Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"gluten Free" Items That "got You"


NorthernElf

Recommended Posts

bittykitty Rookie

Im pretty new to the gluten-free diet, but when tracing through my food journal I think I may have issues with Pamela's Lemon Shortbread cookies and Rice Chex (all flavors). I consistently mark down periods of bloating and nausea about 2 hours after eating these products.

Did you get a rash from Pamela's cookies? I sure the hell did..and horrible stomach pain. I've been using their products for ages,and never had an issue until last month.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 102
  • Created
  • Last Reply
GFLindsey Explorer

Did you get a rash from Pamela's cookies? I sure the hell did..and horrible stomach pain. I've been using their products for ages,and never had an issue until last month.

No rash for me. I don't have skin reactions from gluten -- at least not yet! (Fingers crossed). I just got a burning pressure in my abdomen and terrible bloating from her Lemon Shortbread cookies. I seem to to eat the others without a problem! WHat kind gave you a rash?

bittykitty Rookie

No rash for me. I don't have skin reactions from gluten -- at least not yet! (Fingers crossed). I just got a burning pressure in my abdomen and terrible bloating from her Lemon Shortbread cookies. I seem to to eat the others without a problem! WHat kind gave you a rash?

It was the chocolate chunk..the regular,not the double chocolate.Had it all over my feet and ankles,along with stomach pain and nausea.I also had some pain and bloating from their pizza crust mix,but at the time, I wrote it off to something else.Now I'm wondering.

JNBunnie1 Community Regular

It was the chocolate chunk..the regular,not the double chocolate.Had it all over my feet and ankles,along with stomach pain and nausea.I also had some pain and bloating from their pizza crust mix,but at the time, I wrote it off to something else.Now I'm wondering.

Pamela's is a completely gluten-free facility, they don't have anything with gluten in the plant. I have to think that if some were somehow getting in, that would be a very serious thing, for the company.

bittykitty Rookie

Pamela's is a completely gluten-free facility, they don't have anything with gluten in the plant. I have to think that if some were somehow getting in, that would be a very serious thing, for the company.

I know it's a dedicated facility..that's why I can't pin down why that happened, and I'm still willing to venture it was something else..but do not want to take the chance again.

Nor-TX Enthusiast

Yes, as one person said, this thread is very depressing. I've been thinking that something I am doing or not doing is causing all this bloating and pain. I have been totally gluten-free, yet I have been experiencing bloating and pain. This past weekend we were having company, so I set myself up with cooked shrimp, gluten-free cocktail sauce, Lays Stax, Glutino pretzels, gluten-free hormel turkey pepperoni, and nut thins. By the time my guests left, I almost crawled to the bed in major pain. My belly has been puffed out since Saturday afternoon and making all kinds of groaning noises here at work. People are looking at me! This morning for breakfast I had half of a Udi bagel, with gluten-free, dairy free margarine and gluten-free and dairy free almond butter and a couple of dried apple rings. My pants are tight and I feel sick...

I am so frustrated with all of this. I buy everything that says gluten free, I have changed my kitchen to gluten-free. I am at a loss for all this pain I am feeling.. *sigh*

jerseyangel Proficient

This past weekend we were having company, so I set myself up with cooked shrimp, gluten-free cocktail sauce, Lays Stax, Glutino pretzels, gluten-free hormel turkey pepperoni, and nut thins. By the time my guests left, I almost crawled to the bed in major pain.

It really can be so frustrating--and worse because you are so ill :( I would suspect the Nut Thins--for all the advertising on the box, they are made on lines that also process gluten. I can not tolerate them, and I've read about others having problems with them. If you're very sensitive or still healing, I would omit anything made on shared lines for now--until you are consistently better--and then try things one at a time.

This morning for breakfast I had half of a Udi bagel, with gluten-free, dairy free margarine and gluten-free and dairy free almond butter and a couple of dried apple rings. My pants are tight and I feel sick...

