Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scd Support Group

Guest gfinnebraska

By Guest gfinnebraska
in Related Issues & Disorders

Recommended Posts

Guest gfinnebraska
Guest gfinnebraska
Posted

That casserole sounds good! I have never tried the spaghetti squash. I wouldn't know where/how to start!!

I am NAUGHTY when it comes to beverages. I just can NOT give up my diet coke. Yes, I am addicted. I have one fill-up daily at Casey's. My only vice. I can't see where it hurts the diet ~ no carbs or sugar. I would give in to the tea and coffee if you really find you need it. I believe the main goal is to keep clean of sugar and carbs. IF you are doing that, then you are okay!

What did you use for gravy in the casserole?? Just curious. When you say gravy, I think ... eeek! I always made it with flour... I guess you can use other things too like corn starch. But, technically, would that be allowed on SCD since we are suppose to not eat corn?? Just a question!

My diet is very plain. I don't mind though. I eat grilled meat ~ various cuts, fruit, veggies and almond flour cookies. I made some gingerbread ones I found in a SCD cookbook. I will try and remember to post it. They were really good!! I drink 100% juice, water and my one diet coke. I still want to order the yogurt maker. I also made my own mayonaise with the recipe from the book, and had that with tuna to make a salad. That was good too! :)

My favorite thing to eat is fruit, so I do depend most on it. I am craving grapes right now, so that is my fruit of choice!! :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 262
  • Created
  • Last Reply
shimma Apprentice
shimma
Posted

I was intimidated by the spaghetti squash, but it was actually pretty easy. I just baked it for about an hour and then opened it up. The hard part is separating the seeds from the strands. It all tends to stick together.

Gravy was a cinch because I cooked the turkey in a crock pot with some onions and celery. By the time the turkey was cooked, there was tons of turkey-infused liquid, so I pureed that with the cooked onions and celery. It was pretty thick and not smooth like "real" gravy, but extremely tasty.

My problem is I can't stand plain meat, so I spend quite a bit of time figuring out how to jazz it up. My diet pre-SCD was lots of pasta, stir-fry, etc - one dish meals with the meat incorporated. Those are harder to do now with no starch to sit everything on top of (and I would have no idea how to do an SCD stir-fry sauce, for instance).

I made some peanut butter brownies yesterday. They are delicious! I'm not sure if it's too soon for PB, but I was craving something sweet and snackable.

I'm with you on the fruit! I love it, mostly raw though. Still holding off on that.....

cynicaltomorrow Contributor
cynicaltomorrow
Posted

The diet's not just about avoiding carbs and sugar. Fruits and veggies have carbs in them. It's about avoiding sugar (except honey, sweet n low, and those that occur naturally like in fruits and veggies), soy, starch, gluten, grains, and anything artificial. Pop isn't okay because of the corn syrup. That's fine if you're just interested in the diet, but if you're actually trying to heal anything, you have to quit drinking the pop, otherwise the diet is pointless. Also, I would be extremely wary about going out to eat anywhere. There's no telling what they put in stuff, even in seemingly plain things like hamburgers. If you're looking for more recipes, there are a few sites out there like www.pecanbread.com and www.scdrecipe.com.

shimma Apprentice
shimma
Posted

Just curious -

If you wouldn't mind, can you summarize where you were (health-wise) before beginning the diet, and how you're feeling now? How did you come to hear of SCD? It seems like most celiacs have never heard of it.

cynicaltomorrow Contributor
cynicaltomorrow
Posted

I was eating gluten-free and lactose-free before starting the SCD. I was actually doing really well before I started the diet. I just started the diet for the healing aspects of it, in hopes that maybe one day I'll be able to regain a semi-normal diet. I heard quite a few people on this board mention Breaking the Vicious Cycle, so I decided to check it out. Right now I still feel about the same as before I started.

