Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Being Glutened - Dry Lips?


lvpriest

Recommended Posts

lvpriest Apprentice

Hi all!

So, I have been super careful for the last few weeks and feeling so so much better. Only got glutened once a few weeks ago (on holiday, lousy timing but hey) and I think it was either from cross-contamination with gluten free/non-gluten free chips in the same salsa or shrimp which were seasoned with some kind of sauce.

Anyway, I think I may have glutened myself yesterday - I ordered a flaked salmon and wasabi prawn salad with sesame and a red pepper dressing. I asked for the dressing on the side as knew that would be bad news bears (am also avoiding dairy).

I started to eat the salad and it was delish but as I got through I noticed the taste wasn't only wasabi, but I think also soy sauce - basically I think the soy had been used to make a sesame dressing for the salad, as an addition to the red pepper dressing.

I ate in anyway, as I was hungry and couldn't be too sure!

Last night I was fatigued, and got occasional shooting pains in my legs. Today, I have woken up with a heavy tummy, a feeling I haven't really had since going gluten free, and feeling constipated. I also have really dry lips and thirst, which I haven't had for the last few weeks.

Are these symptoms of glutening? Like I said I can't be sure it was soy sauce but I'm pretty sure it was. I've also been feeling nauseous, and I think D will be imminent - how long after glutening do you get that (the nasty stomach effects I mean!)

thanks!

Lauren


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SaraKat Contributor

Well, as I am sure you know soy sauce has tons of sodium so that could account for your dry lips/thirst.

Your post caught my attention with the dry lip thing though- I was just dx'd with celiac by blood test a few weeks ago and then today I had my endoscopy. Over the last year or so, I have had to put on lip balm everynight before bed b/c my lips have been so dry! I never connected it with anyting, but maybe it is from the gluten!

curiousgirl Contributor

Well, as I am sure you know soy sauce has tons of sodium so that could account for your dry lips/thirst.

Your post caught my attention with the dry lip thing though- I was just dx'd with celiac by blood test a few weeks ago and then today I had my endoscopy. Over the last year or so, I have had to put on lip balm everynight before bed b/c my lips have been so dry! I never connected it with anyting, but maybe it is from the gluten!

There are so many weird symptoms we can blame on gluten! But, how can we tell the difference to being glutened or having an allergy to a certain food, product, chemical (even in non-food products)???

Get this...I roll my hair in brush rollers and use bobby pins to secure them. I just realized that opening the bobby pins with my teeth could have been glutening me....I've just recently switched to gluten-free shampoo, creme rinse, facial cleanser, moisturizer. But, not mouse, spray, blah blah blah. I think, rather KNOW, I've been glutening myself with the hair product left on the bobby pins from last time I set my hair. Or was it an allergy? Because my, tongue and lips were kinda tingly.

I'm beginning to realize how obsessed I must sound to one friend in particular...really the only friend I go into detail with about all my thoughts; fears; malaise; shoulda, coulda, woulda's; blahblahblah.

And this morning, I sensed she thought I was obsessing over my journey to be more healthy. And that I'm STILL dealing with the very first 4 months of being diagnosed as celiac...and that's funny...coming from a hypocondriac(sp)... seriously! Chronic fatigue, fibromyalsia, a walking pharmacy, a hoarder and in big time denial, she is. Just getting it off my chest.

SoyBoy Rookie

Lauren,

This sounds very familiar to me. I am not celiac, but am soy intolerant. Just reading your ingredient list gave me phantom abdominal cramps :D

For me, timing of cramping depends on the quantity and type of soy consumed. Large quantities = within 30 minutes, small quantities = next morning. Soy sauce, soy flour, and soy protein tend to be the worst. If you do not get the answer you are looking for from the gluten side, keep your mind open to the possibility of soy being the culprit.

Take care - Paul

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.