Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Being Glutened - Dry Lips?

lvpriest

By lvpriest
in Coping with Celiac Disease

Recommended Posts

lvpriest Apprentice
lvpriest
Posted

Hi all!

So, I have been super careful for the last few weeks and feeling so so much better. Only got glutened once a few weeks ago (on holiday, lousy timing but hey) and I think it was either from cross-contamination with gluten free/non-gluten free chips in the same salsa or shrimp which were seasoned with some kind of sauce.

Anyway, I think I may have glutened myself yesterday - I ordered a flaked salmon and wasabi prawn salad with sesame and a red pepper dressing. I asked for the dressing on the side as knew that would be bad news bears (am also avoiding dairy).

I started to eat the salad and it was delish but as I got through I noticed the taste wasn't only wasabi, but I think also soy sauce - basically I think the soy had been used to make a sesame dressing for the salad, as an addition to the red pepper dressing.

I ate in anyway, as I was hungry and couldn't be too sure!

Last night I was fatigued, and got occasional shooting pains in my legs. Today, I have woken up with a heavy tummy, a feeling I haven't really had since going gluten free, and feeling constipated. I also have really dry lips and thirst, which I haven't had for the last few weeks.

Are these symptoms of glutening? Like I said I can't be sure it was soy sauce but I'm pretty sure it was. I've also been feeling nauseous, and I think D will be imminent - how long after glutening do you get that (the nasty stomach effects I mean!)

thanks!

Lauren

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SaraKat Contributor
SaraKat
Posted

Well, as I am sure you know soy sauce has tons of sodium so that could account for your dry lips/thirst.

Your post caught my attention with the dry lip thing though- I was just dx'd with celiac by blood test a few weeks ago and then today I had my endoscopy. Over the last year or so, I have had to put on lip balm everynight before bed b/c my lips have been so dry! I never connected it with anyting, but maybe it is from the gluten!

curiousgirl Contributor
curiousgirl
Posted

Well, as I am sure you know soy sauce has tons of sodium so that could account for your dry lips/thirst.

Your post caught my attention with the dry lip thing though- I was just dx'd with celiac by blood test a few weeks ago and then today I had my endoscopy. Over the last year or so, I have had to put on lip balm everynight before bed b/c my lips have been so dry! I never connected it with anyting, but maybe it is from the gluten!

There are so many weird symptoms we can blame on gluten! But, how can we tell the difference to being glutened or having an allergy to a certain food, product, chemical (even in non-food products)???

Get this...I roll my hair in brush rollers and use bobby pins to secure them. I just realized that opening the bobby pins with my teeth could have been glutening me....I've just recently switched to gluten-free shampoo, creme rinse, facial cleanser, moisturizer. But, not mouse, spray, blah blah blah. I think, rather KNOW, I've been glutening myself with the hair product left on the bobby pins from last time I set my hair. Or was it an allergy? Because my, tongue and lips were kinda tingly.

I'm beginning to realize how obsessed I must sound to one friend in particular...really the only friend I go into detail with about all my thoughts; fears; malaise; shoulda, coulda, woulda's; blahblahblah.

And this morning, I sensed she thought I was obsessing over my journey to be more healthy. And that I'm STILL dealing with the very first 4 months of being diagnosed as celiac...and that's funny...coming from a hypocondriac(sp)... seriously! Chronic fatigue, fibromyalsia, a walking pharmacy, a hoarder and in big time denial, she is. Just getting it off my chest.

SoyBoy Rookie
SoyBoy
Posted

Lauren,

This sounds very familiar to me. I am not celiac, but am soy intolerant. Just reading your ingredient list gave me phantom abdominal cramps :D

For me, timing of cramping depends on the quantity and type of soy consumed. Large quantities = within 30 minutes, small quantities = next morning. Soy sauce, soy flour, and soy protein tend to be the worst. If you do not get the answer you are looking for from the gluten side, keep your mind open to the possibility of soy being the culprit.

Take care - Paul

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities. Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement. 130 times the safe upper limit. 130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms...
    2. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    3. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    4. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    5. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748
    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.