Guest Eloisa
Guest Eloisa
Posted

I'm new to this board and have Celiac. What is SCD? I too have experienced weight loss in the beginning then weight gain and haven't been able to loose any of it aside from maybe 2-5 pounds.

celiac3270 Collaborator
celiac3270
Posted

It's the specific carbohydrate diet. See this thread:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest gfinnebraska
Guest gfinnebraska
Posted

I am doing the diet for the healing effects. The pop I am drinking IS sugar free. I have already started to heal due to the fact that I could not eat dairy before the diet, and now, 2 months into it, I can eat some cheddar cheese ~ which is allowed.

My only point was that diet pop is sugar free and carb free. No, it isn't healthy for you, but the book even says that you can have one... occasionally. I just tend to drink one more often than "recommended".

shimma Apprentice
shimma
Posted

My husband has expressed concern about the amount of high saturated fat and cholesterol foods I now consume, especially eggs and cheese. I would gladly cut back on those, but I hesitate to limit myself even more. Is anyone else concerned about this diet raising their cholesterol?

Guest gfinnebraska
Guest gfinnebraska
Posted

No ~ the meats I eat are lean, and I try to limit my cheese somewhat. I am not worried about my levels because I am eating healthy and natural. The intake of fruits and veggies off set the fat intake. :) IF you are worried, you could always go and have your levels checked.

Guest Eloisa
Guest Eloisa
Posted

I've done the gluten-free diet for about 3 years and no sugar since my son was born (6 years ago) but found that I never got any energy with anything I ate. I also don't consume any caffene or any type of sodas. In the past and even when I was on the gluten-free & off sugar diet I was in a constant fog with all sorts of other symptoms starting. I don't have reactions to any other foods other than the ones with Gluten which I stay away from. What helped me with energy and getting my life back was a shake that I drink 2 or 3 times a day called Reliv. It has healed everything that had been wrong with me. I've done lots of vitamins and different supplements and enzymes too but never got any results.

cynicaltomorrow Contributor
cynicaltomorrow
Posted
I am doing the diet for the healing effects. The pop I am drinking IS sugar free. I have already started to heal due to the fact that I could not eat dairy before the diet, and now, 2 months into it, I can eat some cheddar cheese ~ which is allowed.

My only point was that diet pop is sugar free and carb free. No, it isn't healthy for you, but the book even says that you can have one... occasionally. I just tend to drink one more often than "recommended".

The healing aspects of the diet will not be in full swing if you are still drinking pop, even if it IS sugar-free because it's full of corn syrup... corn being a grain... being illegal. If you look at SCD sites, you'll see that when Elaine refers to pop, it's about making your own pop with club soda or tonic water. The occasional part refers to using aspartame as a sweetener.

Guest gfinnebraska
Guest gfinnebraska
Posted

Cynical: I hate to be argumentative, but you have obviously not read the book...

Here is a quote from Breaking The Vicious Cycle: "Diet Soft drinks are permitted occasionally. Those sweetened with aspartame or Nutri-Sweet may sometimes contain lactose and should be avoided, if possible. However, if this is the only type available, one per week is permitted. Diet soft drinks sweetened with saccharin need not be limited to only one a week: 2-3 weekly would be permissible." Page 77&78 of the book.

Diet soft drinks DO NOT have corn syrup ~ hence the term DIET... and zero calories. IF you are serious about this diet, as you sound you are, please buy the book... read it... and then continue.

cynicaltomorrow Contributor
cynicaltomorrow
Posted

Okay... just curious, but how is it obvious that I haven't read the book? I'm obviously not a moron who is just pulling this stuff out of thin air. I've been on the diet for over 5 months and have read the book several times and am a member of a large SCD support group online. I was simply not aware that diet pop didn't have corn syrup in it. Had you said that to begin with, there would have been little misunderstanding. I don't appreciate you talking down to me like I don't know what the hell I'm doing.

