Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Since Going Gluten Free....

pues

By pues
in Coping with Celiac Disease

Recommended Posts

pues Rookie
pues
Posted

since going gluten free i have regained a non bloated stomach, stomach pains greatly lessened, lost 2lbs, feeling of wellbeing has increased greatly... all in only 6 weeks (been CCed a few times)

so tell me what has happened to you for the better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kitgordon Explorer
kitgordon
Posted

I only started 3 days ago, and my stomach feels a bit better. Thanks for sharing - that makes me hopeful!

Jean'sBrainonGluten Newbie
Jean'sBrainonGluten
Posted

I get fewer migraines and my allergies and acne are less severe. Also, I can think more clearly.

knittingmonkey Newbie
knittingmonkey
Posted

since going gluten free i have regained a non bloated stomach, stomach pains greatly lessened, lost 2lbs, feeling of wellbeing has increased greatly... all in only 6 weeks (been CCed a few times)

so tell me what has happened to you for the better.

In the three weeks since being diagnosed celiac and starting my gluten-free life I have lost two very embarrassing G.I. symptoms, have more energy, have more hope, AND have lost a bit of the bloat over the upper abdomin. (Been CCed at least twice.)

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Wow, great idea for a positive thread! Since going gluten free....

I went from looking like I was pregnant to having a waistline again, the bloat is gone and I need to buy new (smaller) pants!

I went from being almost bedridden with joint pain and fatigue to being able to do household chores again (who knew being able to do the laundry and the dishes could make me so happy :) Oooh and an added side benefit I can open jars and bottled water again on my own..yes I was so weak six months ago I couldn't open a bottle of water on a bad day.

My mind used to be in a fog and my short term memory was terrible...now I'm as sharp as a tack...most days anyway.

I can drive again! I was restricted from driving by my doctor for a few months because I kept falling asleep at random times (scary, I know) They did every sleep test, brain scan, heart test etc, the extreme sleepiness only stopped when I stopped the gluten. I actually took a 15 hour road trip with my husband last month. He still did more driving than me, but it was so great to be able to drive for a few hours without getting sleepy.

I'm sure there are many more benefits, but these were the first ones I thought of.

MagpieWrites Rookie
MagpieWrites
Posted

since going gluten free i have regained a non bloated stomach, stomach pains greatly lessened, lost 2lbs, feeling of wellbeing has increased greatly... all in only 6 weeks (been CCed a few times)

so tell me what has happened to you for the better.

Let's see....

Lost 90+ pounds, (I'm still a bit stunned over this - I knew I had some fluff, and I knew being tall meant I could hide more than the average bear... but 90 pounds? Just weird! :P) not ONE desperate sprint to the bathroom in months (well. Not one due to celiac stomach troubles. Long car rides and stupid purchases of HUGE water bottles don't count lol), skin is clearing up, the horrible rash I would get on my chest (equal to a 2nd to 3rd degree burn at times over the years) is completely gone, and for the first time in 30 years of living - I FEEL good. Getting active, enjoying life far more.

chere1020 Newbie
chere1020
Posted

Let's see....

Lost 90+ pounds, (I'm still a bit stunned over this - I knew I had some fluff, and I knew being tall meant I could hide more than the average bear... but 90 pounds? Just weird! :P) not ONE desperate sprint to the bathroom in months (well. Not one due to celiac stomach troubles. Long car rides and stupid purchases of HUGE water bottles don't count lol), skin is clearing up, the horrible rash I would get on my chest (equal to a 2nd to 3rd degree burn at times over the years) is completely gone, and for the first time in 30 years of living - I FEEL good. Getting active, enjoying life far more.

Wow, you and I have a LOT in common, I have lost 73lbs. No more horrible sprints to the bathroom (unless you count that I drink a LOT of tea :-). The horrible itchy mess that was my buttocks has cleared up and so have the other spots that the dr told me was old age "barnicles" grrrrr. I am going to go on vacation for the first time in three years and am going to try and not be sick, even if I get "wheated" (I am guessing that is what you all call CCd). The last 3 out of 4 vacations I was rushed home and the last one I had to have meds called into me in another state because I was violently ill. I leave for Maine in two days and thou I got into something today (it was in green tea of all things) I should be better by than.

Thanks for letting me share.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sb2178 Enthusiast
sb2178
Posted



  • Realized that actually, I was mildly bloated and am no longer.
  • Pretty close to digesting fat again (yea!!) and concurrent return of ability to not be close to a bathroom for the first 4 hours of the morning. Like, I could go hiking!
  • Greatly reduced acid reflux w/ no meds.
  • Significantly decreased tummy pain.
  • Probably decreased joint pain (this was variable, still a little hard to tell)

Still waiting for the fatigue to truly resolve, but probably still being contaminated some.

