Migraines And Tinnitus With Celiac

[Sher B.]

Does anyone have tinnitus and migraines with Celiac? My daughter was recently diagnosed and confirmed by positive biopsy and has been gluten-free since biopsy 6 weeks ago. Her gastro symptoms have subsided for the most part, but is experiencing severe migraines and constant tinnitus as well as fatigue and appears to be getting worse not better.

Her doc dismissed B12 insufficiency based on bloodtests, however her reading was at the low end of normal and with subtotal villous atrophy, I would think she is not aborbing vitamins at this time. She presents with every single symptom of lack of B-12. Doc also indicated that he has never seen tinnitus related to Celiac. I find this hard to believe, since it started along with migraines at the same time gastro symptoms began. Soooo, does anyone have tinnitus and migraines? If so any suggestions in regard to B-12 or any imput if those symtoms went away after being gluten-free for period of time? Thanks

[lizard00]

I've not had tinnitus, and my headaches did resolve with the gluten-free diet, but what I do know is this:

You cannot overdose b12, so you could always try and see if it works. Get a sublingual b12, as it is absorbed directly. At one point I was taking 3 sublinguals a day, which I want to say was 3mg, but I'm not sure on that.

Magnesium deficiency can also be associated with headaches. This is something else you can't overdose on, BUT, if you take too much, it will give you diarrhea. So, I would go with the recommended dosage on the label, and go from there.

I hope that your little girl gets better soon. You might also check into vitamin D deficiency, as it can be behind a long list of ailments. It is pretty common for celiacs to be deficient in Vitamin D, as vit d is absorbed in the small intestine.

Celiac symptoms are not limited to the small intestine, they can manifest in every body system.

[lbd]

My main symptom of gluten poisoning is a migraine. I had them for all of my life until I found out that gluten and casein were the causes. So, yes, migraines can definitely be caused by gluten intake.

Laurie

[ang1e0251]

Remember that those tests only show the average for the whole population and each person's body is different. Low on the scale may be normal ( no symptoms) for the guy next to you but for your daughter, low might mean she is symptomatic. Some dr's won't use common sense to go with test results and read a patient's symptoms as in indicator along with test results.

Like was pointed out to you, since she can't take too much B12 , it may be worth a try. I certainly have measurable relief from it. Use the sublingual, methyl type.

D can run havoc on your system too, as was pointed out. Get a copy of your DD's reports. D is something you can take too much of so you need to know where she stands.

[SadiraS]

Does anyone have tinnitus and migraines with Celiac? My daughter was recently diagnosed and confirmed by positive biopsy and has been gluten-free since biopsy 6 weeks ago. Her gastro symptoms have subsided for the most part, but is experiencing severe migraines and constant tinnitus as well as fatigue and appears to be getting worse not better.

Her doc dismissed B12 insufficiency based on bloodtests, however her reading was at the low end of normal and with subtotal villous atrophy, I would think she is not aborbing vitamins at this time. She presents with every single symptom of lack of B-12. Doc also indicated that he has never seen tinnitus related to Celiac. I find this hard to believe, since it started along with migraines at the same time gastro symptoms began. Soooo, does anyone have tinnitus and migraines? If so any suggestions in regard to B-12 or any imput if those symtoms went away after being gluten-free for period of time? Thanks

Hi, I'm new to the board but I saw you post and really wanted to reply. I'm not diagnosed with celiac but I've been playing around with my diet for awhile trying to figure out if I have a food intolerance and I think wheat is definitely it. Migraines and tinnitus are two of my symptoms that I'm currently linking to wheat. More the tinnitus than the migraines, but thats only because I now take migraine preventative medication and I think it has helped a lot. but the tinnitus is horrible. I hear it when its quiet. Usually its ringing, but sometimes it sounds like a swoosh sound in time with my heart beat. I was gluten free for a couple of weeks and it was starting to get more quiet... well, yesterday I had chinese food not even thinking about soy sauce containing gluten and I have noticed that last night and today the tinnitus is really loud again. So, yeah, i think that it is definitely related.

[mushroom]

No migraines fir ne, not the nervous-symptom type of celiac. However, and strangely enough, developed tinnitus, in the right ear only, almost immediately after going gluten free, and continues to this day, 18 months later. It stops now and again, but not for long. My B12 and folate were both at the low end of normal, and when retested 9 mos. later B12 was even lower and folate was below normal. I have read (or heard somewhere) that the B12 that shows up in the tests (sorry, cannot provide reference) is a higher reading than what is actually available to your body, so if you are low normal you should be supplementing. I was also low on D.

