Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick

rebe09

By rebe09
in Coping with Celiac Disease

Recommended Posts

rebe09 Contributor
rebe09
Posted

Hello~ I went gluten-free a little over 2 months ago. I literally went gluten-free with everything! Maybe exposed to gluten 2-3 times in the beginning. About 2 days ago I started to feel achy and nauseous. Those symptoms are gone, but my stomach feels "odd". It feels tender and hurts if I push on it. I originally went on a gluten-free diet for neurological reasons, headaches, and BM irregularities, so I wasn't necessary sick from gluten. The achiness and nauseous feeling could totally be a bug, but what's with the odd stomach feeling is what I'm concerned about? Could it be possible that I was exposed to gluten and now my body responds to it more negatively since I've been gluten-free for over two months?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
Hello~ I went gluten-free a little over 2 months ago. I literally went gluten-free with everything! Maybe exposed to gluten 2-3 times in the beginning. About 2 days ago I started to feel achy and nauseous. Those symptoms are gone, but my stomach feels "odd". It feels tender and hurts if I push on it. I originally went on a gluten-free diet for neurological reasons, headaches, and BM irregularities, so I wasn't necessary sick from gluten. The achiness and nauseous feeling could totally be a bug, but what's with the odd stomach feeling is what I'm concerned about? Could it be possible that I was exposed to gluten and now my body responds to it more negatively since I've been gluten-free for over two months?

Could be gas, could be constipation; if it's on the right side, it could be appendicitis, but after 2 days you'd presumably know by now. You might want to try the Mayo Clinic's symptom checker: Open Original Shared Link

An awful lot of us are casein intolerant; you may want to try giving up dairy at least temporarily. And to answer your last question, yes, nearly everybody says their symptoms from a glutening get worse the longer they're gluten-free.

ann72601 Apprentice
ann72601
Posted
Hello~ I went gluten-free a little over 2 months ago. I literally went gluten-free with everything! Maybe exposed to gluten 2-3 times in the beginning. About 2 days ago I started to feel achy and nauseous. Those symptoms are gone, but my stomach feels "odd". It feels tender and hurts if I push on it. I originally went on a gluten-free diet for neurological reasons, headaches, and BM irregularities, so I wasn't necessary sick from gluten. The achiness and nauseous feeling could totally be a bug, but what's with the odd stomach feeling is what I'm concerned about? Could it be possible that I was exposed to gluten and now my body responds to it more negatively since I've been gluten-free for over two months?

I've only been gluten-free for the same length of time, and I have found that I actually got sicker. There have been numerous food allergies and other aliments that have shown themselves since then. It's hard to say if you accidentially got into gluten or if something else is showing up.

There are some real pros that have been kind enough to help me through these rough spots and I believe they will be around here soon to help you out. Hang in there.

Ann

ang1e0251 Contributor
ang1e0251
Posted

You could be getting sneaky gluten from a source you felt was safe or maybe it's another sensitivity. A food journal can help narrow it down. It sounds a lot like I felt when I tried a new tea this winter. It took me awhile to figure that one out but I felt SO much better when I threw it out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,898
    • Most Online (within 30 mins)
      7,748
    ThelmaRose92
    Newest Member
    ThelmaRose92
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, I think you should send the National Institute of Health peer reviewed studies I linked to your doctors.  Some doctors don't keep abreast of the recent updates to Celiac diagnosis.  They may still be operating under the old idea of waiting until intestinal damage is at a Marsh score of 3C or 4 (complete villus atrophy) before diagnosis of Celiac is made.  Better to diagnose before it gets that severe.   Much of the damage to the small intestines is microscopic and NOT visible to the naked eye.   Since you've got Celiac genes, it would be beneficial if you kept to a strict gluten free diet.  Exposure to gluten and an environmental stress (like an infection or physical stress or emotional trauma) are needed for the Celiac genes to become activated.  If you don't have active Celiac now, a gluten free diet now will help prevent developing it in future.  
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @knitty kitty Thank you for your response!!  So do you think my doctor might still diagnose celiac even with the negative biopsy?  At this point I'm just wondering like do I have to be super careful when I eat places for cross-contamination, or do I just have to eat gluten free and not worry about the damage so much as the symptoms, you know?  Like with celiac I know my body is attacking itself and doing damage (although apparently not haha) and with an intolerance it certainly doesn't feel good, but it's not doing the same kind of damage, you know? I sent a message to the doctor asking if I should do a video capsule endoscopy or if we should have a second opinion on the pathology but ugh, I just want a clear answer so whatever it is, I can move forward!!
    • knitty kitty
      Newly Diagnosed