Do you normally eat Udi's with no problems? I can't eat their products because of the tapioca flour/starch. Just a thought--also, were the apple rings made on gluten-free equipment?

Hope you feel better soon :) Bet you never thought you'd be in the detective business ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skinnyminny Enthusiast

Yes, as one person said, this thread is very depressing. I've been thinking that something I am doing or not doing is causing all this bloating and pain. I have been totally gluten-free, yet I have been experiencing bloating and pain. This past weekend we were having company, so I set myself up with cooked shrimp, gluten-free cocktail sauce, Lays Stax, Glutino pretzels, gluten-free hormel turkey pepperoni, and nut thins. By the time my guests left, I almost crawled to the bed in major pain. My belly has been puffed out since Saturday afternoon and making all kinds of groaning noises here at work. People are looking at me! This morning for breakfast I had half of a Udi bagel, with gluten-free, dairy free margarine and gluten-free and dairy free almond butter and a couple of dried apple rings. My pants are tight and I feel sick...

I am so frustrated with all of this. I buy everything that says gluten free, I have changed my kitchen to gluten-free. I am at a loss for all this pain I am feeling.. *sigh*

Nut thins make me so so sick! Im not sure what it is in these but I have reacted many different times

Nor-TX Enthusiast

I guess I will toss out those boxes of nut thins I stocked up on. Not really sure what made me sick last weekend.. but it was rough.

GFinDC Veteran

Yes, as one person said, this thread is very depressing. I've been thinking that something I am doing or not doing is causing all this bloating and pain. I have been totally gluten-free, yet I have been experiencing bloating and pain. This past weekend we were having company, so I set myself up with cooked shrimp, gluten-free cocktail sauce, Lays Stax, Glutino pretzels, gluten-free hormel turkey pepperoni, and nut thins. By the time my guests left, I almost crawled to the bed in major pain. My belly has been puffed out since Saturday afternoon and making all kinds of groaning noises here at work. People are looking at me! This morning for breakfast I had half of a Udi bagel, with gluten-free, dairy free margarine and gluten-free and dairy free almond butter and a couple of dried apple rings. My pants are tight and I feel sick...

I am so frustrated with all of this. I buy everything that says gluten free, I have changed my kitchen to gluten-free. I am at a loss for all this pain I am feeling.. *sigh*

I can't do the Glutino pretzels because of the soy in them. Just wondering if you have tried eliminating soy yet? It is one of the top 8 most common allergens so it could be a problem for you. It sure does a number on me!

mushroom Proficient

It's a sad thing, but once we get rid of the overwhelming gluten response, some of the other things that have been trying to get on the line with their messages are finally able to get through once the gluten is gone. So we say, well I am gluten free so why am I still having problems? You will note from my signature that I have gone through a process of weeding out all the other things that kept getting a busy signal before.... and I am happy to say that apart from a lingering bit of gassiness I have finally started feeling digestively pretty good. Now, not everyone is going to have as many food problems as I have (I have pretty much eliminated all the high-lectin foods, which include gluten, as I think those are actually my problem (gluten, soy, corn, nightshades, legumes, peanuts--fortunately not dairy).

So unfortunately often it is not enough to get rid of the gluten, although that is the first step. The next step is lactose because as GFinDC explained, the ability to digest that is destroyed initially by the gluten. I can now tolerate lactose again. The next most common allergen that accompanies gluten is soy. Because of my arthritis I eliminated the nightshades next, but forgot about the potato starch in flour mixes. This was brought home to me one night when I cheated and had half of my husband's baked potato and woke up itching in the middle of the night--that explained the residual itching I was having on my shoulders must be coming from the (ah-hah) potato starch! Legumes were the last lecin link for me, and that was only after I found out about them.

