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Food Pantry Issues


Kenster61

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Kenster61 Enthusiast

Greetings,

:( I'm sure someone has had to deal with this before. I have no job, I was put out of my house, and I'm subsisting off of social services, food pantries and soup kitchens. I do have a rood over my head. Unfortunately there is not a book that tells a person with celiacs how to cope in these dire circumstances. How can I get the food that I need when all the foods that are offered have gluten in them? The first place that I went gave me the attitude that I shouldn't be asking for anything special under these conditions. I have gluten-free food that will last the next few days. After that, it will be by faith.

Sillyken :)

(read a sign that said "keep smiling! Its the law!)


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Dixiebell Contributor

The first thing I can think of is do you have an Dr. diagnosis? If you do, get a copy of it so you can show that you have a 'special situation'. Are there counselers at the food pantry or soup kitchen? Maybe you could find a church that could help you. I think the place that said 'you should't be asking for anything special under these conditions' just does not understand problems with food and the severe problems it can cause. A lot of people I have come across say 'it's food, how can it hurt you?' I'm not sure if it is approiate to ask , where are you located? Maybe someone could help you find what you need.

sahm-i-am Apprentice

Sillyken,

Where are you located? I would gladly send you a bunch of gluten-free stuff!

I recently donated to our local Food Pantry and the volunteers there had NO IDEA

what I was giving them, nor the significance of it. I am positive all my gluten-free

goodies went to a gluten household. While important, not what I intended.

If I know of a gluten-free family in need, I would GLADLY ship out a box.

I mean it - and I'm sure others here could maybe do the same.

Support one another, people. It's a dog eat dog world, and they ain't gluten free!

:D

Take care,

Wendi

Sillyken - email me privately: wbrant@nc.rr.com

Skylark Collaborator

Ugh. What an awful situation. People don't understand malabsorption. They may as well offer you sawdust for all the good eating wheat does.

Is there any way you can get food stamps? Then you could buy some gluten-free food.

I agree with the idea of getting a doctors' note. In my city, there is a food bank where we donate canned goods. I'm sure plenty of them are naturally gluten-free - I've given things like canned veggies and Progresso soups myself. With a letter from a doctor you might be able to get them to give you naturally guten-free stuff.

Keep the faith, and good luck in what sounds like a really hard situation.

kareng Grand Master

Our food banks try to have canned fruits and veggies which are usually gluten-free. Also, canned chicken & tuna. Sometimes fruit and cheese. One gets hot dogs and keeps them frozen. Most hotdogs are gluten-free. Eggs too. All this assumes you can cook where you are staying. I have been giving Chex to our food bank. If you are in the Kansas City area, send me a message. I know 3 really nice food banks and a " soup kitchen" that might be able to help you.

ravenwoodglass Mentor

I did volunteer work for some time at our local food bank recently. You can't expect the folks there to know what they can safely give you, they just don't usually have the knowledge. We always had rice, canned and fresh (in season) veggies. The cereals we got would vary. They also would really load folks up with loaves of bread. I would suggest you go in and tell them all you can really use is canned veggies and fruits and plain rice and beans and plain meat if they have it (We always had some pnut butter, tuna, canned ham, hot dogs, sometimes chicken, turkeys, ground beef or venison depending on the season). Tell them that you are allergic to wheat and to PLEASE not give you bread or cakes and cookies. If they give you items you can't use donate them back on your next visit and tell them why you are bringing them back.

Do check into food stamps and check out places like the Salvation Army or a Catholic Charity etc and explain your situation. Some will give food vouchers you could use at the store for gluten-free bread.

I wish you the best. It is hard for a lot of us right now.

GlutenFreeManna Rising Star

Hi, I'm sorry you are going through a rough time right now. Have you tried contacting your local celiac support groups? Perhaps they would know of a food pantry that would be more helpful than the ones you have encountered so far. Every food pantry is different--Some only give you a set bag or box and won't change what they give you (sometimes this has to do with how they receive funding, sometimes it's just for efficiency sake), some may be willing to work with you if you explain the situation. So don't give up trying. I agree it is a good idea to either get a doctor's note to show or tell them you have a wheat allergy (that may be taken more seriously and eliminate most of the gluteny products.


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Looking for answers Contributor

I too would be more than happy to send you food or gift certificates, gluten-free soaps, shampoos, vitamins, whatever you need to stay healthy. Do you have means to cook or prepare food? Please send me a personal message on where I can send the shipment.

I also encourage you to reach out to a local church. My church would jump at the chance to help someone in your situation.

