Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Reply....anyone At All Who Has An Answer!


lindelxox

Recommended Posts

lindelxox Newbie

I am 13 years of age and i'm a celiac/gluten intolerant and i get THE WORST cramps and THE WORST bloating and the other day, someone was rather horrible to me nd they came up to me and asked ''When's the baby due?" i hate it! :angry: does ANYONE have any solutions to beat the Nausea?and the cramps.....besides pain killers and Wheat packs (they are like hot water bottles only with wheat instead of with water)..AND i would be SOOOO greatful for ANY AT ALL responses...i dont care who's it from BUT if you are providing me with false hope i'll be not too happy!! :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Are you sure you're 100% gluten-free?

If you are 100% gluten-free, I would consider that you might have a candida/yeast problem. There are many threads here regarding candida. Basically, you would need to cut out sugar and simple carbs (white bread, white rice, white sugar) and take probiotics to rebuild intestinal flora.

Sweetfudge Community Regular

i'm sorry hon. people can be so mean. i used to get asked that a lot when i was first diagnosed. i agree with carla, in that you ought to take a look at what else it could be. i worked with my doctor, and was able to eliminate dairy, and am now in the process of avoiding soy. my bloating has gone down, but the cramps are still here, if not quite in full force. i hope you can find a solution ;)

lindelxox Newbie
i'm sorry hon. people can be so mean. i used to get asked that a lot when i was first diagnosed. i agree with carla, in that you ought to take a look at what else it could be. i worked with my doctor, and was able to eliminate dairy, and am now in the process of avoiding soy. my bloating has gone down, but the cramps are still here, if not quite in full force. i hope you can find a solution ;)

thanx honey!!

MELINE Enthusiast

Hello

sorry to read that you have nausea / bloating problems..

1)if you are completely gluten free I agree with the candida issue

2)if you are not, check your cosmetics and keep in mind that even the smallest trace of gluten can make you sick

3) my bloating was ALL because of lactose intolerance.

4) my nausea was ALL because of malabsorption. I used to eat HUGE amounts, lose weight, m body and my breath had the worse odour and my stool too, and it was because my villi could not properly help me digest the food. Also my hair kept falling.

Now everything is gone, but it took me 1 year. You didn't tell us when you started the diet. You must give yourself the time to get better.

One thing not to cure the nausea but just to make you feel better is camomile. It worked great for me.

Meline

mindwiped Rookie

Just me, I'd get rid of the wheat pack...it's WHEAT! Every time you jiggle it, it's shedding microscopic bits of gluten everywhere you lay it. It's in your microwave (I'm assuming that's how you heat it up), and all over your hands from touching it. You can make the same thing with rice in a sock, (or travel pillowcase, just no zipper) and then it can't gluten you.

ravenwoodglass Mentor
Just me, I'd get rid of the wheat pack...it's WHEAT! Every time you jiggle it, it's shedding microscopic bits of gluten everywhere you lay it. It's in your microwave (I'm assuming that's how you heat it up), and all over your hands from touching it. You can make the same thing with rice in a sock, (or travel pillowcase, just no zipper) and then it can't gluten you.

That was my first thought also, reading about that wheat pack sent shudders through me. That is not something you want to be using. In addition to making one of rice in some areas you can find buckwheat pillows and heating pads, those are safe as buckwheat is not actually a wheat. Buckwheat cereal, cream of buckwheat, is also very soothing and if you like cream of wheat you will like cream of buckwheat. It is a nice easily digested food for when you are getting over a glutening. Do check everything you are coming into contact with, not just food but your shampoos, toiletries, makeup, lotions even pet foods should be gluten-free to avoid crosscontamination issues. Also be aware that some companies post copious lists of 'gluten free' items, Frito Lay is one example, however the issue of cross contamination is very high. If you are new to the diet the best way to go is with fresh (or frozen single ingredient) foods. Fresh veggies, fruits, nuts, meats etc are all going to be naturally gluten free and will help you heal with less risk of a gluten accident. After you have been feeling good for at least 2 weeks then add in some other processed and more risky stuff. It is easier to tell how sensitive you are if you go super strict in the beginning.

Other kids can be really nasty, and some don't outgrow it in adulthood. One comforting thought to keep in mind is that celiac is very common. The NIH estimates that there are 3 million of us, at least in the US. At present only about 100,000 are diagnosed. Those kids that are teasing you may be walking in your shoes at some point.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Yes, ditch the "wheat packs". Fill a large sock with white rice and heat in the microwave. Works great!

ang1e0251 Contributor

I'm so sorry you are feeling sick. I wondered if your food is being cooked in containers with utensils that are also being used for food that does have gluten. Cross contamination is tough on the tummy & the rest of your family may not understand what a problem it is for you. You need your own cooking pots, utensils, food prep area, toaster and storage for your food.

The diet takes time to get right and we have all had set backs. Don't listen to people who are cruel and ignorant about others. Your beauty shines and we can all see it here. We will talk to you anytime you need us. We care!

Fiddle-Faddle Community Regular

You don't need to ditch the wheat pack if it's BUCKWHEAT (which most, but not all, of that sort of heating packs are). Buckwheat is gluten-free.

I agree with the candida issue possibility, but think that lactose intolerance or a dairy allergy is more likely, and I would rule that out first.

Rule it out by going dairy-free for a while (:(), then adding LACTOSE-FREE milk back in. If you react to it, then it's a DAIRY problem, not a lactose problem But if you don't react to it, you can probably manage dairy by using lactase pill(which are a replacement for the lactase you are supposed to be producing--read instructions carefully!).

happygirl Collaborator

You may want to talk to your parents about taking you to the doctor and having you evaluated to see if your Celiac antibodies (bloodwork) have dropped to normal limits. If they haven't, your body hasn't healed or is still getting gluten, and that may be the explanation for your symptoms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    2. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    3. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    4. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,001
    • Most Online (within 30 mins)
      7,748

    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.