Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Pa.


kimis

Recommended Posts

LadyCyclist87 Apprentice
Hi Ladycyclist87

Glad you love Pittsburgh. We are having a gluten-free evening on Feb 5 09 in Butler if you would like to come & join us. If you want more info please let me know. blessings

mamaw

That's awesome! What exactly is going on? Is it just a big community dinner that's entirely gluten-free? I just might be up for it... :-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 71
  • Created
  • Last Reply
mamaw Community Regular

Ladycyclist87

I sent you a personal message about the meeting.......

blessings

mamaw

  • 3 months later...
LadyBugLuv Rookie

Ok... I know this isn't the newest thread... but Hooray for fellow Pennsylvanians :)

I'm originally from RI,

but went to Duquesne out in Pittsburgh, PA, and now live in Lancaster County, PA :). We love it.

I work in Harrisburg, too.

exciting. :)

mamaw Community Regular

Hi Ladybugluv

welcome.

I live near Pittsburgh .Lancaster is a wonderful area with a great gluten-free group of people. I go to this area about once or twice a year for some R&R......while there we always journey to philly & NJ...... to do some gluten-free shopping.....

blessings

mamaw

JBaby Enthusiast
Any other Celiacs live in Pa? I live just outside of Philadelphia..

Pittsburgh

mamaw Community Regular

JBaby

Where are you in Pittsburgh? I'm the founder of a gluten-free group in the area.....

JBaby Enthusiast
JBaby

Where are you in Pittsburgh? I'm the founder of a gluten-free group in the area.....

Downtown area. How many of us are there?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jamie1763 Newbie

Not PA but 20 min outside philly in South Jersey :)

mamaw Community Regular

JBaby

I have over 100 registered but all is not celiac. We sample new products at each meeting & do a lot of mailorder for the best of the best. We are the only group in the tri-state area.... if you need any help let me know. I have been a gluten-free mentor for many years. I also test market for many gluten-free vendors/bakers.

estelita Rookie

I'm near Altoona. Anyone else?

mamaw Community Regular

I know a gentlemen from Mineral Point, Pa The home of Better Batter flour is in Belltown!

estelita Rookie
I know a gentlemen from Mineral Point, Pa The home of Better Batter flour is in Belltown!

Bellwood... I know. Yet ironically, I cannot find a support group near me!

Luvmycats Newbie

Hello,

I'm from Pittsburgh.

Diagnosed with celiac 6-07.

Diagnosed with collagenous colitis 3-09.

Mamaw--do you know of any social events, etc. held in the Pittsburgh area for celiacs?

Does anyone out there also have collagenous colitis? If so, can you relate your experience...how long you've had it...what medication you take...any info is greatly appreciated.

Thanks!

:D

  • 2 weeks later...
mamaw Community Regular

Luvmycats

Sorrry , I guess I missed this section when I was checking in!

Yes, we are the only active group here in Butler. I get people from the tri-state area.

We are having a gluten-free luncheon at Uno"s in Cranberry Twp on July 11,09 at 12:30 sharp. Uno's will have their new extended menu by then. ALso in Oct we will be having a gluten-free seminar in Cranberry Twp at the Marriott North.

I'll send you a pm with my phone number if you want to talk more.

blessings

mamaw

  • 1 month later...
Chuck8268 Rookie
Any other Celiacs live in Pa? I live just outside of Philadelphia..

South central Pa here,,,,,,,,,,how yu doing?

luvs2eat Collaborator

I live in the beautiful Ozark Mts. in Arkansas now, but lived for 30 years in the New Hope, PA, area in Bucks County... pretty up there!

I miss Giant and their awesome gluten-free selections, but find I can get almost anything gluten-free I need ordering thru Amazon, thank goodness... not a lot of gluten-free stuff here in AR.

Maggiano's in KOP has a gluten-free menu and the peeps there were SO nice about accommodating me! Try it!

Chuck8268 Rookie
I live in southeastern York County, PA.

beautiful Bedfford county here

  • 3 weeks later...
glutenfreegal Newbie

hi! I am from PA! right outside philly...Montgomery county!!

Chuck8268 Rookie
I'm near Altoona. Anyone else?

somerset/bedford here

  • 1 month later...
TownieHeather Newbie

State College here :) A non-student, but I'm 25 so I guess I'm still in that age range.

Tigercat17 Enthusiast
Luvmycats

Sorrry , I guess I missed this section when I was checking in!

Yes, we are the only active group here in Butler. I get people from the tri-state area.

We are having a gluten-free luncheon at Uno"s in Cranberry Twp on July 11,09 at 12:30 sharp. Uno's will have their new extended menu by then. ALso in Oct we will be having a gluten-free seminar in Cranberry Twp at the Marriott North.

I'll send you a pm with my phone number if you want to talk more.

blessings

mamaw

Hi Mamaw,

I'm very intested interested in your group. I live in very near to Pittsburgh. Could you send me some information? I've been diagnosed with celiac just five weeks ago & I'd love to meet other people who know a lot about this disease. It would be so nice to have someone to talk to that understand. :)

Thanks!

Harley0000 Rookie
Any other Celiacs live in Pa? I live just outside of Philadelphia..

Hey

I am from NY, a couple of hours from Phila. How long have you had Celiacs? I am very newly diagnosed....like last week. :(

Nancy

Harley0000 Rookie
Hi Mamaw,

I'm very intested interested in your group. I live in very near to Pittsburgh. Could you send me some information? I've been diagnosed with celiac just five weeks ago & I'd love to meet other people who know a lot about this disease. It would be so nice to have someone to talk to that understand. :)

Thanks!

Hello There!

I am from NY and was just recently diagnosed with Celiacs last week. There is SOO much info out there, but it is mind boggling. I also would like to chat with people who are going through the same thing. I am really struggling....

Nanc

mamaw Community Regular

Tigercat17

Would you like to join some of our group on Nov 8,09 at 3;30 for gluten-free dining ? You & yours are more than welcome.. I just need to know how many are coming so I can give a person count to the restaurant.

I mentor new people often..... We also buy gluten-free foods in bulk & its alot cheaper & also we get the best of the best.....

At present we can't meet monthly because of the remodeling going on at the church we use so we have been getting together with dining experiences... If you send me a pm with your regular e-mail I will give you my contact phone number but I don't publish it on here!

In the past at meetings we have done all kinds of fun things,gluten-free cooking demos, alot of sampling, updates on gluten-free foods, whats good whats not, mainstream gluten-free products, current events & much more. In 2 1/2 years we have never had a meeting where as gluten-free food samples were not shared by all to take home! We have a nice group of people all age groups from children to adults & seniors....

Harley0000

You are invited as well! Where in Ny are you? Also if you want help via the phone I will also help you . Just send me a pm for my contact number & you can reach me with your questions...or pm me with your questions.

I stay up with current info & use only reliable resources.

My pet peeve is people who spread info around & have nothing to back it back with! Hear-say is not the way to go. Misinformation is worse than no information.......

blessings

mamaw

  • 1 month later...
Lanie940 Newbie
Bucks County, here!

Lehigh County here

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.