Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Being Glutened - Dry Lips?


lvpriest

Recommended Posts

lvpriest Apprentice

Hi all!

So, I have been super careful for the last few weeks and feeling so so much better. Only got glutened once a few weeks ago (on holiday, lousy timing but hey) and I think it was either from cross-contamination with gluten free/non-gluten free chips in the same salsa or shrimp which were seasoned with some kind of sauce.

Anyway, I think I may have glutened myself yesterday - I ordered a flaked salmon and wasabi prawn salad with sesame and a red pepper dressing. I asked for the dressing on the side as knew that would be bad news bears (am also avoiding dairy).

I started to eat the salad and it was delish but as I got through I noticed the taste wasn't only wasabi, but I think also soy sauce - basically I think the soy had been used to make a sesame dressing for the salad, as an addition to the red pepper dressing.

I ate in anyway, as I was hungry and couldn't be too sure!

Last night I was fatigued, and got occasional shooting pains in my legs. Today, I have woken up with a heavy tummy, a feeling I haven't really had since going gluten free, and feeling constipated. I also have really dry lips and thirst, which I haven't had for the last few weeks.

Are these symptoms of glutening? Like I said I can't be sure it was soy sauce but I'm pretty sure it was. I've also been feeling nauseous, and I think D will be imminent - how long after glutening do you get that (the nasty stomach effects I mean!)

thanks!

Lauren


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SaraKat Contributor

Well, as I am sure you know soy sauce has tons of sodium so that could account for your dry lips/thirst.

Your post caught my attention with the dry lip thing though- I was just dx'd with celiac by blood test a few weeks ago and then today I had my endoscopy. Over the last year or so, I have had to put on lip balm everynight before bed b/c my lips have been so dry! I never connected it with anyting, but maybe it is from the gluten!

curiousgirl Contributor

Well, as I am sure you know soy sauce has tons of sodium so that could account for your dry lips/thirst.

Your post caught my attention with the dry lip thing though- I was just dx'd with celiac by blood test a few weeks ago and then today I had my endoscopy. Over the last year or so, I have had to put on lip balm everynight before bed b/c my lips have been so dry! I never connected it with anyting, but maybe it is from the gluten!

There are so many weird symptoms we can blame on gluten! But, how can we tell the difference to being glutened or having an allergy to a certain food, product, chemical (even in non-food products)???

Get this...I roll my hair in brush rollers and use bobby pins to secure them. I just realized that opening the bobby pins with my teeth could have been glutening me....I've just recently switched to gluten-free shampoo, creme rinse, facial cleanser, moisturizer. But, not mouse, spray, blah blah blah. I think, rather KNOW, I've been glutening myself with the hair product left on the bobby pins from last time I set my hair. Or was it an allergy? Because my, tongue and lips were kinda tingly.

I'm beginning to realize how obsessed I must sound to one friend in particular...really the only friend I go into detail with about all my thoughts; fears; malaise; shoulda, coulda, woulda's; blahblahblah.

And this morning, I sensed she thought I was obsessing over my journey to be more healthy. And that I'm STILL dealing with the very first 4 months of being diagnosed as celiac...and that's funny...coming from a hypocondriac(sp)... seriously! Chronic fatigue, fibromyalsia, a walking pharmacy, a hoarder and in big time denial, she is. Just getting it off my chest.

SoyBoy Rookie

Lauren,

This sounds very familiar to me. I am not celiac, but am soy intolerant. Just reading your ingredient list gave me phantom abdominal cramps :D

For me, timing of cramping depends on the quantity and type of soy consumed. Large quantities = within 30 minutes, small quantities = next morning. Soy sauce, soy flour, and soy protein tend to be the worst. If you do not get the answer you are looking for from the gluten side, keep your mind open to the possibility of soy being the culprit.

Take care - Paul

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.