So you really have to keep a food diary and find out what it is you are eating that bothers you. I finally put the legume link in when I had a dinner of roast lamb, half a baked yam, and green peas. Now I knew lamb and yam were okay, but would never have thought of green peas, except that was all that was left. :o

This post is not meant to scare you into thinking you will be intolerant of all these things, but just to get you thinking about what it is you are eating and how you are reacting to it. And eating whole, unprocessed foods to start with is a good way to weed out the bad actors as you start adding things back in.

shepgs Apprentice

This topic has been so helpful! I'm only a little over 2 months into being gluten-free and didn't have noticable symptoms to start with. I wasn't sure if I would know if I were glutened or not. Well, I think I found out!

After dinner a few days ago, I began to feel dizzy and have abdominal/gas pains/bloating. The next day it continued till evening, with the headache still here. My dinner was pigs-in-a-blanket made with Ballpark Angus franks and homemade dough (with Arrowhead Mills millet flour included) and Lays Staxx (barbeque flavor). I know, terrible nutrition-wise...

I'm thinking it must have been the millet flour. I used this in the beginning, so I must not have been truly gluten-free at first. <_<

I had had the chips a few days prior with no problem. I would have never thought of the millet flour if I hadn't read this! Do they use a shared facility?

jerseyangel Proficient

I had had the chips a few days prior with no problem. I would have never thought of the millet flour if I hadn't read this! Do they use a shared facility?

Yes, Arrowhead Mills is shared. The Stax are made on dedicated lines.

dilettantesteph Collaborator

One time I got whole grain millet from a dedicated facility. The said that there weren't any wheat fields within 100 miles and there was no way that there would be wheat contamination. Then I transferred it from the big bag to smaller containers. Millet is small, round and yellowish. There were also greyish rice like grains in there - possibly wheat? On further questioning, they said that the harvesting equipment that they use is also used for gluten containing grains. Millet flour would seem suspect based on this experience.

newgfcali Rookie
cooked shrimp, gluten-free cocktail sauce, Lays Stax, Glutino pretzels, gluten-free hormel turkey pepperoni, and nut thins.

Nor_TX~ Not to tell you what to do, but to suggest something here...

In looking at this list, the only thing that's a "whole food" is the shrimp. Many of us have found that it's better to eat completely whole, unprocessed foods at first until we get things under control. For this meal, it could have been shrimp, some steamed veggies, and plain white or brown rice. I know it's sounds REALLY boring, but by depending on Lays, Glutino, Hormel and Blue Diamond to be completely contaminate-free in all of their processing is kinda like playing Russian roulette with your health. Better at this point to keep it simple, clean, and totally gluten-free. You won't have to eat like this forever -- just until you feel better for say... a week or two. Then add one thing at a time, testing each food item individually to see whether you can tolerate it. If you still feel good after 4-5 days of the new item, then add another. It's called an elimination diet, and it does work.

DaffodElle Newbie

True. However, after you have tried (and failed) to be gluten-free long enough, you come to recognize glutenings for what they are. At least I have.

I'm super sensitive. My gluten reaction very rarely includes GI symptoms in the first place. I know that if I experience the "big D", that it was probably something else or a super severe gluten reaction.

I find that this thread has been pretty helpful in confirming that there are many gluten-free labeled foods that still cause problems and that it isn't all in my head... ("but it SAYS it's gluten-free...")

masterjen Explorer

Ensure, which is labeled gluten-free, got me: "three for three" ie. drank 3 of them, one every 2nd or third day, and got migraines 30 - 90 min. after drinking a bottle.

Nor-TX Enthusiast

Nor_TX~ Not to tell you what to do, but to suggest something here...

In looking at this list, the only thing that's a "whole food" is the shrimp. Many of us have found that it's better to eat completely whole, unprocessed foods at first until we get things under control. For this meal, it could have been shrimp, some steamed veggies, and plain white or brown rice. I know it's sounds REALLY boring, but by depending on Lays, Glutino, Hormel and Blue Diamond to be completely contaminate-free in all of their processing is kinda like playing Russian roulette with your health. Better at this point to keep it simple, clean, and totally gluten-free. You won't have to eat like this forever -- just until you feel better for say... a week or two. Then add one thing at a time, testing each food item individually to see whether you can tolerate it. If you still feel good after 4-5 days of the new item, then add another. It's called an elimination diet, and it does work.

