Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Coffee The Problem


Wp1234

Recommended Posts

Wp1234 Newbie

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



motif Contributor

I

looking4help Apprentice

I agree. 10 cups is the problem. (Unless you have an allergy to coffee and that's a whole different discussion.)

What do you use to sweeten your coffee? I found that milk was my issue. I have cut out the milk in everything until I heal and then I will attempt it again. Your intestines may be so damaged it can't handle the milk.

Also, going gluten free doesn't heal you instantly. It took a long time to damage your insides and it can take a while to heal them as well. Be prepared for the ups and downs of healing. I am only a few months into my gluten free and still have what you are calling relapses.

You are in the right place though for advice and just plain ole support. This board is full of caring people!

coffee or tea is not a problem but 10 cups a day is a problem, especially when you sweeten them or drink with milk.

Besides "relapse" is normal because you can react to grains even few days after eating something. BTW drinking decaf makes no sense and is more bad for you then regular.

AlysounRI Contributor

Hi WP:

That is a lot of coffee!!

Even though the coffee is decaf, it tends to be very acidic and it can irritate your stomach.

I had to give up any kind of coffee. It does awful thing to my stomach and digestive system.

I drink decaf indian spice tea now and never have a problem.

Do you drink decaf tea, and if you do does it bother you as well??

lucia Enthusiast

Yeah, that's a lot of coffee. The acidity in coffee can cause acid reflux which I've heard is very painful.

An alternative - if you're not ready to give up caffeine entirely - is green tea. It has a quarter of the caffeine of coffee, it's not acid, and it's got a lot of antioxidants. Even so, though, 10 cups a day of green tea would still be a lot.

Maybe adopting a water habit would be a good idea. Are you getting 6-8 cups of water a day?

K8ling Enthusiast

I drank coffee like a madwoman after my son was born and...well...it was causing a lot of problems I didn't even connect. I suggest switching to tea (I drink Earl Gray in the morning, green the rest of the day) and at least seeing if it helps.

T.H. Community Regular

Question on how you make your coffee/tea.

Do you use tea bags or those coffee equivalent ones, where they are in sealed pouches? Some of those can be sealed with gluten and could be glutening you.

Have you double checked your coffee brand for gluten? I know some brands have gluten in them, like Teeccino brand has barley in it, if I remember right.

Same question with the tea - we just zapped ourselves the other day because a chamomile tea had 'oatstraw,' and that seemed to have some gluten contamination issue.

I have no idea about coffee filters, but I wonder if it's possible that coffee paper filters might have the same issue as some tea bags and some may be sealed with gluten? I've never heard of this being an issue, but it might be worth a little research.

Also, I know you are on a gluten free diet, but I didn't know how much research you've been able to do yet on non-food sources of gluten? Chapstick and lipstick is a big gluten source, whether on your lips or on someone whom you kiss. Or if your shampoo has gluten and you get any in your mouth when you rinse it from your hair, stuff like that.

All that said - when I went gluten free, I suddenly started reacting to other foods that I had never noticed a reaction to, and one of them WAS coffee, so that could definitely be an issue. :)

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TSC1 Newbie

My advice as a recently diagnosed person is that you were using coffee even decaf to a certain degree for energy and to rehydrate. It is now no longer needed and you simply are having too much for a healthy person who is digesting and feeling a lot more energy and health. Unless the coffe is sharing the same euiopment to be processed as wheat or another gltuen product (yes, even many designer mushrooms are grown in soil that has wood chip and wheat bran), there is no reason coffee that is not usually cross-contaminated to be a problem.

I have one or two cups in the morning and then drink water or ice tea, etc.

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I

TSC1 Newbie

Be careful, sweetners especially in large amounts like mannitol, sorbitol, etc. give me lots of intestinal problems and I steer clear of them even in small amounts.

coffee or tea is not a problem but 10 cups a day is a problem, especially when you sweeten them or drink with milk.

Besides "relapse" is normal because you can react to grains even few days after eating something. BTW drinking decaf makes no sense and is more bad for you then regular.

