Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update On My Sister

blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular
blueeyedmanda
Posted

Yesterday my sister went for a colonoscopy. As most of you know she has been sick for a year. So the last month or so she has had the "C", so I actually was thinking she was dealing with IBS. She has been under a lot of stress, with the job-she works for a temp agency now at UPS. She has been at this job since July. She was a fulltime employee and a full time student, she finished school in December and is looking for a job in her field.

So in the midst of everything with her finishing school the insurance would be ending. She talked to the insurance company who is allowing her to have insurance longer. Which is a blessing.

So back to the colonoscopy. They found two polyps and they are being biposied. She has also been referred for further testing, I believe a barium X-ray. I just wanted to update you guys all.

Thanks for all your support through this time.

Amanda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted

I have been wondering how she was and was going to ask u on many occassions but just kept thinking no news is good news.

I am so sorry she has to go threw this. I will keep her in my thoughts and prayers.

paula

Cheri A Contributor
Cheri A
Posted

((hugs)) and prayers for your sister, Amanda.

ptkds Community Regular
ptkds
Posted

I am sorry to hear about this.

Just to make you feel better, I had several polyps removed from my colon several years ago (I was only 24) and everything is fine with me, except my celiac! Some of them were precancerous, though. So I have to have a repeat colonoscopy every few years. Since then, there has not been one single polyp! I just figure that the polyps were from years of undiagnosed celiac.

Colon cancer is a very slow-progressing cancer. So if it is cancer (that is a big if), they have caught it in plenty of time and she will be just fine.

Also, having colon polyps will not cause constipation or diarrhea. They still have not found the answer, and she still needs to find out what is going on.

Keep us updated!

Guhlia Rising Star
Guhlia
Posted

Amanda, our prayers are with your sister. My mom also had polyps and they were benign. Still, I know how scary it can be to go through that whole process with a loved one.

I know you guys aren't blood related, but has she tried just going gluten free to see if it helps? I know the labs were negative, but... You never know.

jerseyangel Proficient
jerseyangel
Posted

Hi Amnda--

I'll continue to keep your sister in my prayers. :)

dlp252 Apprentice
dlp252
Posted

Adding my prayers and {{{hugs}}}!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

Thanks Everyone :)

Darn210 Enthusiast
Darn210
Posted

Amanda,

Hugs and Prayers for you and your sister. I know it's unsettling news, but thank goodness she didn't let this go and persued insurance coverage and got a colonoscopy.

Colon cancer is a very slow-progressing cancer. So if it is cancer (that is a big if), they have caught it in plenty of time and she will be just fine.

Also, having colon polyps will not cause constipation or diarrhea. They still have not found the answer, and she still needs to find out what is going on.

I couldn't agree with this more . . . stay on her to keep looking for answers!!

elye Community Regular
elye
Posted

Oh, Amanda....didn't know about your poor sister. Hugs to you both. I'm assuming she knows about the possibility of celiac, having you as a sister. Has she been tested at all? Has she tried going gluten-free?

Ridgewalker Contributor
Ridgewalker
Posted

(((Hugs!!!))) Amanda, I'll be thinking about you guys!

Green12 Enthusiast
Green12
Posted

Oh Amanda, you and your sister are definitely in my thoughts :)

DingoGirl Enthusiast
DingoGirl
Posted

{{{{{{{{hugs}}}}}}}}

Amanda - your sister is very young - it is highly unlikely the polyps are cancerous, although my wonderful GI told me that EVERY polyp turns into cancer, :o it takes decades, or even an entire lifetime. I had one removed (benign) in colonoscopy.

Great news about the insurance extension. :)

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
Oh, Amanda....didn't know about your poor sister. Hugs to you both. I'm assuming she knows about the possibility of celiac, having you as a sister. Has she been tested at all? Has she tried going gluten-free?

Acutally my sister has been tested and has come up negative. She has simplified her diet but no changes. Both of my sisters are adopted so there would be no genetic match on there.

She was very willing to try gluten-free but after a month with no changes she feels there is more.

Monday she is going for another test.

Judyin Philly Enthusiast
Judyin Philly
Posted

Gosh Amanda..........I've been wondering how she was

Thanks for the up date.

i'll sure keep you both in my prayers.

glad they are looking for reasons for her issues.

please keep posting.

{{{{{{{{{{{{{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
    4. trents
      - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes.
    5. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??

      @Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.