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Back Pain When Having A Digestive Flair-up?

Lynayah

By Lynayah
in Coping with Celiac Disease

Recommended Posts

Lynayah Enthusiast
Lynayah
Posted

Does anyone here suffer back pain or hip pain when gluttened?

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SGWhiskers Collaborator
SGWhiskers
Posted

Yep. And head, shoulder, joint, muscle, eye, tmj, and every other conceivable place pain. Evil Evil gluten.

Lynayah Enthusiast
Lynayah
Posted
  • Author
Yep. And head, shoulder, joint, muscle, eye, tmj, and every other conceivable place pain. Evil Evil gluten.

My hip pain is particularly bad at night. So much so, that when I have a flair-up, I have to get out of bed extra early just to deal with the pain.

In the past the pain would come and go. In retrospect, I see that my worse problems might have been when eating gluten without knowing I was gluten-intolorant.

I did a many-week gluten challenge and oh my gosh, the symptoms!

I have only been gluten free for a few weeks, and I am praying that the hip and lower back pain will once again get better.

I also pray I'll be able to lose the 15 pounds that came on during the challenge. The first couple days I dropped some weight but have been stuck since. I think it is taking my body more time to adjust than I thought it would. The extra weight cannot help my pain, that's for sure. So maybe it is a combination of both.

So glad to be gluten-free again!

ravenwoodglass Mentor
ravenwoodglass
Posted

Yea me too. I find it helpful to place a firm pillow between my knees sleeping on my side. If stuff gets bad enough I take gluten-free asprin which seems to help.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Dairy does this to me. For a long time I thought my hip was out. I went to two chiropractors. The back pain went on for several months before I developed obvious dairy intolerance, then dairy protein allergy, soy protein allergy, allergies to many other favorite foods. Looking back it seems the celiacs was causing leaky gut.

Since going gluten free I've tried small amounts of dairy twice. Both times the back pain that feels like my hip is out came back. I have not had that pain without the dairy in all these months not even when accidentally glutened.

Hope this helps

RA

YoloGx Rookie
YoloGx
Posted
Dairy does this to me. For a long time I thought my hip was out. I went to two chiropractors. The back pain went on for several months before I developed obvious dairy intolerance, then dairy protein allergy, soy protein allergy, allergies to many other favorite foods. Looking back it seems the celiacs was causing leaky gut.

Since going gluten free I've tried small amounts of dairy twice. Both times the back pain that feels like my hip is out came back. I have not had that pain without the dairy in all these months not even when accidentally glutened.

Hope this helps

RA

That happened to me from eating cheddar cheese! Also happens when I get CC'd from gluten as well as a whole bunch of other symptoms. 24 hour home made yogurt is just fine for me however...

Bea

Lynayah Enthusiast
Lynayah
Posted
  • Author

Hoping more will post here. :)

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glutenfreegal Newbie
glutenfreegal
Posted

Oh wow this happens to ME! I was diagnosed in August and I have been gluten free until 2 days ago. My kids asked for cookies at the store. Normally I would make them myself but I said ok to the treat. Well of course the kids wanted one now. I put one in my mouth w/o thinking!! I had to RACE home to go to the bathroom, had back pain and shoulder pain for the remainder of the day. I NEVER thought that it could be from the gluten.

babysteps Contributor
babysteps
Posted

Hips especially.

Also any joint I've "used" eg after gardening while suffering glutening - hands, knees, ankles especially.

And some muscle cramps in legs & feet

Lynayah Enthusiast
Lynayah
Posted
  • Author
Oh wow this happens to ME! I was diagnosed in August and I have been gluten free until 2 days ago. My kids asked for cookies at the store. Normally I would make them myself but I said ok to the treat. Well of course the kids wanted one now. I put one in my mouth w/o thinking!! I had to RACE home to go to the bathroom, had back pain and shoulder pain for the remainder of the day. I NEVER thought that it could be from the gluten.

Yes, it is indeed surprising. I'm so grateful to finally finding a possible link between my pain and what I eat. Wow.

