Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Found Part Of The Problem


Lexi

Recommended Posts

Lexi Enthusiast

I spent my ENTIRE summer feeling sick and in pain!!! When summer started, in May, I started using Rice Dream Vanilla Rice Milk. I liked it, and it was a good replacement for milk in my cereal since I can't have dairy. I heard conflicting things about Rice Dream, so I called the company, and they assured me that it was Gluten Free. I have a lot of heatlth issues, so it's not unusual for me to have bad days. But, I spent my whole summer feeling miserable - sometimes thinking that I was comlpetely losing my mind. A couple of months ago, I switched to coconut milk. I almost immediately noticed a difference in the way I was feeling. I have heard that Rice Dream is not completely honest about their products being gluten free. Anyway, it just makes me sad if this is the case. I missed out on so many things with my kids because of how I was feeling. Shame on them if this is in fact true.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AKcollegestudent Apprentice
I spent my ENTIRE summer feeling sick and in pain!!! When summer started, in May, I started using Rice Dream Vanilla Rice Milk. I liked it, and it was a good replacement for milk in my cereal since I can't have dairy. I heard conflicting things about Rice Dream, so I called the company, and they assured me that it was Gluten Free. I have a lot of heatlth issues, so it's not unusual for me to have bad days. But, I spent my whole summer feeling miserable - sometimes thinking that I was comlpetely losing my mind. A couple of months ago, I switched to coconut milk. I almost immediately noticed a difference in the way I was feeling. I have heard that Rice Dream is not completely honest about their products being gluten free. Anyway, it just makes me sad if this is the case. I missed out on so many things with my kids because of how I was feeling. Shame on them if this is in fact true.

Call them back and ask them this question: "Do you use barley or rye at any point in your process?" The answer, unless something has changed in two and a half months, (which was when I called them in tears from exhaustion and a migraine) will be yes. They remove the barley in the process so they don't have to list it. I remember being about five seconds away from screaming when I hung up.

I use West Soy's Rice Milk now and love Good Karma's brown rice milks. I also use Coconut So Delicious which is fine, but semi-expensive where I am. (It also requires refrigeration at all times, which isn't always helpful.) I also like making hot chocolate, and Good Karma and West Soy are better for that. So Delicious leaves a slight weird taste. I know others like Hemp Milk, but I am not a fan of Hemp Milk to be perfectly honest.

Lexi Enthusiast

I am going to try those other milks you mentioned. I LOVE the coconut milk, but it seems to make me gain weight. I got some hemp milk to try, but I don't think I am going to like it. I have tried hemp in other things, and did not like it.

jnclelland Contributor
I am going to try those other milks you mentioned. I LOVE the coconut milk, but it seems to make me gain weight. I got some hemp milk to try, but I don't think I am going to like it. I have tried hemp in other things, and did not like it.

For what it's worth, hemp milks vary GREATLY in taste. I just about cried when Living Harvest changed their formerly fabulous recipe to the new "tempt" stuff, which I can't stand. I tried 'em all, couldn't find one I liked, and then a couple of months ago Pacific saved the day by coming out with one that tastes like Living Harvest used to taste. (So I want everyone to go buy some so they'll keep making it! :) )

Jeanne

NewGFMom Contributor

Try lite coconut milk. WAY less calories and I can't taste the difference. You can get it at Trader Joes. I also saw some coconut milk in the organic section at Stop & Shop in a big container. It's made by the same company that makes the coconut milk ice cream.

AKcollegestudent Apprentice
For what it's worth, hemp milks vary GREATLY in taste. I just about cried when Living Harvest changed their formerly fabulous recipe to the new "tempt" stuff, which I can't stand. I tried 'em all, couldn't find one I liked, and then a couple of months ago Pacific saved the day by coming out with one that tastes like Living Harvest used to taste. (So I want everyone to go buy some so they'll keep making it! :) )

Jeanne

Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

jnclelland Contributor
Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

So far I've only found it at Whole Foods, but I've been meaning to request it at other stores that carry other Pacific nut milks.

Jeanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor
Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

P.S. - And yeah, I didn't like Hemp Dream either.

SillyBoo Newbie

I use the Whole Foods 365 brand Rice Milk, and haven't had any problems with it.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,101
    • Most Online (within 30 mins)
      7,748

    Steve Olson
    Newest Member
    Steve Olson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.