Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trapped In Gluten Prison


Wheat Wacker

Recommended Posts

Wheat Wacker Rookie

I'm new. diagnosed in April. I though It would be easy to avoid gluten foods, you know? no breads, cerals, beer, etc. I never realized the disease was this complex.

It seems managable for someone who lives in a built up city can cook in the safty of there own homes and shop at modern western shops. I however face a diffrent battle.

I'm a Tug Boat Captain, in Egypt. I'm form California, but work for an international supply boat company. I work with an 8 man Egytian crew, there nice guys but there stable is bread, battered fried anything, and baked sweets. we have a cook who I have been trying to communicate my needs with, but I'am still figuring out what I need. After reading about Cross contamination it seems that my battle is hopeless. I work in a remote part of Egypt in the middle of the dessert and join the Vessel for two months at a time then take a month off. There is know way to go to the store, and I can only get limited things from the ships supplier, I'm still working on that. I'am basically trapped in a prsion like compound surounded by gluten.

Being the captain is good becuase I have the power to simpley through everything off the boat and any person that challenges that discion. But I Feel that's the extreme last option. Does any one have any advise on my situation?

Things I have been eating- fruit, vegtable, penut butter, snikers bars, yogurt, hard boiled eggs, edam cheese.

I'm afraid to eat anything cooked becuase the pans are old scoured and I assume gluten infested.

Is it possible to de-glutenize pots and pans... how?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

Wheat Wacker,

It sounds like you're eating better than the crew! Seriously, you may be better off in the long run being forced to eat fruits and veggies. That said, I'm sure they feel a lot more full, and it sounds like it's hard to put together a "balanced" meal.

It's hard to respond since I don't know what you have access to. Can you get ahold of canned goods? If so, maybe sardines or kippers from the can, canned soups (which you could just ask the cook to heat up in a pot), ethnic foods in a can, like thai or indian meals?

Sounds like this is a learning experience, albeit a painful one. Next time you ship out, you'll be able to prepare better. You can purchase clean pots ahead of time, and figure out what food to bring on board.

Good luck!

Wenmin Enthusiast

Try the website below. I ran across this recently and hope it helps...

www.liveglutenfreely.com

click on the recipes link. It has a plenty of recipes to choose from...

As for the pots and pans, try scrubbing by hand and then putting in the dishwasher for a cycle before each use...until you can get your own set.

Wenmin

Skylark Collaborator

How bad shape are the pots in? Can you give them a good scrub with steel wool and the strongest soap you can find? Also, how gluten-sensitive are you? It's kind of unusual to be so gluten-sensitive that residue on a freshly-scrubbed metal pot is troublesome. Then you just need to be sure that your cook knows to use a separate, clean spoon in something he's trying to make gluten-free.

If you can get clean pots, I'm sure you can find rice and beans to add to your diet. Aren't chickpeas and lentils popular in that part of the world? That should give you a little balance to go with the fruits, vegetables, and eggs, and cheese. Hummus with veggies or rice cakes is a gluten-free staple even in this part of the world!

Mack the Knife Explorer

Rice, legumes and vegetables are also staples of Egyptian food. I cook a lot of North African food and usually it's just a matter of avoiding bread and pastry recipes and substituting rice for couscous. Does your cook do Tajines? That's sort of a slow cooked stew. If it's served with rice it should be gluten-free.

I think you need to embrace rice. Maybe you could buy one pot that is purely for your use. Tinned legumes would also be a good idea. If you mix them with rice they become a complete protein and can replace meat in your diet if necessary. Tinned vegetables may also help.

As for dessert, most Egyptian sweets are based on Filo pastry or Semolina so you need to avoid those. But Egyptians do a great traditional rice pudding. Maybe see if your chef can make one.

Mack the Knife Explorer

Also, rice keeps very well in the fridge for a few days. I often cook up a big pot of rice and put most of it in the fridge. That way I can graze off it during the week. You can have it cold with beans, salad, canned fish or hard boiled eggs; Fry it up with onions and peas etc to make fried rice; toss it into the pot when you are heating up leftovers, or mix it with milk or eater and cook it as porridge for breakfast.

