Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Sick After Eating Gluten-free Noodles


cziegler

Recommended Posts

cziegler Newbie

Hi!

I was just diagnosed with Celiac Disease 4 weeks ago. Over that time, I have had several brands of gluten-free noodles. Last night, we ate at a restaurant that makes their own gluten-free noodles. EVERY time I have had pasta, I feel sick. Now, I have been eating gluten-free sauce with all of them. I am frustrated wondering WHAT is wrong...???? :( :( Any ideas?

Thanks!

Chrissy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
I was just diagnosed with Celiac Disease 4 weeks ago. Over that time, I have had several brands of gluten-free noodles.

Hi, and welcome to the forum.

Many of us when we first go gluten free rush out and buy gluten-free substitutes for all our regular foods. This is not necessarily a good idea as some of these substitute grains are hard to digest and our digestive systems are in a really delicate state from the onslaught of gluten. (I know, I was one of them.)

It is usually best to take it easy on your gut for a while and give it time to heal. Stick with simple foods like chicken and rice and cooked veggies for the first few weeks until your villi have had a chance to recover. Then add things in slowly so you can tell when you are reacting to things. It will take a while for you to heal, just as it took a while for you to get sick.

I had given up pasta long before I realised I was gluten intolerant, I think because it is such a high concentration of gluten. The substitute pastas also have a high concentration of other grains and are best saved for later in the healing process.

Along the way you may well find an intolerance of other things, the most likely being lactose/casein, soy, and other common allergens. Oftentimes these are only temporary and you will be able to add them back in once you have healed.

Take it slowly and feel free to ask other questions as they arise. We are here to help.

ShayFL Enthusiast

Did the restaurant use "fresh" water to boil your pasta? Sounds like a dumb question, but it isnt. I ate at a restaurant where the manager is Celiac. The server seemed well versed. I got glutened. They boiled my asparagus in pasta water. Doh!!

You gotta ask......

curiousgeorge Rookie

Yes. Restaurants are scary places. You should read the book "Heat". There is a part in it about the pasta cooker they have in the kitchen. By the end of the night when they clean it, it has all ilk of crap in it. For me I only eat it if its grilled or baked (potato). I eat a lot of steak when I travel ;)

Amber M Explorer
Hi!

I was just diagnosed with Celiac Disease 4 weeks ago. Over that time, I have had several brands of gluten-free noodles. Last night, we ate at a restaurant that makes their own gluten-free noodles. EVERY time I have had pasta, I feel sick. Now, I have been eating gluten-free sauce with all of them. I am frustrated wondering WHAT is wrong...???? :( :( Any ideas?

Thanks!

Chrissy

I 100% agree with "mushroom" I would have said exactly the same, as I tried, and alot of the grains just don't settle right now. I am taking digestive enzymes that are beginning to help. I have developed other food intolorences as well. I have been allergic to Soy for years. I don't trust the restaurants right now. I just don't eat out. But when I do, I don't think I'd take a chance that they used the same pasta machine! Hope you feel better.

dad4sid Newbie
I 100% agree with "mushroom" I would have said exactly the same, as I tried, and alot of the grains just don't settle right now. I am taking digestive enzymes that are beginning to help. I have developed other food intolorences as well. I have been allergic to Soy for years. I don't trust the restaurants right now. I just don't eat out. But when I do, I don't think I'd take a chance that they used the same pasta machine! Hope you feel better.

Hi all,

I am new to this forum - didn't know that a support group existed for celiac people. wonderful!!- thanks to those who set it up.

I was diagnoised with celiac 2 years back but I must confess that I was not very strict about this until recently( 6 months back). I now stick with rice, vegetables( lots of them) & poultry. When we eat out , I look out for a asian ( chinese minus msg, thai and indian ) restaurants as they have variety of rice dishes. It does get difficult while travelling since the effort to find an asian restuarant can take toll on you when all you want is to crash in ur hotel room after a long day with customer. To avoid those challenges, I carry lot of ready to eat food from home.

At home we are very much Gluten-free Casein-free as my son is special needs and I have celiac and my wife loves to cook :) .

Amber M Explorer
Hi all,

I am new to this forum - didn't know that a support group existed for celiac people. wonderful!!- thanks to those who set it up.

I was diagnoised with celiac 2 years back but I must confess that I was not very strict about this until recently( 6 months back). I now stick with rice, vegetables( lots of them) & poultry. When we eat out , I look out for a asian ( chinese minus msg, thai and indian ) restaurants as they have variety of rice dishes. It does get difficult while travelling since the effort to find an asian restuarant can take toll on you when all you want is to crash in ur hotel room after a long day with customer. To avoid those challenges, I carry lot of ready to eat food from home.

At home we are very much Gluten-free Casein-free as my son is special needs and I have celiac and my wife loves to cook :) .

Welcome! This site is the best I have found! Sooo much information. I hope you are strictly gluten free. Do you know alot about celiac? There are very serious auto immune diseases you can end up with if you fool around with the diet. Read around here when you can. There are also great recipes your wife may want to try! Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,762
    • Most Online (within 30 mins)
      7,748

    dangunderson
    Newest Member
    dangunderson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.