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Symptoms Of Being Glutened - Dry Lips?

lvpriest

By lvpriest
in Coping with Celiac Disease

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lvpriest Apprentice
lvpriest
Posted

Hi all!

So, I have been super careful for the last few weeks and feeling so so much better. Only got glutened once a few weeks ago (on holiday, lousy timing but hey) and I think it was either from cross-contamination with gluten free/non-gluten free chips in the same salsa or shrimp which were seasoned with some kind of sauce.

Anyway, I think I may have glutened myself yesterday - I ordered a flaked salmon and wasabi prawn salad with sesame and a red pepper dressing. I asked for the dressing on the side as knew that would be bad news bears (am also avoiding dairy).

I started to eat the salad and it was delish but as I got through I noticed the taste wasn't only wasabi, but I think also soy sauce - basically I think the soy had been used to make a sesame dressing for the salad, as an addition to the red pepper dressing.

I ate in anyway, as I was hungry and couldn't be too sure!

Last night I was fatigued, and got occasional shooting pains in my legs. Today, I have woken up with a heavy tummy, a feeling I haven't really had since going gluten free, and feeling constipated. I also have really dry lips and thirst, which I haven't had for the last few weeks.

Are these symptoms of glutening? Like I said I can't be sure it was soy sauce but I'm pretty sure it was. I've also been feeling nauseous, and I think D will be imminent - how long after glutening do you get that (the nasty stomach effects I mean!)

thanks!

Lauren

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SaraKat Contributor
SaraKat
Posted

Well, as I am sure you know soy sauce has tons of sodium so that could account for your dry lips/thirst.

Your post caught my attention with the dry lip thing though- I was just dx'd with celiac by blood test a few weeks ago and then today I had my endoscopy. Over the last year or so, I have had to put on lip balm everynight before bed b/c my lips have been so dry! I never connected it with anyting, but maybe it is from the gluten!

curiousgirl Contributor
curiousgirl
Posted

Well, as I am sure you know soy sauce has tons of sodium so that could account for your dry lips/thirst.

Your post caught my attention with the dry lip thing though- I was just dx'd with celiac by blood test a few weeks ago and then today I had my endoscopy. Over the last year or so, I have had to put on lip balm everynight before bed b/c my lips have been so dry! I never connected it with anyting, but maybe it is from the gluten!

There are so many weird symptoms we can blame on gluten! But, how can we tell the difference to being glutened or having an allergy to a certain food, product, chemical (even in non-food products)???

Get this...I roll my hair in brush rollers and use bobby pins to secure them. I just realized that opening the bobby pins with my teeth could have been glutening me....I've just recently switched to gluten-free shampoo, creme rinse, facial cleanser, moisturizer. But, not mouse, spray, blah blah blah. I think, rather KNOW, I've been glutening myself with the hair product left on the bobby pins from last time I set my hair. Or was it an allergy? Because my, tongue and lips were kinda tingly.

I'm beginning to realize how obsessed I must sound to one friend in particular...really the only friend I go into detail with about all my thoughts; fears; malaise; shoulda, coulda, woulda's; blahblahblah.

And this morning, I sensed she thought I was obsessing over my journey to be more healthy. And that I'm STILL dealing with the very first 4 months of being diagnosed as celiac...and that's funny...coming from a hypocondriac(sp)... seriously! Chronic fatigue, fibromyalsia, a walking pharmacy, a hoarder and in big time denial, she is. Just getting it off my chest.

SoyBoy Rookie
SoyBoy
Posted

Lauren,

This sounds very familiar to me. I am not celiac, but am soy intolerant. Just reading your ingredient list gave me phantom abdominal cramps :D

For me, timing of cramping depends on the quantity and type of soy consumed. Large quantities = within 30 minutes, small quantities = next morning. Soy sauce, soy flour, and soy protein tend to be the worst. If you do not get the answer you are looking for from the gluten side, keep your mind open to the possibility of soy being the culprit.

Take care - Paul

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

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    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

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      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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