Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Since Going Gluten Free....


pues

Recommended Posts

pues Rookie

since going gluten free i have regained a non bloated stomach, stomach pains greatly lessened, lost 2lbs, feeling of wellbeing has increased greatly... all in only 6 weeks (been CCed a few times)

so tell me what has happened to you for the better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kitgordon Explorer

I only started 3 days ago, and my stomach feels a bit better. Thanks for sharing - that makes me hopeful!

Jean'sBrainonGluten Newbie

I get fewer migraines and my allergies and acne are less severe. Also, I can think more clearly.

knittingmonkey Newbie

since going gluten free i have regained a non bloated stomach, stomach pains greatly lessened, lost 2lbs, feeling of wellbeing has increased greatly... all in only 6 weeks (been CCed a few times)

so tell me what has happened to you for the better.

In the three weeks since being diagnosed celiac and starting my gluten-free life I have lost two very embarrassing G.I. symptoms, have more energy, have more hope, AND have lost a bit of the bloat over the upper abdomin. (Been CCed at least twice.)

GlutenFreeManna Rising Star

Wow, great idea for a positive thread! Since going gluten free....

I went from looking like I was pregnant to having a waistline again, the bloat is gone and I need to buy new (smaller) pants!

I went from being almost bedridden with joint pain and fatigue to being able to do household chores again (who knew being able to do the laundry and the dishes could make me so happy :) Oooh and an added side benefit I can open jars and bottled water again on my own..yes I was so weak six months ago I couldn't open a bottle of water on a bad day.

My mind used to be in a fog and my short term memory was terrible...now I'm as sharp as a tack...most days anyway.

I can drive again! I was restricted from driving by my doctor for a few months because I kept falling asleep at random times (scary, I know) They did every sleep test, brain scan, heart test etc, the extreme sleepiness only stopped when I stopped the gluten. I actually took a 15 hour road trip with my husband last month. He still did more driving than me, but it was so great to be able to drive for a few hours without getting sleepy.

I'm sure there are many more benefits, but these were the first ones I thought of.

MagpieWrites Rookie

since going gluten free i have regained a non bloated stomach, stomach pains greatly lessened, lost 2lbs, feeling of wellbeing has increased greatly... all in only 6 weeks (been CCed a few times)

so tell me what has happened to you for the better.

Let's see....

Lost 90+ pounds, (I'm still a bit stunned over this - I knew I had some fluff, and I knew being tall meant I could hide more than the average bear... but 90 pounds? Just weird! :P) not ONE desperate sprint to the bathroom in months (well. Not one due to celiac stomach troubles. Long car rides and stupid purchases of HUGE water bottles don't count lol), skin is clearing up, the horrible rash I would get on my chest (equal to a 2nd to 3rd degree burn at times over the years) is completely gone, and for the first time in 30 years of living - I FEEL good. Getting active, enjoying life far more.

chere1020 Newbie

Let's see....

Lost 90+ pounds, (I'm still a bit stunned over this - I knew I had some fluff, and I knew being tall meant I could hide more than the average bear... but 90 pounds? Just weird! :P) not ONE desperate sprint to the bathroom in months (well. Not one due to celiac stomach troubles. Long car rides and stupid purchases of HUGE water bottles don't count lol), skin is clearing up, the horrible rash I would get on my chest (equal to a 2nd to 3rd degree burn at times over the years) is completely gone, and for the first time in 30 years of living - I FEEL good. Getting active, enjoying life far more.

Wow, you and I have a LOT in common, I have lost 73lbs. No more horrible sprints to the bathroom (unless you count that I drink a LOT of tea :-). The horrible itchy mess that was my buttocks has cleared up and so have the other spots that the dr told me was old age "barnicles" grrrrr. I am going to go on vacation for the first time in three years and am going to try and not be sick, even if I get "wheated" (I am guessing that is what you all call CCd). The last 3 out of 4 vacations I was rushed home and the last one I had to have meds called into me in another state because I was violently ill. I leave for Maine in two days and thou I got into something today (it was in green tea of all things) I should be better by than.

Thanks for letting me share.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast



  • Realized that actually, I was mildly bloated and am no longer.
  • Pretty close to digesting fat again (yea!!) and concurrent return of ability to not be close to a bathroom for the first 4 hours of the morning. Like, I could go hiking!
  • Greatly reduced acid reflux w/ no meds.
  • Significantly decreased tummy pain.
  • Probably decreased joint pain (this was variable, still a little hard to tell)

Still waiting for the fatigue to truly resolve, but probably still being contaminated some.

Two weeks gluten-free (round two).

haleym Contributor

since going gluten free i have regained a non bloated stomach, stomach pains greatly lessened, lost 2lbs, feeling of wellbeing has increased greatly... all in only 6 weeks (been CCed a few times)

so tell me what has happened to you for the better.

