Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Amy's?

tmack

By tmack
in Coping with Celiac Disease

Recommended Posts

tmack Newbie
tmack
Posted

This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Piccolo Apprentice
Piccolo
Posted

Trina,

Yes, Amy's got me too. :o It was some time ago. I had a delayed response and the room was spinning for 6 hours. I'm never touching anything by that company again.

Susan

Northern Celiac Newbie
Northern Celiac
Posted
This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

Trina, there can be hidden sources of gluten in amy's products. I know from reasearch and from personal experience with other products. If you can get a copy you need to read a book called dangerous grains. It explains about hidden sources of gluten

ksymonds84 Enthusiast
ksymonds84
Posted
This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

My G.I. warned me about Amy's, his wife and son are celiac and he said they had issue's with Amy's.

6ft6 Newbie
6ft6
Posted

I can count on Amy's to make me sick every time. So now I don't buy the products. I despise the ccompany.

modiddly16 Enthusiast
modiddly16
Posted

I stopped eating Amy's after my first year with the disease (I'm on year 6)...it never failed that every time I ate it I'd get sick. While I appreciate their effort to be "gluten-free"...it still makes me wonder what it is making so many people still sick!

Glamour Explorer
Glamour
Posted

I ate some Amy's gluten-free dinners also and was itchy. But my ankles were swollen also, so I though it was too much salt in them.

I heard that Trader Joes carries some dinners that are made by amy's, don't know if it is true.

No more Amy's for me, too expensive, I only bought them because they were on sale.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

I had a severe reaction immediately after ingesting their products. So yes, I agree - definitely something in those meals!

mysecretcurse Contributor
mysecretcurse
Posted

Yes, Amy's stuff also makes me not feel good. It's been ages but I remember being glutened by them a long time ago. I stay away from ANY processed foods now.

AnneM Apprentice
AnneM
Posted

Yes I have been glutened twice by Amys frozen dinners, It's a shame because they are something quick and tasty to eat. I am not buying them anymore. :(

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Just thought I would chime in to say that I do not get sick from Amy's food BUT I have never really eaten the ones that say "no gluten ingredients." Plus, I also only eat the dairy-free ones.

Mtndog Collaborator
Mtndog
Posted

In the past, I have reacted to Amy's. I contacted them and they were incredibly great to deal with. They sent a sample off to the lab at the University of Nebraska for me to be tested from a batch I reacted to. It came back at 33 ppm.

I now eat their rice crust pizza because it is never a problem for me.

You may react to their products, but at least they are one of the honest, upfront companies that discloses ALL their ingredients and manufacturing processes. The products labeled "no gluten ingredients" do not have gluten but any processed food is subject to CC.

dilettantesteph Collaborator
dilettantesteph
Posted

My son reacted to their rice pizza once. I called them and it had been tested to contain less than 5 ppm gluten. I was disappointed to find out that my son is so sensitive to trace levels of gluten.

Mey Marie Explorer
Mey Marie
Posted
This is the second time I have been glutened by Amy's. I do not say this lightly, After I felt better I ate anything new from that day(wanted to make sure of the source). I have eaten there NO GLUTEN INGREDIENTS frozen meals three times, two of which I was glutened. It was not severe, I was only sick for 2 days, with the lingering gut problems for 8 days. If I get a lot of gluten it will take me out for 5 days or so( plus the lingering gut problems). Just wanted to know if anyone else has had this problem, or is it just me?

I'm wondering if it is some other kind of food that I'm having problems with. I have to watch my lactose, but my symptoms were just like being glutened?

Thanks for any help ;)

Trina

It's not just you. My friend has the same problem with Amy's. It sucks because they really have some great stuff.

Mey Marie Explorer
Mey Marie
Posted
Trina,

Yes, Amy's got me too. :o It was some time ago. I had a delayed response and the room was spinning for 6 hours. I'm never touching anything by that company again.

