Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Starting Have Few Questions

laurie9141

By laurie9141
in Coping with Celiac Disease

Recommended Posts

laurie9141 Rookie
laurie9141
Posted

several questions. suspect gluten intolerance in my 3 yr old.. am changing diet..how do I make her understand that she cant eat the fun cookies that everyone else is eating in preschool (esp w Valentines parties coming up).? If anyone has a kid in school and its "their day" to bring snaks do I bring gluten free food for everyone? this stuff is expensive. what do others do?

and lastly, her brother (2 year old) doesnt seem to have probs w gluten. but has milk allergy and has intermittent asthma symptoms and treatment.. does anyone know, if asthma (at least symptoms) can be from gluten? Maybe his show up differently? thanks, laurie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


climbmtwhitney Apprentice
climbmtwhitney
Posted

Hi Laurie,

I have treat jars at school for my kids. That way when an unexpected birthday treat comes in, they can choose something that they like from their jar. I take class parties one at a time. I find out what the plan is and then work from there. For example, my son's class is decorating heart shaped sugar cookies this week. So, I'm sending in a Gluten-free Casein-free sugar cookie, Gluten-free Casein-free frosting and special dye free sprinkles for him. My daughter's class is having parents send in treats for the whole class, so I volunteered to send in popcorn in baggies. That way I know she'll have at least one favorite to eat. As far as preschool snack day goes there are inexpensive treats. You can do cut up fruit or something like rice krispie treats made with gluten-free Rice Chex. It IS hard, but you'll find that kids adjust really quickly. I have taught my kids never to whine about what they can't have. And, I always do my best to make sure they don't feel left out. Yes, it's extra work, but I think it's important.

Good luck!

Jillian

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

First, have you had either of them tested for Celiac. If you or your pediatrician have any possible thought that it is Celiac, you're going to want to have the testing done before you remove gluten. The test doesn't work if they aren't eating gluten. Also, this is a strict, sometimes challenging lifestyle and you want to have as much motivation to stay on it as possible.

To answer your questions - when we take treats to school, I always do gluten free for the whole class. There are many options - gluten free crispy rice treats (that would be Rice Krispie treats made with gluten free crispy rice cereal, not mainstream Rice Krispies), Betty Crocker fruit snacks (they even have Valentine shaped ones out now), gluten-free cookies or brownies made by you or even cupcakes, ice cream or popsicles if there is a freezer available, Fruitabu fruit tape (made with real fruit and cool for kids because it's a long wound up thingie).

In my opinion, 3 is too young to really be able to understand. The teacher is going to have to take care of her at preschool. Eventually she'll be able to put it all together, but there are lots of adults who don't get it! And it is made even harder if you give her "look alike" products. Her crispy rice treat looks just like Johnny's Rice Krispie treat. :(

Squirrelflight Rookie
Squirrelflight
Posted

I agree that I would have the bloodtest done before trying the diet. Also, yes, I would have both children tested and try the diet with both. I have mild asthma with gluten. Again it is mild but I notice it and I do carry an inhaler with me as well.

sunnybabi1986 Contributor
sunnybabi1986
Posted

Here is a super good recipe for gluten free cookies using "normal" inexpensive ingredients...you could send some with her to share with her class.

Peanut Butter cookies:

1 cup creamy peanut butter (we use JIF or Skippy)

1 egg

1 cup sugar

1 tsp vanilla

Mix well, roll into a ball and flatten with a fork

Bake at 350 degrees for 10 minutes

laurie9141 Rookie
laurie9141
Posted
  • Author

great answers but triggers another question.. I have to wait a few to maybe more to see my ped if not an emergency... Unless I lie, lol... been having these behavior problems for too long.. ped pulmonologist just threw the now 2 yr old, on meds and said get used to it.. I dont agree. it isnt that often that he wheezes and I dnot want him on steroids to cover anyone's butt. I notice a diff on the 3 yr old when we have little or no gluten... how much is too much? and I wanna start SOON. SO HOW LONG to be off of gluten will screw up tests? I wonder if that's why mine was neg? I had to be fasting for the rest of the tests drawn... so maybe I didnt have gluten in my system? If the ped isnt seeing this first, and the pulmonologist, nor the allergist/surgeon who removed both of their tonsils, WHO AM I GONNA GET TO SEE IT?... AND finally, thank you all for helping me understand... laurie

