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Could My Bipolar Be Caused By Celiac?


fitbunni

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fitbunni Newbie

I have bipolar disorder and was wondering if maybe it could be because of celiac? anyone have any experience with this?


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ravenwoodglass Mentor

I had a seizure disorder whose symptoms closely resembled Bipolar. Long lasting 'highs' and horrible crushing lows. No issues with either since I have been gluten free but if glutened the depression hits hard, fast and is over within 24 hours. I was on a very strong antiseizure med for a long time but don't need it now. Celiac doesn't cause everything, I still have an anxiety disorder and PTSD but the bipolar aspect of my brain impact has resolved. Don't know if it will be the same for you. One thing that has to be mentioned is that if you are on meds and you think you may not need them any longer DO NOT stop them on your own suddenly. Talk to your doctor and get his help weaning off of them.

StacyA Enthusiast

Most research points to bipolar being an inherited condition - not 'caused' by anything else including celiac's. (It's not terribly common, yet if one identical twin has bipolar there's a 70% chance the other twin has it. Even though a person is born with bipolar, it usually manifests in late teens or early adulthood.) However celiac disease can cause mood swings and some people may confuse the two on the surface.

Also, a person could have legitimate bipolar that could be worsened if they have celiac's and eat gluten.

Some ways to differentiate between the two: Do the mood swings totally go away on a gluten-free diet - then it may be just celiac. Do the mood swings even out with mood stabilizing medication, regardless of diet - then it may be bipolar. Are there other family members with bipolar - then it may be bipolar.

If you're unsure - get second or even third opinions from people who are familiar with both celiac's and bipolar. Bipolar disorder is often overdiagnosed and often underdiagnosed. If someone truly has bipolar then medication is necessary and very helpful - true bipolar is biochemically caused - not something you can control with willpower or a gluten-free diet.

ravenwoodglass Mentor

Some ways to differentiate between the two: Do the mood swings totally go away on a gluten-free diet - then it may be just celiac. Do the mood swings even out with mood stabilizing medication, regardless of diet - then it may be bipolar.

For me the symptoms did thankfully totally resolve on the diet. And they resolved pretty quickly. I should note that any antidepressant meds or meds for bipolar made me much worse, because I wasn't really bipolar I was celiac.

I am very thankful that the diet took care of those issues. It does make me wonder how often some of us are diagnosed with a mental illness and medicated when a change in diet is what is really needed.

If the diet doesn't have any effect on your symptoms of bipolar then it is likely your bipolar. If you are don't feel defeated but do seek out help whether it is through talk therapy, medication or a combo of both.

ElitaSue Newbie

I have bipolar disorder and was wondering if maybe it could be because of celiac? anyone have any experience with this?

ElitaSue Newbie

I have bipolar disorder and was wondering if maybe it could be because of celiac? anyone have any experience with this?

Hi Fitbunni,

I was diagnosed Bipolar when I was 21 and went through years and years of a litany of medications, counseling and so on with no real relief. Fast forward to age 42 - I began to notice a real correlation between my wicked mood swings and those yummy chocolate donuts with the great icing I loved to eat with everybody at work. I bought a glucose meter an found out about 20 minutes after eating "yummy chocolate donut", nasty mood and panic attack would start - the glucose meter would read 40. I know now that is when I would experience a complex partial seizure. By that point in my "bipolar" illness my doc had thankfully put me on a anti-convulscent drug called Lomotrigine - which helped greatly. After discovering the weird deal with my blood sugar, my GP sent me to see a Endocrinologist who made my Celiac disease diagnosis.

No longer experience the mood swings, but still take Lomotrigine. My Endocrinologist put me on a completely grain-free, sugar free diet. I am so very grateful that I found out. Some of the meds for bipolar are actually worse than the disease. If there is any chance that a diet switch will help, I encourage you to try it out.

Guess many of we Celiacs have had our turn with psychological and neurological problems.

Best of luck!