Take care, and know that there are people who care and want to help.

T.H. Community Regular

I would second contacting your local celiac group or church - they will often help. I know here, for example, we have a family who was having financial trouble and worked out a barter system with people who could get them what they needed. They did yard work, etc... for these people in return, and it worked out well.

Do they have canned goods, or fresh produce, or only pre-made goods? If it's canned/boxed goods, there's a number of them that are gluten free, basically, that we could help suggest, if needed!

Greetings,

:( I'm sure someone has had to deal with this before. I have no job, I was put out of my house, and I'm subsisting off of social services, food pantries and soup kitchens. I do have a rood over my head. Unfortunately there is not a book that tells a person with celiacs how to cope in these dire circumstances. How can I get the food that I need when all the foods that are offered have gluten in them? The first place that I went gave me the attitude that I shouldn't be asking for anything special under these conditions. I have gluten-free food that will last the next few days. After that, it will be by faith.

Sillyken :)

(read a sign that said "keep smiling! Its the law!)

Kenster61 Enthusiast

Thank you for all you comments. To answer your questions:

1) I went to the salvation army the other day and was spoken to quite rudely by the people there who said "They were not a medical facility". IE take what you are given.

2) I was only given a few weeks of food stamps due to a recent emloyer who said I would be working full time by the 3rd. Unfortunatley, I won't start until the 21st of this month.

3) I am in the Winchester, VA area.

any other advice would be greatly appreciated.

Hungry Ken

i-geek Rookie

Go to or contact a local Catholic church's office and ask to speak to or leave a message for the Society of St. Vincent de Paul representative. This is an organization that exists to help people in need with emergency situations, no strings attached, no requirement that you are Catholic. Usually the only requirement is that you live within the parish boundaries (prevents unscrupulous people from gaming the system by hitting up several parishes at once). If the church you contact is not the one nearest you, either you will be redirected or they will contact that parish on your behalf.

I tell you to go there because in the past I have served the community through this group (although in a different location) and we would not have hesitated to provide grocery store vouchers so that people could shop for food that they knew they could eat safely. It's just cruel to expect people to eat food that will make them sick. SVDP is usually a one-time service (they don't provide continuing care so that they can help the largest number of people, but they will give referrals to longer-term services whenever possible). Since you need something to bridge the gap until your income starts up again, SVDP might be a really good fit to help you through the rough patch.

K-Dawg Explorer

I'm sorry to hear you are going through such a hard time and encountered such difficulty at the food-bank. When I was a social service worker, I used to run a food bank and when individuals came in with special dietary issues, I would issue a certificate for the local grocery store so that the person could buy groceries in-line with his/her particular needs. I am hopeful that you happened across a one-off food pantry and that if you explain your situation, perhaps bringing a medical note, you will be treated with the dignity you deserve.

I also think that the folks on here have given sage advice -- find a church, one with an outreach program, and approach that church for assistance. Can you get special funding or emergency funding via social assistance as a result of your celiac diagnosis? What state are you in?

Greetings,

:( I'm sure someone has had to deal with this before. I have no job, I was put out of my house, and I'm subsisting off of social services, food pantries and soup kitchens. I do have a rood over my head. Unfortunately there is not a book that tells a person with celiacs how to cope in these dire circumstances. How can I get the food that I need when all the foods that are offered have gluten in them? The first place that I went gave me the attitude that I shouldn't be asking for anything special under these conditions. I have gluten-free food that will last the next few days. After that, it will be by faith.

Sillyken :)

(read a sign that said "keep smiling! Its the law!)

ravenwoodglass Mentor

Thank you for all you comments. To answer your questions:

1) I went to the salvation army the other day and was spoken to quite rudely by the people there who said "They were not a medical facility". IE take what you are given.

2) I was only given a few weeks of food stamps due to a recent emloyer who said I would be working full time by the 3rd. Unfortunatley, I won't start until the 21st of this month.

3) I am in the Winchester, VA area.

any other advice would be greatly appreciated.

Hungry Ken

Get a letter from the employer stating that your work start has been delayed. Then go back to the food stamp office. They should be able to give you stamps to cover that gap that they were not aware of.

Also do contact the Catholic Charity that was mentioned. As stated they do not require you to be a Catholic to access their services.

GFinDC Veteran

I don't know if this group would work out for you or not. There are several threads about Angel Food Ministries on this site.