Yoghurt is really nice when mixed with hot rice.

I'll have a look at some of my North African/Middle Eastern cookbooks when I get home and see if anything else occrs to me.

Wheat Wacker Rookie

Thank you all for the repley's its been helpful. Yes they eat alot of beans, and rice, I actualoly got my hands on some brown rice, which is crazy. I ate really healthy before I got sick, the only gluten I really ate was from occational bread or pasta but mainly from muisli/granola that I would eat daily. I have always eaten alot of friuts and vegtables, I'am just worried about the cross contamination thing, if there's bread crumbs on the counter/cutting board, knife, could that make me sick. I'am not sure how senestive I'am yet since I'am newly diaganosed. I'm and Ex fisher man, so naturally there is a constant supply of freash fish on the boat, but the Egyptians insist on battering it which I never eat anyway. I have just been worried about the pots and pans and cross contamination,even if it's boiled or baked.

Hummus is my favorite, I have worked with 4 or five 5 diffirent cooks, here some of them very good, yet when I ask about hummus everbody looks at me funny? know body know hoew to make it. They do make a tahina galic sauce simlar to hummus with no chickpeas, it's good and I think gluten free unless the CC again. Again thanks for the advice, I wasn't sure if Gluten could survive a soap wash or not, that make me feel better, like I said I'am working on Implementing a system for my food and trying to get more stand by gluten free foods.

Thanks again


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mack the Knife Explorer

The safest and easiest way for you to eat fish would be to seal a piece tightly in aluminium foil with some butter or olive oil. Then just toss it in the oven on a lowish heat for about 25 mins. Then it's done. No cc issues and heaps healthier than battered fish.

It takes very minimal effort so it shouldn't inconveience your cook too much. Sometimes I put other stuff in the foil with the fish - like green beans, spinach, carrots or pesto. They cook together just fine.

Or you can fry your fish in a frying pan on a piece of foil. That would solve the cc issue.

Hommus is traditionally gluten free. Ingredients are usually chickpeas, tahini, garlic, lemon juice, olive oil and maybe a few spices. Tahini sauce is made from the same ingredients but without the chickpeas. They should both be fine as long as they are made from scratch.

Wheat Wacker Rookie

I, have been trying to get pots and pans for a month but appreantly my health is not that important to this comapany. I was diagonsed with Celiac right before I left and unforutntly, I have to travel Internationaly to work, due to weight restrictions I can't bring much back. I did have the foresight to run by a health foods store and buy a bunch of gluten free bars and stuff, which I already ate. I also bought Some powdered super friuts and greens mixes and protien shake mixs, all gluten free of course, so I had some sort of nutrients to fall back on. I was hopeing to have things sorted by now, but It just keeps getting more complicated the more I research. My next step is to make standing orders for my Cook in regards to the galley.

So far it reads:

The Capt. Has a Disease that will cuase him to become ill if he eats even tiny amounts of bread flour pasta. The following are his orders:

1. Keep seprate plates, bowls, silverware, pots and pans for the Capt.

2. Wash these plates, Bowls, Silverware, pots and pans, with a seprate clean sponge and soap/bleach

3. When preparing Captains food there will be no flour or bread in the cooking area.

4. Do not touch or handle flour or bread when preparing the capt. food

5. Use a separate clean cutting board an knife when preparing ingredients, no flour, no bread crumbs.

If these orders are not followed all bread, flour and pasta will be removed form the vessel.

So that should be a good start, please any comments, or If I left anything out????

\Of course I will have to get this translated into Arabic so he can read it.

Thanks

prisskitty Rookie

One suggestion. When you get off of the ship, go to the store and buy a microwave (small) for your cabin. (I think microwaves work in ships lol) Or, get a small rice cooker/crockpot.

Stock up on instant rice and steam-in-bag veggies. These things last forever! And, for meat, eat canned tuna fish and chicken.

The other items you listed are good.

But, you may very well have to get a designated pan in the kitchen and just order that nobody cooks on it, only you.

These reason I suggested instant rice was because if you're capn, you're going to be busy and won't have much time to cook.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,826
    • Most Online (within 30 mins)
      7,748

    Martis
    Newest Member
    Martis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.