Shess0816 Apprentice
Shess0816
Posted
Does anyone here suffer back pain or hip pain when gluttened?

ABSOLUTELY!!! My back pain used to be so bad prior to my diagnoses that my doctors were 100% certain I had some rare kidney condition but they just could not figure out what it was. I would get pains so bad in my lower back on both the right and left sides -- but mostly the right side -- that I could not walk, it hurt to sit. I felt sick to my stomach, dizzy, and I ended up having to take pain killers a lot to get rid of it.

Now, since I've been gluten free for 6 months now, I've noticed when I've made "mistakes" on my diet and accidently eaten something with gluten, my very first indications are I start to get a little twinge of pain in my back and then my joints hurt REALLY bad (like I have arthritis), then the stomach issues, and then I have a headache, irritability, and fatigue for a week and a half.

oceangirl Collaborator
oceangirl
Posted

I would sometimes define my left hip pain from cc as "excruciating", particularly at night- and I have lived through kidney stones and natural childbirth to a 10 pound baby! EVIL gluten! Other joints hurt and crack as well. Fun!

lisa

Lynayah Enthusiast
Lynayah
Posted
  • Author
ABSOLUTELY!!! My back pain used to be so bad prior to my diagnoses that my doctors were 100% certain I had some rare kidney condition but they just could not figure out what it was. I would get pains so bad in my lower back on both the right and left sides -- but mostly the right side -- that I could not walk, it hurt to sit. I felt sick to my stomach, dizzy, and I ended up having to take pain killers a lot to get rid of it.

Now, since I've been gluten free for 6 months now, I've noticed when I've made "mistakes" on my diet and accidently eaten something with gluten, my very first indications are I start to get a little twinge of pain in my back and then my joints hurt REALLY bad (like I have arthritis), then the stomach issues, and then I have a headache, irritability, and fatigue for a week and a half.

Yes! When I did my gluten challenge, there were a few days toward the end when I would experience horrible sharp pain in my kidney area. It would almost cripple me . . . and then it would subside a bit after a while. Thank you for sharing this.

Sparty Newbie
Sparty
Posted

OMG! I have such terrible back pain I can't stand it. I was diagnosed this summer so I am pretty new to this whole disease and find myself quite lost actually.!! I was beginning to think something was seriously wrong with my back.....thank you for sharing! I just can't believe back pain is from gluten!

angieInCA Apprentice
angieInCA
Posted

Before my diagnoses I had terrible lower back pain and left hip pain that would shoot down my thigh and would inhibit my ability to walk. I had a several tests that included 2 MRIs. The Doctors were at a loss and told me that I must have sinovial cysts that would eventually put me in a wheel chair. They said there was a surgery for it to relieve the pain but they wouldn't do it till I couldn't walk anymore becasue the surgery was very invasive and would render me unable to walk. No pain killers touched the pain.

I went Gluten Free last Oct (almost 1 year :) ) Within 2 weeks the pain had subsided considerably. After 6 weeks my back and hip were pain free and I was able to walk freely. Also, the athritis in my hands had virtually disappeared.

Now, if I get glutened, I feel the pain within 24 hours and it takes 4 to 5 days for it to go away.

Sparty Newbie
Sparty
Posted
Before my diagnoses I had terrible lower back pain and left hip pain that would shoot down my thigh and would inhibit my ability to walk. I had a several tests that included 2 MRIs. The Doctors were at a loss and told me that I must have sinovial cysts that would eventually put me in a wheel chair. They said there was a surgery for it to relieve the pain but they wouldn't do it till I couldn't walk anymore becasue the surgery was very invasive and would render me unable to walk. No pain killers touched the pain.

I went Gluten Free last Oct (almost 1 year :) ) Within 2 weeks the pain had subsided considerably. After 6 weeks my back and hip were pain free and I was able to walk freely. Also, the athritis in my hands had virtually disappeared.

Now, if I get glutened, I feel the pain within 24 hours and it takes 4 to 5 days for it to go away.

your story is amazing! just can't believe dr's aren't more trained or aware of this disease. but thank you for heads up.....i will wait 4-5 days and pray pain will be gone then!

