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Grain Free Diet


Sharon Marie

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jackay Enthusiast

Thanks for all the helpful advise from so many of you.

The reason behind the rotation diet is to give the food time to clear from you system to lesson the chance that you become intolerant to it. Since I am so limited with what I can eat, I'm going to talk to my doctor about this.

As far as the foods I tested intolerant to, it is suggested that I eliminate them for 12-24 weeks before trying them again. I'm to avoid those foods that I showed a mild intolerance to, IF POSSIBLE. I may have to add them back to get more balance and variety in my diet. I'd love to add back some of my favorite fruits and vegetables.

I see my doctor in 10 days so am hoping he can help me out with this.


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jackay Enthusiast

A brainwave hit me and I may have figured out what is causing my additional stomach problems. I wasn't able to buy my normal calcium citrate supplement because it has been unavailable for a couple weeks. I bought the same brand but it has magnesium oxide/citrate in it. I'm thinking that may be the culprit. Hopefully, my regular calcium supplement will be back in the store tomorrow. (My doctor has me taking magnesium bis-glycinate in a much smaller dose than I am getting from the magnesium oxide/citrate.)

Hopefully I'm on to something and it isn't just wishful thinking.

RiceGuy Collaborator

A brainwave hit me and I may have figured out what is causing my additional stomach problems. I wasn't able to buy my normal calcium citrate supplement because it has been unavailable for a couple weeks. I bought the same brand but it has magnesium oxide/citrate in it. I'm thinking that may be the culprit. Hopefully, my regular calcium supplement will be back in the store tomorrow. (My doctor has me taking magnesium bis-glycinate in a much smaller dose than I am getting from the magnesium oxide/citrate.)

Hopefully I'm on to something and it isn't just wishful thinking.

Well now, I think you may have hit upon something there. I don't recall what your stomach issues have been (or if you detailed them), but magnesium oxide is a form which is known for its laxative effect, more so than other types. Then, considering the fact that citric acid will enhance that effect, the calcium citrate will provide the citric acid, and...well, there you go!

jackay Enthusiast

Well now, I think you may have hit upon something there. I don't recall what your stomach issues have been (or if you detailed them), but magnesium oxide is a form which is known for its laxative effect, more so than other types. Then, considering the fact that citric acid will enhance that effect, the calcium citrate will provide the citric acid, and...well, there you go!

The stomach issues really weren't too bad until the past few days. I've had stomach discomfort, mostly in the evening. I've had more BMs but nothing too bad until yesterday it turned into bad D. I think it is just the accumulation of magnesium over the past 5-7 days. I've quit the calcium with magnesium and will see what happens.

Unfortunately, I need to take 2500 mg. calcium daily due to parathyroid issues and have only found one brand that I seem to tolerate. I haven't found it online either. It's frustrating that the store I find it at doesn't stock more and it takes them so long to get it in when they do order it. Hopefully they'll get it in today.

ElitaSue Newbie

I would like to know more about the idea of a grain free diet. Are grains really necessary for our bodies?

Apparently not, my doctor put me on an entirely grain free, sugar free diet. Only protein, mono and diglycerides.

I was diagnosed with Celiacs by an Endocrinologist. I had known for a long time that I had a problem with Gluten and had been on a gluten free diet (using rice, quinoa, millet, aramanth in my diet as substitutes). Yet I was still having an awful time with hypoglycemia, seizures and other health problems - which I thought unrelated to the Celiacs. Turns out every time I have any grain whatsoever, my blood sugar has huge drops, often falling below 40 (very dangerous). It is like my body for some reason thinks anything grain is like pure sugar. Weird. Guess endocrinologists see it a lot.

Been grain free for nearly a year now. It was hard at first, but I really had no other choice - check out the "Specific Carbohydrate Diet". I feel quite a bit better.

Still have to supplement with a lot of vitamins, essential fatty acids, aminos and minerals.

Good luck!

Sue

jackay Enthusiast

Apparently not, my doctor put me on an entirely grain free, sugar free diet. Only protein, mono and diglycerides.

Still have to supplement with a lot of vitamins, essential fatty acids, aminos and minerals.

Good luck!

Sue

Do you take a digestive enzyme?

jerseyangel Proficient

I'm no expert on the subject, but I eat very few grains and little sugar. My digestion works better this way, my weight is normalizing, and my blood pressure is down to a good normal.

I don't cut them completely, maybe once a week or so I'll have gluten-free pizza or something like that. I take a good multivitamin, calcium/D, and separate vitamin D daily.


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Janessa Rookie

I am on a 4 day rotation with all foods I can tolerate, to prevent new intolerances from developing.

you can by sprouted rice at some places like Whole Foods, but one way you can do it cheap is I throw my brown rice in the rice cooker cover with water and add lemon juice about a Tbsp a cup I think (I got this info people posted online mostly from a book called Nourishing Traditions) and let it sit (I close the lid so nothing falls in) for 12-24 hours then pour out most of the water and fill it up to the line with fresh water that my rice cooker suggests for brown rice and cook as normal. This would be a little trickier in a pan because you need to account for the water absorbed while it was soaking.

When I am baking I mix all my flours, sugar and add kefir or buttermilk for the liquid (or a mix of kefir and water basically need enough kefir to let the good bacteria do it's work) and cover with plastic wrap and leave on the counter 12-24 hours to ferment.

It makes your grains much easier to digest

Janessa Rookie

I forgot to add when you are baking you only soak the flours and sugar in the kefir mixture and when they are done soaking then you add the rest of the ingredients and bake as normal.

Things you make like this come out so fluffy and tender it is amazing

jackay Enthusiast

I am on a 4 day rotation with all foods I can tolerate, to prevent new intolerances from developing.

you can by sprouted rice at some places like Whole Foods, but one way you can do it cheap is I throw my brown rice in the rice cooker cover with water and add lemon juice about a Tbsp a cup I think (I got this info people posted online mostly from a book called Nourishing Traditions) and let it sit (I close the lid so nothing falls in) for 12-24 hours then pour out most of the water and fill it up to the line with fresh water that my rice cooker suggests for brown rice and cook as normal. This would be a little trickier in a pan because you need to account for the water absorbed while it was soaking.

Is the lemon juice necessary? I tested severely intolerant to it.

Janessa Rookie

you need something acidic like lemon juice, if you google soaking grains you will find a lot of info from people who know more than me and they might have other suggestions posted

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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