I am going on 9 months gluten-free and would not go back to eating gluten again. I lost persistent stomach pain and bloating, and some other embarassing GI stuff. My acne has started to get better, thank GOD!, and I have saved money because I have been eating home-made lunches for the last months. Ive accidentaly eaten gluten once, and it has been a reminder of what life was like in the past. Im a massage therapist, and it was NO fun to have sudden pain or flatulence (!) in the middle of a session. That SUCKED. No more of that! YAY!

quincy Contributor



  • Realized that actually, I was mildly bloated and am no longer.
  • Pretty close to digesting fat again (yea!!) and concurrent return of ability to not be close to a bathroom for the first 4 hours of the morning. Like, I could go hiking!
  • Greatly reduced acid reflux w/ no meds.
  • Significantly decreased tummy pain.
  • Probably decreased joint pain (this was variable, still a little hard to tell)

Still waiting for the fatigue to truly resolve, but probably still being contaminated some.

Two weeks gluten-free (round two).

I am only about 4 weeks into being gluten-free and so far the bloating has disappeared and some of the reflux is gone

however, I still get sick from fatty foods. Do most newly diagnosed celiacs have trouble with fatty foods even ones such as olive oil if used too much and salmon or tuna packed in its own oils?

i-geek Rookie

I get fewer migraines and my allergies and acne are less severe. Also, I can think more clearly.

Yes, this! Usually at this time of year I have to take daily allergy meds and those never took care of all the symptoms, just dulled them enough that I could function. 5 months gluten-free, I maybe take two doses of Alavert per week and that's more as a preventative rather than in response to symptoms. I've never in my life had such an easy spring, allergy-wise. And the daily headaches- gone.

Also, I can eat dairy again. I ordered a mocha in a coffee shop the other night, took only one lactase pill, drank about 3/4 of it, and had no problems. Guys, this is huge. A few months ago, three lactase pills wouldn't have kept me from needing to run to the bathroom after a few swigs (I know- I tried it). I doubt I'll ever again be a regular milk drinker (I've been mildly lactose intolerant since childhood so I got out of the habit) but it's nice not to have to worry about a small amount sending me straight to the bathroom.

chere1020 Newbie

I am only about 4 weeks into being gluten-free and so far the bloating has disappeared and some of the reflux is gone

however, I still get sick from fatty foods. Do most newly diagnosed celiacs have trouble with fatty foods even ones such as olive oil if used too much and salmon or tuna packed in its own oils?

Yes, this is me too, I cant eat fatty foods, they make me sick. Also I have to be careful with cheese of all things, can drink milk and eat yogurt but cheese really does me in. I think being a celiac means you need to figure out what makes your tummy happy and what doesnt. :-)

psawyer Proficient

Many celiacs have difficulty with certain foods during the initial stages of the diet. If you have intestinal damage, it takes time to heal. Until it does, some things may cause a reaction which has nothing to do with gluten.

WheatChef Apprentice

Acne stopped, hair loss stopped (and has finally started to regrow!), dermatographism almost completely gone, energy improved, chronic sinusitis much less severe, don't run out of energy half way through a workout anymore, lactose intolerance gone, anxiety gone, brain fog gone, increased flexibility, increased drive, hypoglycemia stopped, insomnia stopped and my ab muscles no longer disappear after breakfast!

srfjeld Apprentice

Also doing a Candida Cleanse for 12 weeks but since quitting gluten 3 weeks ago I've noticed increased energy, less joint pain, getting my mind back (no more brain fog and able to form complete sentences without forgetting words and thoughts halfway through -that was soooo frustrating!), the bloat is GONE, more normal bathroom sessions, have lost 14 lbs so far, and the rash that a doc once told me "looked" like herpes on my lower back but I now know is dermatitis herpetiformis is now gone! I could have been diagnosed 12 years ago if the doctor would have tested me instead of just looking at it and giving me her opinion. It's been nice and I can't wait to reap more benefits... Oh, and as an added bonus, I'm really liking the girl I see in the mirror these days. I've been getting compliments I have gotten in 10 years!

sunnybabi1986 Contributor

Gluten free for 7 months (has it really been that long?):

-No constant nausea anymore

-No more stomach cramps and pain!! :)

-Able to stay awake during the day, although still fighting some fatigue

-No more joint pain and body aches, Hooray!!

-Finally starting to gain a little bit of weight (I'm very underweight)

Hooray for gluten free!! Love this thread, by the way! Very encouraging!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    2. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    3. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    5. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,463
    • Most Online (within 30 mins)
      7,748

    The Yellow Rose
    Newest Member
    The Yellow Rose
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      What exactly are you taking from doterra? 
    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.