Two weeks gluten-free (round two).

haleym Contributor
haleym
Posted

since going gluten free i have regained a non bloated stomach, stomach pains greatly lessened, lost 2lbs, feeling of wellbeing has increased greatly... all in only 6 weeks (been CCed a few times)

so tell me what has happened to you for the better.

I am going on 9 months gluten-free and would not go back to eating gluten again. I lost persistent stomach pain and bloating, and some other embarassing GI stuff. My acne has started to get better, thank GOD!, and I have saved money because I have been eating home-made lunches for the last months. Ive accidentaly eaten gluten once, and it has been a reminder of what life was like in the past. Im a massage therapist, and it was NO fun to have sudden pain or flatulence (!) in the middle of a session. That SUCKED. No more of that! YAY!

quincy Contributor
quincy
Posted



  • Realized that actually, I was mildly bloated and am no longer.
  • Pretty close to digesting fat again (yea!!) and concurrent return of ability to not be close to a bathroom for the first 4 hours of the morning. Like, I could go hiking!
  • Greatly reduced acid reflux w/ no meds.
  • Significantly decreased tummy pain.
  • Probably decreased joint pain (this was variable, still a little hard to tell)

Still waiting for the fatigue to truly resolve, but probably still being contaminated some.

Two weeks gluten-free (round two).

I am only about 4 weeks into being gluten-free and so far the bloating has disappeared and some of the reflux is gone

however, I still get sick from fatty foods. Do most newly diagnosed celiacs have trouble with fatty foods even ones such as olive oil if used too much and salmon or tuna packed in its own oils?

i-geek Rookie
i-geek
Posted

I get fewer migraines and my allergies and acne are less severe. Also, I can think more clearly.

Yes, this! Usually at this time of year I have to take daily allergy meds and those never took care of all the symptoms, just dulled them enough that I could function. 5 months gluten-free, I maybe take two doses of Alavert per week and that's more as a preventative rather than in response to symptoms. I've never in my life had such an easy spring, allergy-wise. And the daily headaches- gone.

Also, I can eat dairy again. I ordered a mocha in a coffee shop the other night, took only one lactase pill, drank about 3/4 of it, and had no problems. Guys, this is huge. A few months ago, three lactase pills wouldn't have kept me from needing to run to the bathroom after a few swigs (I know- I tried it). I doubt I'll ever again be a regular milk drinker (I've been mildly lactose intolerant since childhood so I got out of the habit) but it's nice not to have to worry about a small amount sending me straight to the bathroom.

chere1020 Newbie
chere1020
Posted

I am only about 4 weeks into being gluten-free and so far the bloating has disappeared and some of the reflux is gone

however, I still get sick from fatty foods. Do most newly diagnosed celiacs have trouble with fatty foods even ones such as olive oil if used too much and salmon or tuna packed in its own oils?

Yes, this is me too, I cant eat fatty foods, they make me sick. Also I have to be careful with cheese of all things, can drink milk and eat yogurt but cheese really does me in. I think being a celiac means you need to figure out what makes your tummy happy and what doesnt. :-)

psawyer Proficient
psawyer
Posted

Many celiacs have difficulty with certain foods during the initial stages of the diet. If you have intestinal damage, it takes time to heal. Until it does, some things may cause a reaction which has nothing to do with gluten.

WheatChef Apprentice
WheatChef
Posted

Acne stopped, hair loss stopped (and has finally started to regrow!), dermatographism almost completely gone, energy improved, chronic sinusitis much less severe, don't run out of energy half way through a workout anymore, lactose intolerance gone, anxiety gone, brain fog gone, increased flexibility, increased drive, hypoglycemia stopped, insomnia stopped and my ab muscles no longer disappear after breakfast!

srfjeld Apprentice
srfjeld
Posted

Also doing a Candida Cleanse for 12 weeks but since quitting gluten 3 weeks ago I've noticed increased energy, less joint pain, getting my mind back (no more brain fog and able to form complete sentences without forgetting words and thoughts halfway through -that was soooo frustrating!), the bloat is GONE, more normal bathroom sessions, have lost 14 lbs so far, and the rash that a doc once told me "looked" like herpes on my lower back but I now know is dermatitis herpetiformis is now gone! I could have been diagnosed 12 years ago if the doctor would have tested me instead of just looking at it and giving me her opinion. It's been nice and I can't wait to reap more benefits... Oh, and as an added bonus, I'm really liking the girl I see in the mirror these days. I've been getting compliments I have gotten in 10 years!

sunnybabi1986 Contributor
sunnybabi1986
Posted

Gluten free for 7 months (has it really been that long?):

-No constant nausea anymore

-No more stomach cramps and pain!! :)

-Able to stay awake during the day, although still fighting some fatigue

-No more joint pain and body aches, Hooray!!

-Finally starting to gain a little bit of weight (I'm very underweight)

Hooray for gluten free!! Love this thread, by the way! Very encouraging!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.