Guest gfinnebraska
Guest gfinnebraska
Posted

:o I'm sorry if my posting was read as "talking down" to you... that was not my intention. I was just replying to your post where you quoted me and told me that I was not following the diet correctly... in essence, telling me I didn't know what I was talking about. I was under the impression that you had not read the book due to you not understanding the whole soda issue and due to the fact that in your post you said "If you look at SCD sites" ~ leading me to believe your knowledge was based on internet sites and not the book itself.

Again, I apologize if my reply was taken as anything but trying to clear the issue.

Good luck with your diet, and I hope you have great health in the year to come. :)

cynicaltomorrow Contributor
cynicaltomorrow
Posted

Alright, we're cool. B) I'm excited... I had some watermelon and some orange this week and have done a-okay. Woohoo for raw fruit!

Guest gfinnebraska
Guest gfinnebraska
Posted

Thanks for understanding... and woohoo on the fruit!!

My main craving has been grapes. I can't get enough of them... and it is costing me dearly!!! $2.99/lb.! Yikes!!

I need to check out the watermelon... love it! Didn't know if it was "ripe" yet...

I do have some brown spotted bananas at home... will have to eat one of those ~ time for lunch!!

shimma Apprentice
shimma
Posted

Speaking of grapes....sort of.....are there any wine drinkers here? The book specifies "dry wine only", and I think this is in contrast to a fortified wine like sherry. Is that your understanding as well? Aren't most red or white wines, at least the kind that go with dinner, "dry"?

Guest gfinnebraska
Guest gfinnebraska
Posted

Not all red or white wines are "dry" ~ a lot of them are considered "sweet." I am NOT a specialist in wine by any means...but I was a wine stewardess YEARS ago... I would go to a good wine store and have a person there help you pick out a good, dry wine. Wine is not something I drink or buy, so I am of no help there!! :)

PreOptMegs Explorer
PreOptMegs
Posted

On the SCD diet, we are allowed to have nuts in the bag or shell, but not out of the can... right? Of course, one must always check the label.

shimma Apprentice
shimma
Posted

The book says that canned mixed nuts are likely a problem. You can always check with the manufacturer though to check if they're coated with starch prior to roasting.

I know a couple of you are successfully losing weight with the SCD....but I'm frustrated because lost five pounds and I don't want to lose weight! I'm already underweight. I guess I need to eat more. I'm a little discouraged because I was hoping to get healthier (which for me would be to put back on the 15 pounds I lost when the celiac disease kicked in.)

Guest gfinnebraska
Guest gfinnebraska
Posted

Shimma ~ I doubt the SCD is going to make you gain ~ unless you eat a lot! I have been doing it for 2 months now and have LOST 25 lbs. I don't know how you can keep from losing... eating only veggies, fruit and meat ... the weight is just falling off!! I still need to lose about 10 lbs., but then I will not need to lose weight and will be in the same boat as you!! I am dedicated to this diet for a year, and do not want to lose for a year... yikes!! :o:( I guess you can try eating more, and adding more cheese to your diet. Maybe that will help?? Let me know how it goes!!

shimma Apprentice
shimma
Posted

I'll keep on the diet, if only because I haven't gained anything in the last two years just being gluten-free, so that obviously wasn't helping. I figure that if I can finally heal my intestines using SCD, then maybe eventually I can keep food in my system long enough to use it!

Now it's time for a nice cheesy omelet!

PreOptMegs Explorer
PreOptMegs
Posted

shimma- how long have you been on the SCD diet?

shimma Apprentice
shimma
Posted

Just over a month now - I started April 25. I was reading a post by Elaine Gottschall this morning on Breakingtheviciouscycle.info that it's not uncommon to lost weight when you start this diet because your body is re-learning how to digest, or something like that. I'm encouraged to be patient and give this diet at least another few months and see how it goes.

I just came back from my trip, which I was worried about because I thought eating would be a pain. Things worked out ok - I brought a big freezer chest of food along so I could take my farmer's cheese, yogurt, etc. I have to say, peanut butter is a lifesaver - whenever I'm really hungry, just a little fills me up!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.