[ravenwoodglass]

My B12 and folate were both at the low end of normal, and when retested 9 mos. later B12 was even lower and folate was below normal. I have read (or heard somewhere) that the B12 that shows up in the tests (sorry, cannot provide reference) is a higher reading than what is actually available to your body, so if you are low normal you should be supplementing. I was also low on D.

I have seen the same thing as far as the readings go. The blood test is measuring your stores not how well your body is able to utilize B12. It can be awhile after your body stops being able to process B12 before it will show up on blood work as other than a decrease in levels but still in normal ranges. Taking a supplement with folate can also effect the B12 blood tests giving a seemingly higher number than it really is. B12 has no toxic levels so supplementing it is not something that is dangerous and it can help a great deal.

[SGWhiskers]

My symptoms are primarily neuro. I was diagnosed through positive blood tests and biopsy. Migraines, tinnitus, nystagmus, nausea, photophobia, tactile sensitivity, confusion, ataxia, fatigue and PAIN. All have subsided with the gluten free diet, but have not been completely eliminated. I'm 6 months gluten-free. When I even smell gluten, several symptoms come back temporarily. I learned much about tinnitus when I was in graduate school for my profession, and never learned that celiac could cause it. I also know from personal experience that celiac caused my tinnitus. 100% sure of it.

So, while I would continue to let the doctor explore the possibility of another cause for tinnitus, keep in mind that even the experts are still learning the extent of the ways gluten can damage the body.

Also, NSAIDS are known to cause tinnitus. If she is taking any, that may be the culprit. I always get tinnitus when I take NSAIDS gluten or not.

[pele]

I just did a "dairy challange" after about 10 months completely dairy free. I ate a little homemade raw milk yogurt for 5 days in a row. My tinnitus got much worse, along with postnasal drip, brain fog and fatigue. So much for dairy!

[YoloGx]

Anybody figured out some remedies that help get rid of tinnitus?

Just read that ashwaganda, zinc and ginkgo are good plus B vitamins (B1, B12, B6), vitamin E, Co-Q10 are helpful... Anyone here tried some of these?

For me by avoiding certain allergens my ear ringing stopped. However my friend who also has celiac seems to suffer from it continuously...

Bea

[Phantom]

I have also had migraines and tinitis. I have had tinitis for some time and have always assumed that it was created by Rock and Roll <grin>. I have recently determined that I am gluten intolerant and my tinitis has gotten much worse and migraines (new to me) have been horrible. My tinitis used to be just when it was quiet, now its 24/7 and makes it difficult to here people in normal social situations.

[cahill]

Does anyone have tinnitus and migraines with Celiac? My daughter was recently diagnosed and confirmed by positive biopsy and has been gluten-free since biopsy 6 weeks ago. Her gastro symptoms have subsided for the most part, but is experiencing severe migraines and constant tinnitus as well as fatigue and appears to be getting worse not better.

Her doc dismissed B12 insufficiency based on bloodtests, however her reading was at the low end of normal and with subtotal villous atrophy, I would think she is not aborbing vitamins at this time. She presents with every single symptom of lack of B-12. Doc also indicated that he has never seen tinnitus related to Celiac. I find this hard to believe, since it started along with migraines at the same time gastro symptoms began. Soooo, does anyone have tinnitus and migraines? If so any suggestions in regard to B-12 or any imput if those symtoms went away after being gluten-free for period of time? Thanks

My migraines were triggered by nightshades

My tinnitus is the VERY first sign that I have ingested soy. Even the smallest amount of cross contamination will cause ringing in my ears .

[frieze]

No migraines fir ne, not the nervous-symptom type of celiac. However, and strangely enough, developed tinnitus, in the right ear only, almost immediately after going gluten free, and continues to this day, 18 months later. It stops now and again, but not for long. My B12 and folate were both at the low end of normal, and when retested 9 mos. later B12 was even lower and folate was below normal. I have read (or heard somewhere) that the B12 that shows up in the tests (sorry, cannot provide reference) is a higher reading than what is actually available to your body, so if you are low normal you should be supplementing. I was also low on D.

I have read that some of what is being measured is Vit B12 analog, not active B12.

if OPs daughter's reading is less than 500 supplementation should begin.

[Ginger7]

Guidelines in Europe treat B12 deficiency if less than 500. US guidelines generally do not treat until levels fall below 200 unless you have a good dr who reads and understands this. As someone else said, it is a measure of storage which takes years to deplete so if one is already on low "normal" end, it could be that the stores are declining. I agree, if below 500, consider supplementation. Mine was and I'm currently getting weekly B12 shots.