Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Are You Binned After A Glutening?

Leper Messiah

Recommended Posts

Leper Messiah Apprentice
Leper Messiah
Posted

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.

Three weeks. :(

tictax707 Apprentice
tictax707
Posted

record recovery: one week. record misery: six weeks. average: three weeks. :blink:

bridgetm Enthusiast
bridgetm
Posted

Anyone have the problem of starting to improve after a glutening and then crashing back down again? I had some cross-contamination issues last week and from Wednesday through Sunday or Monday I wasn't feeling well. Really focused on simple foods, was starting to feel better (no acute pain, discomfort). But yesterday my pain started up again and worse than it was a week ago. I don't know if it's a normal recovery or if I ate something in one of those no-motivation, tired, busy, hungry moments.

jenngolightly Contributor
jenngolightly
Posted

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.

1 week.

bluebonnet Explorer
bluebonnet
Posted

about a week for me. :(

tictax707 Apprentice
tictax707
Posted

Anyone have the problem of starting to improve after a glutening and then crashing back down again? I had some cross-contamination issues last week and from Wednesday through Sunday or Monday I wasn't feeling well. Really focused on simple foods, was starting to feel better (no acute pain, discomfort). But yesterday my pain started up again and worse than it was a week ago. I don't know if it's a normal recovery or if I ate something in one of those no-motivation, tired, busy, hungry moments.

I have totally had that problem. It usually happens when I try to introduce foods that my body isn't ready for, and my body says NO WAY Jose... :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eastvangal Newbie
eastvangal
Posted

About a week for me too.

Jessika Newbie
Jessika
Posted

About a week for me too : (

hypersof Apprentice
hypersof
Posted

same problem here for the ups-n-downs! I keep hoping this is going to get more stable soon...on the better side! (I am "only" 6 weeks gluten-free)

seems that when I feel down again, it can last anywhere from 4 days to 2 weeks :(

Sophie

MagpieWrites Rookie
MagpieWrites
Posted

Depends a bit for me - if I'm in pretty good shape beforehand and the stars are completely aligned in my favor? I've managed to shake it off in about 3 days a few times.

If not?

Up to two weeks before I can say with certainty I'm all the way back on the beam. Well... that I can see the beam from where I'm standing!

Lycopene Rookie
Lycopene
Posted

Ugh. I've been glutened 3 times this week due to cross contamination in my kitchen. So it's been non-stop brain fuzz and being bed ridden.

But, for about a year I've been on-and-off gluten free dieting (been at it for about 6 weeks now... even though I've been glutened 3 times this week), and the longest was about 3 weeks for me.

i-geek Rookie
i-geek
Posted

Usually about a week for the worst of it to go (multi-day migraine and multi-day GI problems).

Becks85 Rookie
Becks85
Posted

Usually about a week for me...I start feeling better after a few days but it takes a few more before I feel completely back to normal and can eat properly again.

dhiltonlittle Contributor
dhiltonlittle
Posted

are you all completely down for the count for this long or are you still making it to work during this time?

lynnelise Apprentice
lynnelise
Posted

I have GI issues and am achy all over...plus I break out in a rash. This part last about 2 days. Then I get super fatigued for the next 5 or 6 days.

lynnelise Apprentice
lynnelise
Posted

are you all completely down for the count for this long or are you still making it to work during this time?

I work the whole time, but I have a sit down, low stress job and my own little office so I can look and feel terrible in solitude! lol!

jenngolightly Contributor
jenngolightly
Posted

are you all completely down for the count for this long or are you still making it to work during this time?

Depends on how much I ate. I'm usually out for 3 days. Luckily, for some weird reason, I always tend to get sick toward the weekend. Still, I don't have any sick/vacation time saved up because I'm always taking off for celiac or other intolerance problems. Boo hoo. I wish I could take a vacation.

tictax707 Apprentice
tictax707
Posted

Usually I can go into work and function, but I am miserable, tired, and dragging myself and my raw intestines around. I couldn't afford to take all the time off, but sometimes I do give up and stay home for a day or two when it's at the worst part.

tarnalberry Community Regular
tarnalberry
Posted

for me, about a week. Doesn't stop me from working (either previously, when I was a software engineer, or now, when I just teach yoga), but not only are my symptoms not as severe as many other people's, but I've worked through migraines and many other painful things, so I tend to just deal (not saying exactly how well ;) ) with the pain/discomfort.

kayo Explorer
kayo
Posted

A few days to a week on average. I have RA so I'm always pushing through while fatigued and achy. That's a norm for me. When glutened I get a food poisoning like reaction so that first day or two I feel physically beat up but mentally ok. I do continue to work but I can work from home whenever I want to so those 'dragged behind a bus days' can be spent at home in my pj's. Then there are hours/days that follow where the physical piece is over but the brain fog is so bad I don't really accomplish anything and when I bounce back those days it's like they never happened. My memory is shot during those brain fog days (these are more intense than my general fog brain which I seem to have 24/7). Thank goodness I'm not a surgeon, bus driver or accountant!! :P

i-geek Rookie
i-geek
Posted

are you all completely down for the count for this long or are you still making it to work during this time?

I have to go to work regardless. I'm a grad student and we really only take sick days when we either have a high fever or are vomiting. I took an accidental/CC hit on Wednesday at lunch. I've been making it through the rest of the week doped up on Tylenol (ibuprofen makes the heartburn worse). It blunts the migraine to a dull ache. I can work through a dull ache. Last night I waited too long to take Tylenol and the pain was bad enough that I had the dry heaves, but I was at home by then. I think the headache is on its way out, but now my stomach and intestines are rumbling. I'm prone to C rather than D, which is painful but not as potentially disastrous when I leave the house.

Leper Messiah Apprentice
Leper Messiah
Posted
  • Author

Lol well I am an accountant so I generally am screwed with the brain fog. I sent an email to the wrong person yesterday with some sensitive info...grr.

Hmm it seems gluten hits everyone for at least a few days so it's maybe I'm getting cross contamination. I am fairly careful but the other person in my house eats a normal diet and leaves crumbs about. I'll perhaps be more diligent, keeping my own plate cutlery etc.

Anyone get severe sensitity to lack of carbs? Or is this an effect of being glutening. I seem to be hungry and tired all the time, and only carbs seem to kind of bring me out of zombie mode - the more I eat the more able to function I am.

Jestgar Rising Star
Jestgar
Posted

I'm through it in a couple hours.

Just wanted to point out that not everyone takes days.

i-geek Rookie
i-geek
Posted

Lol well I am an accountant so I generally am screwed with the brain fog. I sent an email to the wrong person yesterday with some sensitive info...grr.

Hmm it seems gluten hits everyone for at least a few days so it's maybe I'm getting cross contamination. I am fairly careful but the other person in my house eats a normal diet and leaves crumbs about. I'll perhaps be more diligent, keeping my own plate cutlery etc.

Anyone get severe sensitity to lack of carbs? Or is this an effect of being glutening. I seem to be hungry and tired all the time, and only carbs seem to kind of bring me out of zombie mode - the more I eat the more able to function I am.

You know, I used to have the brain fog constantly, but now I don't notice it as much when I take an accidental hit. I think that for me it was a cumulative effect. A small hit is enough to pull up the more physical symptoms but doesn't take down the whole brain with it. I wonder about the carb hunger. I remember being hungry ALL the time pre-gluten-free, and I would go and pour myself another bowl of mini-wheats cereal. (sigh) I don't really crave carbs anymore. In fact, if I eat too much sugar or starch, my blood sugar goes wonky. I used to crave them a lot, though.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.