Angel Food Ministries Allergen Free Box follow up report

Open Original Shared Link

My understanding is they get their allergen foods from this site:

Open Original Shared Link

sb2178 Enthusiast

Also, call the largest food bank in your state directly and ask to speak to the nutritionist on staff. Not all food banks have nutritionists/RDs but more do than they used to. S/he may be able to assist you directly or be a liason with a local source.

Any place that sends full meals (like to AIDS or cancer patients) may also be a better resource and understanding of health issues.

I'm actually going to throw a post up on a listserv I'm on to investigate a little further. Excellent question, and something the food security community should be thinking about.

loco-ladi Contributor

Yhis would be an ideal oportunity for you to help not only yourself but any other potential gluten-free person who is in your situation...

get the dr's note then talk to the food bank manager about volunteering for a few hours... specifically marking what they have that is gluten-free, either marked by the manufacturer or naturally... you could also impart a wee bit'o knowledge to the staff about celiac disease in particular and even help them with other food allergies and issues so they can be "more helpful"

K-Dawg Explorer

Well, the person you spoke to at the sally anne should be ashamed of him/herself. The idea that you would be spoken to rudely is disgusting to me. And the idea that you would be sent away without the help you require! SHAMEFUL!

Do you have Saint Vincent de Paul in your neck of the woods (if I have the spelling right). It is a Catholic run service and, frankly, I find that the Catholic run assistance and outreach programs are much more client centred and helpful.

At this juncture, you are going to have to be your own best advocate. You know what - you need to attend at a large well organized food bank, the bigger the better, and by pass the volunteers! Speak to the social worker, director or nutritionalist. It is uancceptable that they are not meeting your dietary needs. Take medical documentation with you. I am right fecking angry about this.

The problem is that foodbanks typically carry crappy food, lots of regular pasta cuz it's cheap and canned goods cuz they are not perishable. Most of the canned goods will work for you. But you should have been given a certificate for the grocery store so you could buy meat, potatoes, rice, etc. GRRRR.

If you get nowhere, PM me.

KDawg

Thank you for all you comments. To answer your questions:

1) I went to the salvation army the other day and was spoken to quite rudely by the people there who said "They were not a medical facility". IE take what you are given.

2) I was only given a few weeks of food stamps due to a recent emloyer who said I would be working full time by the 3rd. Unfortunatley, I won't start until the 21st of this month.

3) I am in the Winchester, VA area.

any other advice would be greatly appreciated.

Hungry Ken

sb2178 Enthusiast

Sad to say, not much in the way of responses yet. The actual tips (beyond speaking higher on the food chain):

-some places must give out a balance of foods in order to count it for funding purposes. Kinda like the school lunch. Make sure they know that you can take rice instead of bread or pasta and just weed out whatever else...?

-look for a place that operates more on the "grocery store/client choice" model rather than "free box"

-make friends with a coordinator who will listen (coordinator would likely set aside food for you)

-liability... don't know what to do about that.

It's being thought about, but unfortunately it's not too high on the list.

Kenster61 Enthusiast

I too would be more than happy to send you food or gift certificates, gluten-free soaps, shampoos, vitamins, whatever you need to stay healthy. Do you have means to cook or prepare food? Please send me a personal message on where I can send the shipment.

I also encourage you to reach out to a local church. My church would jump at the chance to help someone in your situation.

Take care, and know that there are people who care and want to help.

Hello,

Thank you for the offer. I will gladly recieve and pay it forward. Here is where you can send things

Ken Ritter

110 Buchannan Dr.

Stephens City, VA 22655

804-248-1372

God Bless You!!

Kenster61 Enthusiast

It never ceases to amaze me how compassionate I find the people on this site. In these times when so many are out of work, it brings out the best and worst in all of us. Today I have seen the best. You have restored my faith in the goodnes of people. God Bless!

Ken

  • 2 weeks later...
ProudMommyDebbie Rookie

Ken,

I just signed up for this forum this morning.

I posted in the Parents of Kids with Celiac, then this afternoon I googled celiac and food stamps, your post came up as one of the top listings.

I am sorry you have to go through this, but I am in the same boat, although situations are different.

My husband was born with spina bifida and hydrocephalus and had no major problems growing up, but in 2005 became very ill and had to have brain surgery to fix his shunt that had broken, which meant the fluid building up around his brain (hydrocephalus)was not being drained down from his head into his abdomen because the shunt had malfunctioned, and was causing major issues.

After the shunt revision and abdominal surgery he came home to recover, but Hurricane Ike was headed toward Texas, and we had to evacuate due to his condition.

