Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Night Terrors & Leg Pain

angie315

Recommended Posts

angie315 Apprentice
angie315
Posted

My daughter has only been gluten free for 2 months. Last night she took a bath (I used California baby body wash by regular shampoo). She was playing in the tub and putting water into her mouth and spitting it back out. About two hours after she was asleep she woke up screaming and didn't respond to my voice. She only woke up after she peed herself. It happened again later in the night and she then awoke a third time moaning that she was having "growing pains" in her legs. Is night terrors and muscle aches/pain a sight of ingesting gluten? She has never had the typical GI symptoms (no diarrhea) so I wasn't sure if this is how her body reacts to gluten now. Anybody has seen this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Aleshia Contributor
Aleshia
Posted
My daughter has only been gluten free for 2 months. Last night she took a bath (I used California baby body wash by regular shampoo). She was playing in the tub and putting water into her mouth and spitting it back out. About two hours after she was asleep she woke up screaming and didn't respond to my voice. She only woke up after she peed herself. It happened again later in the night and she then awoke a third time moaning that she was having "growing pains" in her legs. Is night terrors and muscle aches/pain a sight of ingesting gluten? She has never had the typical GI symptoms (no diarrhea) so I wasn't sure if this is how her body reacts to gluten now. Anybody has seen this?

I know that the leg pain definitely seems to be and when I searched on google for "night terror celiac" it came up with almost 80,000 links to do with that... I read a few and it does seem to be a symptom

debmom Newbie
debmom
Posted

My daughter had insomnia and restless leg syndrome until she went gluten free. She still has some problems occasionally, but not nearly what she had before the diet.

2kids4me Contributor
2kids4me
Posted

My son had leg pains and wet the bed almost every night til he went gluten free after we found out he was celiac. The bed wetting took about 6 weeks to resolve - it gradually got less and less til none at all. He was 9 (almost 10) when diagnosed.

The leg pains took about 3 months to disappear totally. They went from every night to about once a week to very couple of weeks before being gone altogther.

He gets leg pains if he gets cross contaminated.

My daughter used to have night terrors as well - they can be related to celiac but are also known as common issue with children under age 10.

Night terrors on the same night as leg pains - may just be the body responding to the pain (?) That's just my theory.

Ursa Major Collaborator
Ursa Major
Posted

It sounds like your daughter got glutened by whatever was in the bath water. There must have been gluten in the body wash!

Kaycee Collaborator
Kaycee
Posted

Just to say as a child I had night terrors. They were very scary, and I would wake the whole house screaming and then not remember what had upset me. Sheer terror. The last time I had a similar attack was when I was in my late teens, by then, they weren't very regular. I was a very nervous child and maybe just scared of my own shadow. I'm sorry but I can't say whether they were related to gluten or not. Hope this is not what your daughter has.

What I can say, is that many years later,and now glutenfree, when I get glutened I have pretty graphic dreams, some are terrifying others are just so graphic. So I think gluten does affect my sleep. But I never wake up petrified.

Cathy

ryebaby0 Enthusiast
ryebaby0
Posted

My oldest son (not the one with celiac) had night terrors several times a week for about 18 months when he was little (like 5-6y.o.). They are not uncommon in children, and aren' t a sign of anything in particular, usually. They almost always go away just as mysteriously as they arrive. They are more common in children who's parents had them, or were sleepwalkers (I was)

We found if we got to him when he first started one (which was generally about 1 hr. after he fell asleep) it would be a little shorter. Occasionally he would sleepwalk, too! It surely is freaky! He would have absolutely no recognition of us, and no memory in the morning of having done anything but slept soundly. Our pediatrician said to not try and wake him, just keep him from getting out of bed.

As everyone here will tell you , leg pains are often a celiac symptom. Whether she was glutenated or not is anybody's guess!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

The first thing that comes to mind is if there was any gluten residue in the tub. Especially on or under those rubber grippy non-slip things. I do know that muscle twitching can be from a nutrient deficiency, magnesium in particular. But in this case it just sounds like either a reaction to gluten or other offending substance.

jhow32000 Rookie
jhow32000
Posted

The California Baby is not the problem. She probably got contamination from something else. I have to say that I have been plagued by these leg pains for years and we always thought they were growing pains. Now everytime I eat something contaminated I get them almost immediately. I believe that night terrors are from dairy allergy or intolerance, which of course is common with celiac disease. I know that the lactase enzyme is the first to disappear from the damaged intestine. Perhaps you should cut out all dairy if you haven't already and check everything for a source of wheat or dairy. These things will happen throughout her life, I still get the stupid leg pains and they are a KILLER. Just retrace your steps to find the issue.

Lizz7711 Apprentice
Lizz7711
Posted

My daughter gets leg pains and occasionally wets the bed when glutened, or also I think from corn...still trying to track it to be sure. No night terrors though.

Liz

My daughter has only been gluten free for 2 months. Last night she took a bath (I used California baby body wash by regular shampoo). She was playing in the tub and putting water into her mouth and spitting it back out. About two hours after she was asleep she woke up screaming and didn't respond to my voice. She only woke up after she peed herself. It happened again later in the night and she then awoke a third time moaning that she was having "growing pains" in her legs. Is night terrors and muscle aches/pain a sight of ingesting gluten? She has never had the typical GI symptoms (no diarrhea) so I wasn't sure if this is how her body reacts to gluten now. Anybody has seen this?
CeliacMom2008 Enthusiast
CeliacMom2008
Posted

I'm so sorry you had to go through a night terror! I think every parent should be told about night terrors BEFORE they happen. The first time my son had one we were at my parents and it scared all of four of us adults tremendously. We had given him an asthma breathing treatment for the first time that night and we were all convinced it had done something to his brain. It was just awful! I still hate going through them, but at least now I know I don't need to call 9-1-1. The staring "through" you still turns my stomach when it happens though. For us, at least our son never has any recollection of them occuring.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,904
    • Most Online (within 30 mins)
      7,748
    AnneSN
    Newest Member
    AnneSN
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.