      By knitty kitty · Posted

      Welcome to the forum, @Gary Libby! Have you talked to your doctors and nutritionist about checking for nutritional deficiencies and supplementing with vitamins and minerals while you're healing?   Malabsorption caused by the inflammation and damage of celiac disease can deplete our stored vitamins, making us feel poorly the majority of the time.  The B vitamins are needed to digest our food and turn it into energy for our body to function.  If we're not able to absorb nutrients from food, taking a B Complex vitamin supplement can help immensely.  Do get checked for deficiencies before starting supplements.  Ask for an Erythrocyte Transketolace test.   Consider folliwing the Autoimmune Protocol diet to help your intestines heal.  Benfotiamine, a form of thiamine Vitamin B1, has been scientifically shown to promote intestinal healing.   Hope this helps and you feel better soon!  Keep us posted on your progress.
    • knitty kitty
      Probably celiac but also confused

      By knitty kitty · Posted

      @terrymouse, I agree that you may be suffering from nutritional deficiencies already.  Get tested for nutritional deficiencies before supplementing, otherwise the vitamins you're taking can mask a deficiency.   Symptoms that you have are similar to what I experienced with malabsorption of Celiac Disease.  I would lose my appetite; if I did eat, I got full quickly, and had nausea, dizziness, trouble digesting fats, abdominal pain, and heart palpitations.  I had unintentional weight loss.  I also had my gallbladder removed.  I was deficient in the essential nutrients, especially Thiamine and the other B vitamins. Ask for an Erythrocyte Transketolace test.  Thiamine deficiency symptoms may appear first because our body can't store it for more than three weeks and our metabolic needs for Thiamine increase when we're physically sick or emotionally stressed, so we can become depleted quickly.  Thiamine deficiency symptoms include gallbladder problems and all the ones list above.  Thiamine and the other B vitamins are needed to digest our food and turn it into energy for our body to function.  Gastrointestinal Beriberi is frequently overlooked by doctors.   Ask for a DNA test to check for any known genes for Celiac Disease.  You have to have at least one gene for celiac disease to develop.  You don't have to be eating gluten for a DNA test.  Your genes don't change.  If you don't have any celiac disease genes, you can focus on other reasons for your illness.  If you do have celiac disease genes, with your positive blood test results, you, your doctors and nutritionist can focus on correcting nutritional deficiencies which will help you heal and feel better.  
    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, There may not be textbook intestinal damage in the early stage of Celiac Disease!!! Keep in mind that the endoscope used can only reach about a foot past the stomach, while the small intestines are twenty-two feet long!  Damage can be patchy or out of reach of the scope.  Early celiac disease may not show damage at all. Don't compare your tTg IgA numbers with others.  Every lab uses their own range values.  Tests from different labs are not using the same scale and shouldn't be compared with other people's numbers from a different lab.   You've got the Celiac genes and the positive antibody test and the EMA test.  Next step is a Gluten Free diet trial and look for improvement.  Celiac Disease can be diagnosed using genetic testing and response to a gluten free diet!  I'm seronegative, but DQ 2.5.  My doctors were clueless.  They didn't see any classic textbook damage (complete villus atrophy), so didn't bother to biopsy.  Ack!   Much of the damage is microscopic and not visible to the naked eye. This study followed people who showed no or little damage at first....they accrued more damage over time. Outcomes of Seropositive Patients with Marsh 1 Histology in Clinical Practice https://pmc.ncbi.nlm.nih.gov/articles/PMC4980207/ There's a move to be less reliant on endoscopy for diagnosis. Biopsy‐Sparing Diagnosis of Coeliac Disease Based on Endomysial Antibody Testing and Clinical Risk Assessment https://pmc.ncbi.nlm.nih.gov/articles/PMC12074562/ Welcome to the tribe!
×
×
  • Create New...