We came home three weeks later and our rental home had flooded, so we lost our home and only vehicle.

Moved into another rental home which was $200 more a month in rent and I had to take on a car note.

My husband broke out with severe psoriasis from the stress and recovery.

He later was diagnosed with Rheumatoid Arthritis and Lupus.

My husband is believed to have Celiac, but waiting confirmation, and we were told to have our kids tested.

They were tested the end of July and we received the results yesterday which confirmed they do have it.

My husband has been unable to work since 2005, so I am a Spousal Caregiver, and mother to three kids.

The sole provider of income in our household and my salary is still not enough to make sure there is food in the house, so now this gluten free diet change for my children is going to be so hard when the wholefood stores are so very high priced here, and gluten free cereals, breads, and pastas are scarce in regular grocery stores that I've seen.

We receive a small under $100 amount in Food Stamps because they believe my income for a family of 5 is "making too much" for further help.

I am thankful for what we get, but those that are working hard and need help are always the ones hit with red tape.

The local assistant ministry for my zip code food pantry I know doesn't have gluten free, so I don't know what to do when I need there help again.

I contacted my two oldest children's school nurse, and she is contacting the districts dietitian.

The gluten free menu in public schools is very very limited the nurse said, so I will have to figure out what i can do to pack their lunch (they receive free breakfast and lunch at school because of our finances going to medical expenses and bills to not be homeless, so i barely make by with having extra money to put gas in the car for my work commute and making sure there is enough food in the house for the three kids and my ill husband).

I can only suggest you do as others advised, have a doctors note, find something you can put it in to keep it safe and protected, keep it on you at all times, so you can prove you aren't just "being picky" as the population would like to believe.

I know you might not be able to afford it right now, but there are medical bracelets you can get that say celiac disease.

I wish you the best, I know it's hard, and I don't know how I will get through it, but I have to for my kids.

kareng Grand Master

Ken,

I just signed up for this forum this morning.

I posted in the Parents of Kids with Celiac, then this afternoon I googled celiac and food stamps, your post came up as one of the top listings.

I am sorry you have to go through this, but I am in the same boat, although situations are different.

My husband was born with spina bifida and hydrocephalus and had no major problems growing up, but in 2005 became very ill and had to have brain surgery to fix his shunt that had broken, which meant the fluid building up around his brain (hydrocephalus)was not being drained down from his head into his abdomen because the shunt had malfunctioned, and was causing major issues.

After the shunt revision and abdominal surgery he came home to recover, but Hurricane Ike was headed toward Texas, and we had to evacuate due to his condition.

We came home three weeks later and our rental home had flooded, so we lost our home and only vehicle.

Moved into another rental home which was $200 more a month in rent and I had to take on a car note.

My husband broke out with severe psoriasis from the stress and recovery.

He later was diagnosed with Rheumatoid Arthritis and Lupus.

My husband is believed to have Celiac, but waiting confirmation, and we were told to have our kids tested.

They were tested the end of July and we received the results yesterday which confirmed they do have it.

My husband has been unable to work since 2005, so I am a Spousal Caregiver, and mother to three kids.

The sole provider of income in our household and my salary is still not enough to make sure there is food in the house, so now this gluten free diet change for my children is going to be so hard when the wholefood stores are so very high priced here, and gluten free cereals, breads, and pastas are scarce in regular grocery stores that I've seen.

We receive a small under $100 amount in Food Stamps because they believe my income for a family of 5 is "making too much" for further help.

I am thankful for what we get, but those that are working hard and need help are always the ones hit with red tape.

The local assistant ministry for my zip code food pantry I know doesn't have gluten free, so I don't know what to do when I need there help again.

I contacted my two oldest children's school nurse, and she is contacting the districts dietitian.

The gluten free menu in public schools is very very limited the nurse said, so I will have to figure out what i can do to pack their lunch (they receive free breakfast and lunch at school because of our finances going to medical expenses and bills to not be homeless, so i barely make by with having extra money to put gas in the car for my work commute and making sure there is enough food in the house for the three kids and my ill husband).

I can only suggest you do as others advised, have a doctors note, find something you can put it in to keep it safe and protected, keep it on you at all times, so you can prove you aren't just "being picky" as the population would like to believe.

I know you might not be able to afford it right now, but there are medical bracelets you can get that say celiac disease.

I wish you the best, I know it's hard, and I don't know how I will get through it, but I have to for my kids.

That's rough.