Newgfcali,

It wasn't a meal I was preparing.. we had some friends over to play games. I can't do steamed vegetables or brown rice. I have colitis, no veggies, fruits, reduced fiber. You are right about the crackers though, I have eliminated them. Thanks for the suggestions.

  • 1 month later...
NewGuy Newbie

My daughter had to give up Trader Joe's gluten free mac and cheese (like Kraft's blue box). It took her a while, but she finally realized it was this that was making her sick!

I believe I have been glutened (badly) by "Trader Giotto's Organic, no-salt added marinara." It appears on Trader Joe's list of gluten free items, but the bottle itself doesn't say gluten free or no gluten ingredients used. Perhaps a cross contamination issue... I have used it before and think I was fine, but this bottle is poisoning the heck out of me. Too bad, it's good... frustrating that it appears on the list!!!

ltaylor882 Newbie

When I first found out I was allergic to wheat I went out and got an Amy's pizza, which claims it is gluten-free but if you read the label it states that it was made in a facility where wheat is present. Needless to say, within an hour I was covered in hives and my face and hands were totally swollen. I don't think I will ever attempt to eat anything by Amy's again.

ravenwoodglass Mentor

1) General Mills/Betty Crocker is NOT a gluten free company. They have made their money off of selling wheat products, such as regular Bisquick, Betty Crocker cake mixes, Frosted Mini Wheats... Are we picking up on a theme here?

2) Betty Crocker Gluten Free dessert mixes are NOT made in the US, they are a product of Canada.

I don't know about General Mills and their cereals but the Betty Crocker mixes are made in a dedicated facility.

Q: Are the Betty Crocker

StephanieGF Rookie

I don't know about General Mills and their cereals but the Betty Crocker mixes are made in a dedicated facility.

Q: Are the Betty Crocker® Gluten Free Dessert Mixes made in a gluten free processing facility?

Yes.

Open Original Shared Link

Yeah, I noticed that the gluten-free Betty Crocker mixes are made in a gluten free facility in Canada. I suspect (but have no proof) that it is the same facility as Gluten Free pantry or another of the Canadian gluten free manufactures, there are several. I did notice that the ingredients in the chocolate cake mix for Gluten Free Pantry and Betty Crocker are exactly the same. ;)

ravenwoodglass Mentor

Yeah, I noticed that the gluten-free Betty Crocker mixes are made in a gluten free facility in Canada. I suspect (but have no proof) that it is the same facility as Gluten Free pantry or another of the Canadian gluten free manufactures, there are several. I did notice that the ingredients in the chocolate cake mix for Gluten Free Pantry and Betty Crocker are exactly the same. ;)

I wonder if you might be right about that. They do taste the same and have the same texture.

NonHuman Newbie

Have you all considered the possibility of it being a reaction to something else? It isn't as if gluten is the only allergy/sensitivity you might have. I used to have that mind set, and for a while I would get sick eating the safest seeming foods... but then I started paying better attention and testing things out. I get a "gluten" reaction from honey, oranges, peanut butter, pea soup (HOMEMADE, and I generally don't have any problems when I eat peas), and some other stuff. You might go through and compare the ingredients of an unsafe food to a similar safe food, and test out any differing ingredients.

Of course I'm not saying that none of these complaints are valid, but rather that you should find out for sure before you scare others away from potentionally enjoyable products.

If someone already said this, I apologize for the redundancy. I just couldn't read through seven pages of this...

  • 5 years later...
moonflowerpdx Newbie
On 9/9/2009 at 9:49 AM, moonflowerpdx said:

Update 7 years later:

Soy sauce still doesn't seem to bother me in restaurants, but at home I use only gluten free Tamari or Bragg's Liquid Aminos. I no longer eat fast food! I eat corn, it's organic.

 

 

 

 

 

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.