climbmtwhitney Apprentice
climbmtwhitney
Posted

great answers but triggers another question.. I have to wait a few to maybe more to see my ped if not an emergency... Unless I lie, lol... been having these behavior problems for too long.. ped pulmonologist just threw the now 2 yr old, on meds and said get used to it.. I dont agree. it isnt that often that he wheezes and I dnot want him on steroids to cover anyone's butt. I notice a diff on the 3 yr old when we have little or no gluten... how much is too much? and I wanna start SOON. SO HOW LONG to be off of gluten will screw up tests? I wonder if that's why mine was neg? I had to be fasting for the rest of the tests drawn... so maybe I didnt have gluten in my system? If the ped isnt seeing this first, and the pulmonologist, nor the allergist/surgeon who removed both of their tonsils, WHO AM I GONNA GET TO SEE IT?... AND finally, thank you all for helping me understand... laurie

Laurie,

Only a few days without gluten shouldn't mess up the tests. I didn't realize you hadn't tested your kids yet. You need to....while ON gluten. The gluten-free lifestyle requires 100% dedication. It is life changing for the ENTIRE family. You're going to need ammunition to stick to it. IF gluten is the problem and IF the kids go gluten free before the tests, then you will notice your kids feeling better right away. Then you will have to put them back on gluten for the tests and knowingly "poison" them. In addition, when gluten is the culprit and you remove it, most people's bodies become more sensitive when they do consume it. So, a gluten challenge becomes even more difficult. And, believe me, you will want a definitive answer. You will want full testing. It may not be Celiac. It may be gluten intolerance. It may be a wheat allergy. Or something else entirely.

I know it's really difficult when you think you have the answer and just want to get going. Been there. But it will be worth it to do it right. Hang in there and get the testing.

Jillian

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Squirrelflight Rookie
Squirrelflight
Posted

great answers but triggers another question.. I have to wait a few to maybe more to see my ped if not an emergency... Unless I lie, lol... been having these behavior problems for too long.. ped pulmonologist just threw the now 2 yr old, on meds and said get used to it.. I dont agree. it isnt that often that he wheezes and I dnot want him on steroids to cover anyone's butt. I notice a diff on the 3 yr old when we have little or no gluten... how much is too much? and I wanna start SOON. SO HOW LONG to be off of gluten will screw up tests? I wonder if that's why mine was neg? I had to be fasting for the rest of the tests drawn... so maybe I didnt have gluten in my system? If the ped isnt seeing this first, and the pulmonologist, nor the allergist/surgeon who removed both of their tonsils, WHO AM I GONNA GET TO SEE IT?... AND finally, thank you all for helping me understand... laurie

That's a tough situation and if it were an adult I'd say just do the diet but the fact is children are rarely in full control of their environment. Without an official diagnosis they will not have a clear 'right' to a gluten free diet when at school, etc. That is why I feel the dx is important for children.

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

You might try calling your ped's office and requesting the Celiac blood test. You might luck out and have them be cooperative. Try firm but kind. :) Then you wouldn't have to wait.

mamaw Community Regular
mamaw
Posted

One should be on gluten for at least three months for accurate testing... Some people notice & feel better in a few days without gluten so putting it on the spin-- the other side of the coin. No gluten for several days can alter the test. I'm a seasoned celiac so that is my thought.

There are cookies & cakes , pretzels, candy that we take for our kids at school. I even match the lunch for the day with gluten-free subs. It does require time & planning. I can honestly say our kids have never felt deprived or left out of anything....they even go to CHuckie CHeese for other kids birthday parties. We just take a gluten-free pizza for them. They get to do what all the other kids do....

Stay postive - it does have its rewards.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748
    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Aretaeus Cappadocia · Posted

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.