Food pantries can still provide you with things like canned fruit, juice, some have meat, PB, etc. Sometimes they may have Chex cereal (most are gluten-free and labeled gluten-free).

You can make rice then put pasta sauce and moz on it. Walmarts are carring a brand of gluten-free pasta that's about $2 a bag. My Walmart had it with the regular pasta. I think its called Heartland. Corn tortillas can be used instead of bread sometimes.

Be assertive with the school. They have an obligation to help your kids.

Aphreal Contributor

Ken, Do you have an HEB by you out there? I just got a $20 gc in the mail if you can use it, I will send it. They sell gluten-free stuff. Their HCF brand is gluten-free so you could buy like gluten-free pasta and some sketti sauce. Stuff like that lasts a while!

BRUMI1968 Collaborator

Hi

My husband started going to a foodbank in our neighborhood a few months ago. It is a once-per-month thing. Anyway, typically they don't let folks go through - they just give you a box (actually, many boxes) of food to last the month. My husband told them that I had Celiac and need to be gluten free, and they let him walk through. He got tons of Amy's soups and some Whole Foods stuff. Now he always gets to walk through. So I know it is really hit and miss as to what person you get, but hopefully you'll find someone with a kind heart who will let you walk through and look for gluten-free stuff.

And on a bigger note, shouldn't we be doing something about this in our communities? Like writing letters to our food bank organizations and such. I'm going to write a letter to the Oregon foodbanks and just ask that folks be educated that people with Celiac Disease and other food sensitivies may need to be able to choose their own food. And maybe volunteer at foodbanks to help sort food by intolerance? I don't kow, but this problem is only going to become bigger, as the economy is not improving quickly and more and more people are being diagnosed.

Good luck to you.

Sherri

MelindaLee Contributor

Ken,

I just signed up for this forum this morning.

I posted in the Parents of Kids with Celiac, then this afternoon I googled celiac and food stamps, your post came up as one of the top listings.

I am sorry you have to go through this, but I am in the same boat, although situations are different.

My husband was born with spina bifida and hydrocephalus and had no major problems growing up, but in 2005 became very ill and had to have brain surgery to fix his shunt that had broken, which meant the fluid building up around his brain (hydrocephalus)was not being drained down from his head into his abdomen because the shunt had malfunctioned, and was causing major issues.

After the shunt revision and abdominal surgery he came home to recover, but Hurricane Ike was headed toward Texas, and we had to evacuate due to his condition.

We came home three weeks later and our rental home had flooded, so we lost our home and only vehicle.

Moved into another rental home which was $200 more a month in rent and I had to take on a car note.

My husband broke out with severe psoriasis from the stress and recovery.

He later was diagnosed with Rheumatoid Arthritis and Lupus.

My husband is believed to have Celiac, but waiting confirmation, and we were told to have our kids tested.

They were tested the end of July and we received the results yesterday which confirmed they do have it.

My husband has been unable to work since 2005, so I am a Spousal Caregiver, and mother to three kids.

The sole provider of income in our household and my salary is still not enough to make sure there is food in the house, so now this gluten free diet change for my children is going to be so hard when the wholefood stores are so very high priced here, and gluten free cereals, breads, and pastas are scarce in regular grocery stores that I've seen.

We receive a small under $100 amount in Food Stamps because they believe my income for a family of 5 is "making too much" for further help.

I am thankful for what we get, but those that are working hard and need help are always the ones hit with red tape.

The local assistant ministry for my zip code food pantry I know doesn't have gluten free, so I don't know what to do when I need there help again.

I contacted my two oldest children's school nurse, and she is contacting the districts dietitian.

The gluten free menu in public schools is very very limited the nurse said, so I will have to figure out what i can do to pack their lunch (they receive free breakfast and lunch at school because of our finances going to medical expenses and bills to not be homeless, so i barely make by with having extra money to put gas in the car for my work commute and making sure there is enough food in the house for the three kids and my ill husband).

I can only suggest you do as others advised, have a doctors note, find something you can put it in to keep it safe and protected, keep it on you at all times, so you can prove you aren't just "being picky" as the population would like to believe.

I know you might not be able to afford it right now, but there are medical bracelets you can get that say celiac disease.

I wish you the best, I know it's hard, and I don't know how I will get through it, but I have to for my kids.

I want to say Welcome, Debbie. You are in a very tough spot. Are you involved with any local churches or religeous org? I would appeal there, as well. I get very frustrated to see how hard our country makes if those people who are working so hard to keep their family going. Not sure what else I can say to make things any better...but welcome!

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    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
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