ElitaSue

masterjen Explorer

I think no one can answer for certain if your bipolar might be caused by (or related to) being gluten-intolerant or having celiac unless you actually try the diet (UNDER STRICT SUPERVISION BY YOUR PSYCHIATRIST AND FAMILY DOCTOR). However, recent research I've seen has found a higher percentage of celiac disease and gluten intolerance in several groups of people with mental and physical ailment compared to the general population: autistics, schizophrenics, people with rheumatoid arthritis, and those suffering from depression. "Google" some of this yourself so you get a good sense of whether you want to believe the research or if you feel it is all just coincidence - it is very interesting, but check into carefully for yourself and come to your own conclusions. Again, if you decide you want to modify your diet or your current treatment regime, make sure it is done with your doctors' supervision.


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ravenwoodglass Mentor

Again, if you decide you want to modify your diet or your current treatment regime, make sure it is done with your doctors' supervision.

I would agree that the doctor needs to be kept in the loop as far as the diet changes go but you really don't need a doctors supervision to try it and see if it helps. If it does help you may need to modify meds that you are on and that should be done in close contact with your doctor but IMHO you don't need a doctors permission to try the diet.

starrytrekchic Apprentice

I have bipolar disorder and was wondering if maybe it could be because of celiac? anyone have any experience with this?

They're completely separate illnesses, but because celiac can affect moods (and people with it can be lacking in certain vitamins/minerals necessary for proper brain functioning), celiac might exacerbate bipolar symptoms.

A gluten free diet might clear up some intermediate mood swings, some mild depression, and some other symptoms you may be associating with bipolar disorder, but it's not going to stop a full on manic or depressive episode.

Also, if I remember right, they're both illnesses that *can* be triggered by an environmental stimulus (emotional trauma, severe physical illness) in a genetically susceptible person...so they may have been triggered by the same thing. It doesn't mean they share any genes in common or one causes the other.

Guest doradomiel

YES

Guest doradomiel

I guess I should elaborate, but I didn't want to sound long winded.

Yes, it could cause you to "seem" Bipolar. If it is Celiac, you would have to stop the gluten and address the deficiency that has caused your brain chemistry to become unbalanced. The main one is usually a B-vitamin deficiency... Calcium and magnesium could be lacking as well.

Talk to a GOOD doctor who wants to get to the bottom of this and not somebody who just wants to keep you on medication for the sake of being able to write a prescription.

  • 2 weeks later...
Skylark Collaborator

I had depression and anxiety caused by what I know now was gluten. I was treated with Prozac, which gave me manic episodes and ended up diagnosed as bipolar and on lithium and depakote.

Six months after going gluten-free the fatigue and depressive episodes stopped. With the help of my psychiatrist I tried going off the meds that were barely working anyway and onto EMPowerPlus and fish oil. I started feeling better after my body adjusted for a couple months and after six months of the regimen I was in the best mental health I had enjoyed in over a decade. My doctor declared me in remission over three years ago.

So in my case celiac -> depression -> SSRIs -> bipolar.

You may have totally different chemistry and physiology and untreated bipolar can wreck your life, so please take my story with a grain of salt.

AlysounRI Contributor

I am very thankful that the diet took care of those issues. It does make me wonder how often some of us are diagnosed with a mental illness and medicated when a change in diet is what is really needed.

I have often wondered the same thing.

But in regards to historical mental illness or how it was labelled.

I once had a friend that suffered from very extreme type 1 diabetes and had very extreme highs and lows.

Her highs were so high that people called the psych ward at times because they thought she was very unstable. Once you knew her or were around her, you could tell when one of these was approaching and could suggest to her that she needed to check her sugar levels and correct them.

But it does make me wonder how many people in psych wards, even in the very near past, were put there because of extreme hyperglycemia or reactions to food allergies.

Food is a form of medication, it may be the best form of medication, once you know what your own body requires, that is!!

~Allison

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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