LisaG Newbie
LisaG
Posted
Does anyone here suffer back pain or hip pain when gluttened?

YES! I was recently diagnosed and am so happy that I'm not losing my mind. I have been suffering from lower back pain for about 5 years, and havent been able to get any answers on the cause until now. I am still in my first two weeks of shifting my diet and hope that I'll continue to feel better. It's much harder than I thought!

GFgirlGF Newbie
GFgirlGF
Posted

I totally get upper right back pain into my shoulder! its sometimes one of the ways i can tell ive been glutened! i work for a chiropractor and asked him about this and said how your stomach nerves are directly related to you stomach or intestines, when i get this pain its because its disturbing my stomach or intestines that it actually throws my vertebrae out of wack!! its some crazy stuff how everything in your body is connected!

  • 2 weeks later...
Lynayah Enthusiast
Lynayah
Posted
  • Author

I am so sorry that so many people suffer from this, yet I am very happy to hear I am not alone.

I just got back from a Disney World vacation -- a wonderful, healthy gluten free week (I'm going to post a gluten free review as soon as I can), except on my last day, I made a horrible mistake. I ate a Divvies choc. chip cookie thinking it was gluten free (a cast member told me they were), so I had one WITHOUT READING THE LABEL FIRST, which as we all know is a Bozo-no-no -- if there's a label, never take anyone's word without checking first. My fault.

I thought the cookie was not great, but pretty good, so I decided to check the calories and BAM, first ingredient is wheat. My heart sank.

I became symptomatic shortly thereafter. The next day, my lower back, kidney area, hips went right back to the way they used to be. Wow, I have no doubt now about gluten causing the problem.

I'm still having D and the pain. It's been six days and counting since getting glutened. Since I'm still new to all this, I guess the up side is that it will be a good lesson for me as well as a good learning in how long I remain symptomatic after blowing it.

It might not all be from the cookie. This week, I baked some Wal-Mart chicken legs that I am learning may not be gluten free. I'm going to post the question on the food board here. Anyway, if it is not gluten free, it may have furthered the symptoms.

Back pain, what a pain! But how wonderful that giving up gluten has helped all of us. It continually amazes me the problems that come from gluten -- things I (and my doctors for many years) NEVER suspected.

Again, I am sorry others have had to go through it, but it is soooo comforting to know I am not alone.

tmbarke Apprentice
tmbarke
Posted

Amazing subject!

I'm one week into this and I can't tell you how much I learn everytime I come to this forum!

My lower back would tighten up so bad that I'd whine! alot!

I shook it off as being out of shape and an old injury flaring up. But it was between the shoulder blades and the left shoulder too.

I'm not experiencing this anymore - after 1 week!

My discomfort in all those areas were very concerning to me - I couldn't walk without it tightening up and disabling me......to find out it's all because of gluten!

I'm certainly amazed that I have the answers now to my concerns and my doctor knew it just by symptoms.

Now I feel empowered to know that I am NOT alone in what I've felt all this time.

I did have a glass of Rum the other nite and woke up at 2 am with a swollen neck and the shoulder pain.......and I was doing so good knowing the pains were going away - and today I feel tons better.

Just a trial and error thing.

I know now that I'm on the road to recovery and a healthy body, mind and soul by cutting out this nasty thing called gluten!

Here's to better health!

Thank you for enlighteing me!

tmbarke Apprentice
tmbarke
Posted
Amazing subject!

I'm one week into this and I can't tell you how much I learn everytime I come to this forum!

My lower back would tighten up so bad that I'd whine! alot!

I shook it off as being out of shape and an old injury flaring up. But it was between the shoulder blades and the left shoulder too.

I'm not experiencing this anymore - after 1 week!

My discomfort in all those areas were very concerning to me - I couldn't walk without it tightening up and disabling me......to find out it's all because of gluten!

I'm certainly amazed that I have the answers now to my concerns and my doctor knew it just by symptoms.

Now I feel empowered to know that I am NOT alone in what I've felt all this time.

