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Do You Also Avoid Soybean Products?


GlutenFreeManna

Are you gluten free and also avoiding soy?  

43 members have voted

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GlutenFreeManna Rising Star

With Betty Crocker adding soy flour to their gluten-free mixes I was just curious how many celiacs/gluten intolerant people here also have to avoid soybeans in any form. It's a pretty straight forward poll, but just to clarify choose yes if you avoid any gluten-free type of soy, even if you don't avoid soybean oil or soy lectin. Choose no if you use gluten-free soy sauce and don't worry about soy in other forms at all. Obviously we ALL should be avoiding the non-gluten free soy sauce. :)


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ravenwoodglass Mentor

I think there are quite a few of us, at least from what I have read here on the board. It did take me quite a while to realize it was an issue for me. I thought for a long time that I was getting CC'd until I started keeping a food and reaction diary. Enterolab then confirmed my suspicions.

jerseyangel Proficient

I voted a quick "yes" yesterday but had to run. I react to soy (even the oil) with cramping and D. I've also noticed that a soy sensitivity doesn't seem to be unusual amongst Celiacs.

sa1937 Community Regular

While I voted no, I have no idea if I have a problem with soy or not. I do still have some issues and am still trying to figure out how sensitive I might be to a lot of ingredients.

But if given a choice among products, I would choose the one without soy just knowing it causes a lot of problems for many. For example, Earth Balance, which comes in both versions. Damn, our local Wal-Marts have quit carrying it.

shopgirl Contributor

Sort of. I haven't eaten any soy in about a month as a trial. No change so I assume I'm okay with it. There's nothing I particularly want to eat right now that actually contains soy so I'm just carrying on as I am. At some point, I'll reintroduce it but I want to finish my soy-free Earth Balance first. :P

chasbari Apprentice

My first exposure to soy after going rigorously gluten free/soy free was almost worse than a glutening. I avoid it like the plague.

lisa25 Rookie

My soy reaction is just as bad as a gluten reaction. No soy oil or soy lecithin for me. I also have to watch for products that are produced on the same lines as soy containing products.


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Pac Apprentice

I voted no but with the exception of soy lecitin and soy sauce I rarely eat any. (there's one candy made with soy flour I eat). I do avoid soy oil but that's not because of the soy. All these "modern" oils like soy, corn or canola make me sick.

RideAllWays Enthusiast

I voted no but with the exception of soy lecitin and soy sauce I rarely eat any. (there's one candy made with soy flour I eat). I do avoid soy oil but that's not because of the soy. All these "modern" oils like soy, corn or canola make me sick.

When you say you eat soy sauce, it's the gluten-free kind right? Regular soy sauce contains wheat ;)

julandjo Explorer

My soy reaction is just as bad as a gluten reaction. No soy oil or soy lecithin for me. I also have to watch for products that are produced on the same lines as soy containing products.

Ditto!

Pac Apprentice

When you say you eat soy sauce, it's the gluten-free kind right? Regular soy sauce contains wheat ;)

I use Tamari - one that doesn't have any warning about cc (took me long time to find it). There's not many meals left that I can eat with soy sauce anyway - I'm crossreacting to rice so it's hard to get noodles for my stir-fry. (there are one in vietnamese shop that say arrowroot in english, rice in czech and tapioca or something else in slovak, not brave enough to try those. :ph34r: They look quite yummy though.)

Estella Newbie

Have Hashimoto's so soy was out of my diet long before gluten. Several years later I found dairy gave me problems so dropped that. Then a number of years later gluten reared it's ugly head. So far I'm not noticing any other things causing issues...fingers crossed!

Cypressmyst Explorer

I've been sort of avoiding soy for years because it interferes with my thyroid meds. But now I avoid it because I read up on it and the processing makes me want to :blink: in addition to the thyroid issue.

Marz Enthusiast

I avoid soy - bad stomach pain, nausea, running to the loo for a whole day afterward - it's just no good for me :( Thank goodness I don't react to soy lecithin!

I realised it was soy after eating gluten-free "Ensure" - it's a powder mix with milk, soy and maize/corn proteins. Upset my stomach so badly... and I know I'm fine with milk and maize.

Then I tried soy milk that should have also been gluten-free, immediate sore stomach - I call it a "gut-punched" feeling, because I hunch over like I've been punched from the pain, hehe.

GlutenFreeManna Rising Star

Wow, the number of people on this board avoiding soy is much higher than I was expecting. I avoid soy because hypothyroidism runs in my family and I have noticed when I eat soy my joints hurt more and I feel run down. Also soybean oil gives me migrains sometimes. I only cheat with soy lecthin in chocolate and when I go out to a restaurant. I don't worry too much about whether they cook with soybean oil--gluten free is much more important than soy free to me, but I will ask if I'm getting something like a gluten free pizza crust if it has soy flour and I won't get it. I found out the hard way that Uno's gluten-free crust has soy flour in it and so I won't get pizza there anymore. The soy flour really does me in. I'll hurt for a week after having soy flour.

Skylark Collaborator

I am looking suspiciously at corn right now, but soy does not seem to be a problem for me.

wheeleezdryver Community Regular

I try to avoid soy when I can, but can eat it (at least in small doses) with no apparent issues. Yes, I have thyroid problems, but none of the 'bad' thyroid foods ever seem to bother me.

cahill Collaborator

My first exposure to soy after going rigorously gluten free/soy free was almost worse than a glutening. I avoid it like the plague.

yep, me too

cap6 Enthusiast

I am avoiding as I have read several articles on how bad it really is for you as we have genetically mutated soybeans to the point where they are no longer good for you.

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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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