Looking for answers Contributor

One more thought about coffee, especially decaf. Unless it decaffienated using the swiss water process, decaf coffee contains a load of chemicals and pesticides. Since you have an autoimmune disease and are in the process of healing, I too recommend switching over to tea. Good quality green tea is not bitter and doesn't give you the ups and downs of coffee. It's also an amazing source of antioxidants and vitamins, and will lower your body's overall inflamation. I use the premium green tea from Teavana. It's pricey, but each batch of loose tea can be used up to three times, so it lasts a long time...and it's so pure that I don't need to add anything to it. Good tea is not bitter if you don't over steep it!!! For a more affordable tea, Costco sells bagged green tea that is manufactured in Japan from a quality distributor who uses high grade leaves. I know this because my best friend is from Japan and her family validated the maker for me.

For anyone reading this who drinks green tea, if your "green" tea looks more yellow than green it means it's oxidated - switch to a better quality brand. Both teas I recommend are the color of grass in the cup.

SGWhiskers Collaborator

Congrats on going gluten free and figuring out how to become healthy again. I'm all for the coffee theory, but I would like to add that as a newbie to the gluten-free world, it is also likely that you are inadvertently getting some CC somewhere. For me it was the BBQ grill, the vegetable steamer, and pineapple juice. Think about every kitchen item that touches your food. Unless you are better at itching, sweating, and showering than me, check every product that touches your body, makeup, fancy soaps, hair products. While you are at it, cut that coffee down to 2 in the morning and switch to tea. Make sure you are also eliminating or going very light on dairy in the begining of a gluten-free diet. Almost as a rule, dairy is really rough on celiac intestines until they heal.

Best wishes on a quick recovery.

  • 1 year later...
EPrasn Newbie

I'm new to the group and I was so impressed with all of the information, I decided to join. It all started with me around 3/17, I just didn't feel good, and I had this bad taste in my mouth and it was making me sick. I went to my primary doctor and she took 6 vials of blood, it all came back normal (thank God), I even had an app't with my digestive Health specialist and he suggested that I eat parsley 3x's a day to get rid of the taste in my mouth. I really had to think about the whole situration, and it seemed like I was getting sick in the morning and especially in the afternoon, after I had a cup of coffee. So I just started drinking Soy Milk and you know what, it wasn't too bad. I do feel better but not 100%, now I'm wondering if it is the coffee????? I know one thing, I don't ever want to feel this way again. I look forward to contine to read your post and thank you for all of your valuable information.

Skylark Collaborator

I'm not sure you noticed, but this is a two-year old thread. Most of the people who answered are not on the board any longer.

If you suspect you are reacting to something, eliminate it and see how you feel. :)

By the way, I would not feel well having soymilk in my coffee. A lot of people react to soy. I'd suggest just cutting out the coffee entirely and have some black tea.

MikeOhio Rookie

Some people are sensitive to coffee. I get diarrhea 8-24 hours after drinking coffee. I used to drink it in very small amounts if I was constipated. I still was a little more un-constipated than I wanted to be.

woodnewt Rookie

There could be some sort of cross-contamination in your diet that you're not aware of, so you might want to go through all of your food items and double check. But otherwise, like others here have said, 10 cups of decaf coffee is a lot! If your gut's unwell, that is definitely going to be an agitant, especially if you're adding cream and sugar. Coffee was one of the many, many foods I had to totally stop while I was recovering. Just couldn't tolerate it or a lot of other things that are even slightly harsh to the gut. Now I drink 2-4 cups a day, instant, with nothing added (no cream or sugar) with absolutely no problems.

tuxedocat Apprentice

If acidity is the problem, try cold brewing your coffee.

Open Original Shared Link

It's such a good cup that you may never want standard coffee again. I stopped needing to sweeten the coffee and it even tastes good without cream.

Jestgar Rising Star

If acidity is the problem, try cold brewing your coffee.

Open Original Shared Link

It's such a good cup that you may never want standard coffee again. I stopped needing to sweeten the coffee and it even tastes good without cream.

I have read about this, but never tried it. Thanks for the reminder, I may try it this summer.

deb445 Rookie

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

kareng Grand Master

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

That's an odd ingredient for coffee. But it's gluten free.

lovegrov Collaborator

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

If you're worried about gluten in tha,t don't be.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.