Seizures

[eeyore]

Is it common for celiacs or at least gluten-intolerant people to have seizures?

[missy'smom]

I don't know about common or not but my sister had seizures and after she went gluten-free, no more. At the least, she is healed enough for her meds to be absorbed properly by intestines and they are working. She hasn't stopped the meds yet. Probably afraid to. She went through alot.

[happygirl]

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[sugarsue]

Hi. My 6 yr old daughter has epilepsy. Before we finally found medication that works in supressing them, she was having hundreds of seizures a day, most you could not even see but I was seeing at least 10 a day where she was staring off into space, unresponsive. She never did convulse but she might walk off for no reason or continue to try to do something that she was doing before the seizure started. It took us a long time to find medication that would supress the seizures. In the mean time, our neurologist said, at my request, that he would do a celiac panel if I wanted him to, but the change of her being celiac was slim.

I finally had the panel done. My dd came back highly gluten intolerant but negative celiac. Our neurologist's response was "she's fine'. We switched neurologist and our new (and wonderful, I love him) neuro believes that there is a high probability that her seizures are caused by gluten, especially seeing as how sensitive she is to it. We go back at the end of March to find out what our next steps are. She has been seizure free since April 2008 and is still on medication. She also has low biotin which can also cause seizures. Our old neuro wanted to find the right medication to stop the seizures. Our new neurologist wants to find out why she's having seizures so we can stop them. Have I mentioned how much I love him?

I read somewhere that if you go through many medications looking for the right one for your seizures and that none work or side effects are too bad, this can be an idication that the issue is gluten related. Man I wish I could find that reference again since this was our story for almost a year!

GOOD LUCK!