, autism, thyroid diseases, ADHD, ADD, OCD, RLS, celiac disease, Chronic Fatigue (not spelled right lol) IBS, Addisons, Parkinsons, allergies, COPD, mad cow disease, avian flu, SARS, AIDS, HIV, Hepatitis through the roof (and a new addition to it every 5 years or so), drug addiction, seziures, depression, ulcers, diabetes is skyrocketing, we have CFS oh my goodness I could go on forever. The sad part is this: there is no cure for most of these. It is sad. Please educate people about what they are putting into their bodies and allowing their children to eat. It's scary. We have done this to ourselves unknowingly. I know that I also did it to my children unknowingly and that hurts me. I always bought what was cheap because of funds, but when I look back I could've done better. We ate out a lot. I could've bought healthier foods instead of eating out, and probably had money left over. I know I am devestated by celiac disease, and the affects it has had on my family. I am ranting in the wrong place, I'm sorry. :) My point is that no one is "safe" anymore. I'm sure at one time there was a link, but it would be impossible to track now due to US food CC.
slmprofesseur Apprentice

I am the true mutt:

I am african-american. I am unsure of my african ancestors, however, my great grand mother was the daughter of her slave owner. My mother has a Scottish last name and father has a Welsh last name. (both are african-american).

My husband has a Ukranian/German background.

I think I have more European blood than anyone wants to admit. Many relatives have had stomach cancer, diabetes, gout, etc. etc. I am the first to go Gluten-free.

As for the proof of this blood...

Our first son has blonde hair and light brown eyes! (No one thinks I am his mother!)

I can tolerate nightshades- no problem.

mftnchn Explorer

So interesting! Gene pool mixing just has increased with all the increased moving around in the world.

What I know is German, English, Norwegian, but nobody really knows what all is in the mix. My grandfather had the bright red hair...

I'm the only celiac I know of in the family but suspect many others; both parents have DQ2 because I have a double dose of it. Means all 5 of my siblings have at least one DQ2 gene and so do my two kids.

one more mile Contributor

My grandma advises me not shake a stick at anyone.

I have Irish, prussian, German, English, welsh, black, American Indian.

and enough "randy gals" that any thing is possible.

one more mile

mysty Newbie

im german/hungarian...blonde and blue eyes...both of my grandmothers died of complications related to the disease...and there are plenty of allergies in the family tree.

i married a scotsman...and my kids seem to be no better for that lol

all my children are intolerant to wheat in some way...and my nephew is allergic to peanuts and wheat and gluten...while his sister is not.

my husband isnt allergic to a thing ...but he does have diabetes and arthritis...so obviously some immune disfunction on his side that he doesnt feel inclined to go further into lol.

MollyBeth Contributor

Italian, Iraish and English!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748

    Heather8280
    Newest Member
    Heather8280
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.