Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions From Me, Imagine That!

conniebky

Recommended Posts

conniebky Collaborator
conniebky
Posted

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar!

Tootsie Roll Midgies--no gluten in the facility! ;)

One more question, how long did most of you all go with symptoms before you finally figured it out?

20 freakin' years :angry: Seriously.

Lisa Mentor
Lisa
Posted

BUT HERE'S THE LOW DOWN:

Don't depend on lists for your information, many can be out of date.

Learn to read labels - it will be your ultimate safe guard and control in your hands. (ie. you have

no one to blame but yourself :blink: )

Call companies to verify ingredient status if in doubt.

Don't rely on internet information to keep you safe, use multiple sources. If someone said, a product made them sick, does not mean it was gluten - i.e,not all sick feeling lead to a gluten exposure.

If something made you sick, don't eat it again...or at least not for a while, when you can precisely test a potential issue.

If you have a question about a product - Google the product name and - gluten free... you would be amazed what you can find.

Learn your system, listen to your body.

AND most of all, a mistake won't kill you!!!

....The End :D

Open Original Shared Link

Here is last years Candy List - they put this out every year just prior to Holloween.

pues Rookie
pues
Posted

jelly bellies are gluten free and delicious

2 years with symptoms

WheatChef Apprentice
WheatChef
Posted

Cut carrots, now gluten free!

concernedmamma Explorer
concernedmamma
Posted

I believe Mike and Ike's say gluten free right on the box (my son is only 2 months gluten free, but we have had birthday parties and goody bags to figure out! ) :unsure:

RoseTapper Newbie
RoseTapper
Posted

There are actually lots of regular candies that we can eat; for example, Reese's Peanut Butter Cup, Dark Milky Way, Payday, Junior Mints, Hershey's chocolate, See's Candies, Almond Joy, etc. There's a full list on Dr. Holland's gluten-free list:

Open Original Shared Link

You'll find that many candies are gluten free--I have no problem finding sweets.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kpryan Apprentice
kpryan
Posted

SKITTLES!!! My fave and so yummy!! Only the fruit and cinammon Mike and Ike's are gluten-free...not the licorice ones....

I've always had gastro symptoms my whole life (34 years) but they really intensified after I had my first daughter at 30....been gluten-free for 2 years now...and dairy free for 6 months.

luvs2eat Collaborator
luvs2eat
Posted

Wheat in Twizzlers cracks me up! What's the purpose??

I only had symptoms for several months before finding out it was celiac... I was lucky, I guess. I could have used a little of that "unexplained weight loss" tho... :blink:

sa1937 Community Regular
sa1937
Posted

Wheat in Twizzlers cracks me up! What's the purpose??

Lots of licorice contains wheat. Lots of ingredients in a lot of products make no sense (like wheat in chicken and beef broth, for example). That's why we have to major in "Label Reading 101" ph34r.gif

sa1937 Community Regular
sa1937
Posted

There are actually lots of regular candies that we can eat; for example, Reese's Peanut Butter Cup, Dark Milky Way, Payday, Junior Mints, Hershey's chocolate, See's Candies, Almond Joy, etc. There's a full list on Dr. Holland's gluten-free list:

Open Original Shared Link

You'll find that many candies are gluten free--I have no problem finding sweets.

This list is much more up-to-date: Open Original Shared Link

The Glutenator Contributor
The Glutenator
Posted

I miss licorice all sorts! But sweet tarts and most of the maynards candies (Cherry Blasters, Sour Patch Kids, Sour Patch Keys, Gummie Worms, Gummie Bears, Fuzzy Peach, Swedish Berries, Swedish Fish, Wild Strawberries, Wine Gums, Jujubes, Gum Drops) are examples of some good gluten free candy options.

SwimmingUpstream Newbie
SwimmingUpstream
Posted

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!

Unfortunately, there is no shortage of sweets that are gluten free. I eat Snickers, 3 Muskateers, Reeses PB Cups, Starburst, Skittles, M&M's, Smarties, Tootsie Rolls. I also gained 50 pounds in one year after being diagnosed. I've lost 10 of those now, 40 more to go. My advice is to stay away from the sweets because your body is in starvation mode and they will turn directly to fat. Also, the sugar is so addictive, it's hard to stop once you get going. I found that the sick to my stomach feeling I used to get after eating anything kept me from eating too much. It was actually the Celiacs and now I feel much better, I also never get that feeling that keeps me from continuing to eat. I wish someone would have warned me at the beginning how easy it would be to gain weight.

I went for four weeks with diarhea till I went to the doctor. I thoght I had a 'bug' that just wouldn't go away. I had already been diagnosed with type 2 diabetes and they were telling me I needed to gain weight. That is when they found the Celiacs. Well I guess they're not telling me to gain weight anymore.

Cinderella10 Newbie
Cinderella10
Posted

I have an undying passion for Hot Tamales. :) Yum.

Korwyn Explorer
Korwyn
Posted

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!

M&M are gluten-free. And it was about 20 years for me too.

  • 5 months later...
Jonathon's dad Newbie
Jonathon's dad
Posted

This is my first post, I just want to say thank you to everyone here!

You are all helping each other and me. I feel much better about being able to trust the labeling on some of the Halloween candy my son was so excited to get.

Also hearing how many of you were not diagnosed quickly, I am happy my son was diagnosed so quickly (at 3 years old)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir.
    2. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    3. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    5. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,360
    • Most Online (within 30 mins)
      7,748
    Known1
    Newest Member
    Known1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.