Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Celiac Patient Joining The Group! Labs Came Out Positive

TiredofTums

Recommended Posts

TiredofTums Rookie
TiredofTums
Posted

:( Hi friends! I was on the forum last week and the week before suspecting Celiac after my doctor I went to see because of getting sick alot with my intestines and he ordered labs and I am scheduled tomorrow for an Endoscopy and Colonoscopy. He wanted to check for Celiac.

My labs were positive! And he did confirm Celiac Disease. I ordered the grocery shopping guide and am glad I did. It will be very helpful in helping me get well again. I was hoping I wouldn't have to have the other two tests but because of my age and cancer running in my family, he still wants to check me out really good. I got some major damage and have been this way for years never knowing it was Celiac. And have been a very sick female! 27 years I have suffered with this mess and went from doctor to doctor complaining. Now it is official! I have Celiac!

Thank-you so much for helping me! Now I have to learn all about this disease and how to control it by stopping all glutens!

Another thank-you to Lisa for getting me in the forum and telling me all about Celiac! My sister took her son in yesterday because he has been sick for two years now. Poor boy has been vomiting for 3 weeks and gets headaches all the time. Plus he has other things going on. We are just about positive he too has Celiac. Then my mother to is having the same problems. She has been sick for alot longer than me!

Thanks to Lisa for guiding me in the right path! Those labs came in handy and now I am officially a Celiac Patient!

This site really gave me alot of help and I appreciate everybody that took the time to help me!

God bless!

Linda That Is Tired Of Tums

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I am so glad you finally know and can start healing. I hope things improve quickly for you.

ShayFL Enthusiast
ShayFL
Posted

What a relief!! And not that I hope other family members of yours have it, but if they do, you can ALL get healthy together. :) And eat at each others houses without worry. There are blessings along with the curse. May you find them all!

Lisa Mentor
Lisa
Posted

Linda,

Welcome to the Club! ;)

I am so glad you found the right path toward recovery. The theme around here and nationwide is "Celiacs Helping Celiacs", so pay it forward and reach out to others. Your family looks like a great place to start. :)

You have exciting days ahead, full of recovery and good health. I'd be willing to bet you will be seeing improvement in your other issues and your diagnosis of Lupus may be reversed.

Best of health to you and looking forward to seeing you here!

happygirl Collaborator
happygirl
Posted

Congratulations, Linda! I'm happy you have finally found your much needed answers. A great Christmas blessing.

ang1e0251 Contributor
ang1e0251
Posted

Congrats on your diagnosis. It's a great relief to put a name to your seemingly disjointed problems and finally have an action plan. I was so relieved and grateful. I know you are on an exciting journey to improved health. Have a healthy holiday and New Year!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,606
    • Most Online (within 30 mins)
      7,748
    Erik Maran
    Newest Member
    Erik Maran
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Found coffee or coffee pods that contain gluten

      By trents · Posted

      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Found coffee or coffee pods that contain gluten

      By linnylou73 · Posted

      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
      Helping child go strict gluten-free and concerns about growth/height

      By KimMS · Posted

      Thank you! Very helpful.
    • Scott Adams
      Helping child go strict gluten-free and concerns about growth/height

      By Scott Adams · Posted

      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...