I did have a glass of Rum the other nite and woke up at 2 am with a swollen neck and the shoulder pain.......and I was doing so good knowing the pains were going away - and today I feel tons better.

Just a trial and error thing.

I know now that I'm on the road to recovery and a healthy body, mind and soul by cutting out this nasty thing called gluten!

Here's to better health!

Thank you for enlighteing me!

UPDATE! I got glutened!

and man did my back and shoulder hurt! The back pain feels like cramps before a period but only they sting a little more. The shoulder and neck were my first clue that I got glutened (after 11 days!) and I got furious.

I layed in bed and couldn't sleep while the pain was like experiencing a flu. Started feeling a pressure and tingling in my legs too - but the back! !@#@$!!%@

I'm just feeling a little sore today but am gonna head to Meijers anyways. (gluten free event)

It's real......OH YEAH! It's real!

maile Newbie
maile
Posted

yep, upper right back moving under the shoulder blade. one of my conclusive signs that I've been glutened

Swimmr Contributor
Swimmr
Posted
My hip pain is particularly bad at night. So much so, that when I have a flair-up, I have to get out of bed extra early just to deal with the pain.

In the past the pain would come and go. In retrospect, I see that my worse problems might have been when eating gluten without knowing I was gluten-intolorant.

I did a many-week gluten challenge and oh my gosh, the symptoms!

I have only been gluten free for a few weeks, and I am praying that the hip and lower back pain will once again get better.

I also pray I'll be able to lose the 15 pounds that came on during the challenge. The first couple days I dropped some weight but have been stuck since. I think it is taking my body more time to adjust than I thought it would. The extra weight cannot help my pain, that's for sure. So maybe it is a combination of both.

So glad to be gluten-free again!

Soooo this may be the reason....

I woke up one day with extreme hip pain in my right hip a couple months ago. I nearly fell when I got out of bed. I was in so much pain I was almost to tears. My hubby had me take some naproxin which is for inflammation and the pain subsided somewhat. The next day I was fine.

I couldn't for the life of me figure out what my problem was. I was beginning to think I had migratory arthritis and was a hair away from going to the doc to find out what was wrong. It was warm and slightly red that day. I had a similar incident summer of 08. I was in Missouri visiting my hubby's family for the first time and I woke up the day we were leaving with a horrible pain on my knee..it wasn't inside...but on the outside like it was sitting on the bone and was red, swollen and very painful. I had to ride on the plane in the cramped up seat with this pain. The next day I was fine. I know I was ingesting gluten while there...it was impossible to avoid.

Lynayah Enthusiast
Lynayah
Posted
  • Author
Soooo this may be the reason....

I woke up one day with extreme hip pain in my right hip a couple months ago. I nearly fell when I got out of bed. I was in so much pain I was almost to tears. My hubby had me take some naproxin which is for inflammation and the pain subsided somewhat. The next day I was fine.

I couldn't for the life of me figure out what my problem was. I was beginning to think I had migratory arthritis and was a hair away from going to the doc to find out what was wrong. It was warm and slightly red that day. I had a similar incident summer of 08. I was in Missouri visiting my hubby's family for the first time and I woke up the day we were leaving with a horrible pain on my knee..it wasn't inside...but on the outside like it was sitting on the bone and was red, swollen and very painful. I had to ride on the plane in the cramped up seat with this pain. The next day I was fine. I know I was ingesting gluten while there...it was impossible to avoid.

Yes, I compltely understand. As you quoted, my hip pain can be extreme, too. It especially hits hardest in the middle of the night, making sleep quite difficult. FOR YEARS I never knew it was related to gluten.

I'm glad to see that your symptoms seem to get better after only about 24 hours. I know 24 hours is a long time, but for many it can take longer. So, I guess that is a little silver lining, anyway. : )

moonlightmaven Newbie
moonlightmaven
Posted

Wow! I actually have a kidney disease, and I have thought it strange that I have a pain attack after being accidentally glutened. Perhaps it hasn't been my kidney at all. Thanks for the info!

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