Susan

That's it. I am going to write the company. I think we all should. This is not OK. If they want to say in business, They need all of us. If they start to lose the people who use celiac.com Then they are losing a large part of there customer base.

tmack Newbie
tmack
Posted
  • Author

Thanks so much for the help, all of you are great. It makes me realize I'm not alone. :D

I think for me the part that bothers me the most is that the labeling (to me) is misleading. I fell like they are purposly trying to mislead you by the way they word it. I don't know about ya'll but it is like gambling, will I get sick, maybe, maybe not. I'm not into rolling the dice!!

dilettantesteph Collaborator
dilettantesteph
Posted

I roll the dice every time I eat anything processed. How does gluten free mean up to 20 ppm gluten?

Mtndog Collaborator
Mtndog
Posted

I think under 20 ppm is impossible to detect via current testing methods.

gaingus Rookie
gaingus
Posted
I heard that Trader Joes carries some dinners that are made by amy's, don't know if it is true.

I have bought Trader Joe's Rice Pasta and Cheese (I think thats the name of it), when I looked at the Powdered cheese envelope, I noticed it was stamped for Amy's product. Course I didn't look until too late. I ended up with the same reaction that I did for the same product with the Amy's label so I don't buy either of those products anymore.

Kathleen Smith Contributor
Kathleen Smith
Posted

I get sick everytime I eat Amys Gluten Free Frozen lunch/dinner and the Soup!!!! I get really nauseous for a couple hours.

I am Gluten free since April but had some issues in August from that took a while to recover from. I was thinking I was getting sick from Amy's b/c my stomach probably isnt healed yet and it couldnt handle anything "processed" b/c AMys is the only pre-prepared meals I eat.

Amy's was my "emergency" food (when I forgot to make my lunch or too late to cook dinner), but if you all are saying it is gluten then I wont buy from them anymore. Its not about just being nauseous its about healing my stomach. .......sneaky.

passionfruit877 Apprentice
passionfruit877
Posted

I like the enchilada meal (the dairy free one) and haven't had a problem. Perhaps there are certain ones that are riskier than others.

Tigercat17 Enthusiast
Tigercat17
Posted

I haven't noticed a reaction either, but I was only eating the frozen mac & cheese. I really liked it! Now I'm afraid to eat it. I definitely won't try the others now. That's really too bad so many people are having a reaction. There must be some gluten in them. I guess gluten free doesn't mean "gluten free." That's just crazy! I do think we should all write and call the company. That's just putting people's health at risk!

Gfresh404 Enthusiast
Gfresh404
Posted

I guess I'll consider myself one of the lucky ones. I have never had a problem with any of Amy's products. I do only eat the gluten-free and non-dairy ones, maybe that has something to do with it?

Cynbd Contributor
Cynbd
Posted

I have been gluten free for more than three years now. Early on I found I had reactions to Amy's and decided to stay away from them. I have a tiny variety of foods that I eat every day, a gluten free kitchen, and as many of you, over a long process of elimination (including never eating at restaurants, or anything that anyone else made), I have not been sick in almost a year, until this week. Over the past two years I probably have been sick only a couple of times.

Over the past couple of months I started eating Amy's again, only the gluten free, dairy free Mexican dishes -- and yesterday I was sick. I think I had a few stomach pangs after eating Amy's over the past couple of months' however, I did not get sick, but yesterday knocked me out and today I am feeling iffy. I am wondering if I have been having mild reactions to Amy's, since I have been so good for so long, and the last meal caught me- I made it up and over into the bad reaction threshold.

It really does concern me that when I am feeling good for so long that I may be slowly poisoning myself with Amy's foods. I will not purchase any more of those convenient meals. I am going to stick with my instincts when it comes to certain foods.

Merry Christmas- Happy Holidays to all!

dilettantesteph Collaborator
dilettantesteph
Posted
I think under 20 ppm is impossible to detect via current testing methods.

When I contacted Amy's to tell them that their rice pizza has glutened my son, they told me that it had been tested to contain less than 5 ppm gluten. The tests that they use test to 5 ppm. That is under 20 ppm. Crispy Green told me by e-mail that they test to 5 ppm, and Tropical Source on label says that they test to 5 ppm. The New Grist beer company told me by e-mail that they have their beer tested to 5 ppm at the University of Nebraska.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.