Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Also Avoid Soybean Products?


GlutenFreeManna

Are you gluten free and also avoiding soy?  

43 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

GlutenFreeManna Rising Star

With Betty Crocker adding soy flour to their gluten-free mixes I was just curious how many celiacs/gluten intolerant people here also have to avoid soybeans in any form. It's a pretty straight forward poll, but just to clarify choose yes if you avoid any gluten-free type of soy, even if you don't avoid soybean oil or soy lectin. Choose no if you use gluten-free soy sauce and don't worry about soy in other forms at all. Obviously we ALL should be avoiding the non-gluten free soy sauce. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I think there are quite a few of us, at least from what I have read here on the board. It did take me quite a while to realize it was an issue for me. I thought for a long time that I was getting CC'd until I started keeping a food and reaction diary. Enterolab then confirmed my suspicions.

jerseyangel Proficient

I voted a quick "yes" yesterday but had to run. I react to soy (even the oil) with cramping and D. I've also noticed that a soy sensitivity doesn't seem to be unusual amongst Celiacs.

sa1937 Community Regular

While I voted no, I have no idea if I have a problem with soy or not. I do still have some issues and am still trying to figure out how sensitive I might be to a lot of ingredients.

But if given a choice among products, I would choose the one without soy just knowing it causes a lot of problems for many. For example, Earth Balance, which comes in both versions. Damn, our local Wal-Marts have quit carrying it.

shopgirl Contributor

Sort of. I haven't eaten any soy in about a month as a trial. No change so I assume I'm okay with it. There's nothing I particularly want to eat right now that actually contains soy so I'm just carrying on as I am. At some point, I'll reintroduce it but I want to finish my soy-free Earth Balance first. :P

chasbari Apprentice

My first exposure to soy after going rigorously gluten free/soy free was almost worse than a glutening. I avoid it like the plague.

lisa25 Rookie

My soy reaction is just as bad as a gluten reaction. No soy oil or soy lecithin for me. I also have to watch for products that are produced on the same lines as soy containing products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pac Apprentice

I voted no but with the exception of soy lecitin and soy sauce I rarely eat any. (there's one candy made with soy flour I eat). I do avoid soy oil but that's not because of the soy. All these "modern" oils like soy, corn or canola make me sick.

RideAllWays Enthusiast

I voted no but with the exception of soy lecitin and soy sauce I rarely eat any. (there's one candy made with soy flour I eat). I do avoid soy oil but that's not because of the soy. All these "modern" oils like soy, corn or canola make me sick.

When you say you eat soy sauce, it's the gluten-free kind right? Regular soy sauce contains wheat ;)

julandjo Explorer

My soy reaction is just as bad as a gluten reaction. No soy oil or soy lecithin for me. I also have to watch for products that are produced on the same lines as soy containing products.

Ditto!

Pac Apprentice

When you say you eat soy sauce, it's the gluten-free kind right? Regular soy sauce contains wheat ;)

I use Tamari - one that doesn't have any warning about cc (took me long time to find it). There's not many meals left that I can eat with soy sauce anyway - I'm crossreacting to rice so it's hard to get noodles for my stir-fry. (there are one in vietnamese shop that say arrowroot in english, rice in czech and tapioca or something else in slovak, not brave enough to try those. :ph34r: They look quite yummy though.)

Estella Newbie

Have Hashimoto's so soy was out of my diet long before gluten. Several years later I found dairy gave me problems so dropped that. Then a number of years later gluten reared it's ugly head. So far I'm not noticing any other things causing issues...fingers crossed!

Cypressmyst Explorer

I've been sort of avoiding soy for years because it interferes with my thyroid meds. But now I avoid it because I read up on it and the processing makes me want to :blink: in addition to the thyroid issue.

Marz Enthusiast

I avoid soy - bad stomach pain, nausea, running to the loo for a whole day afterward - it's just no good for me :( Thank goodness I don't react to soy lecithin!

I realised it was soy after eating gluten-free "Ensure" - it's a powder mix with milk, soy and maize/corn proteins. Upset my stomach so badly... and I know I'm fine with milk and maize.

Then I tried soy milk that should have also been gluten-free, immediate sore stomach - I call it a "gut-punched" feeling, because I hunch over like I've been punched from the pain, hehe.

GlutenFreeManna Rising Star

Wow, the number of people on this board avoiding soy is much higher than I was expecting. I avoid soy because hypothyroidism runs in my family and I have noticed when I eat soy my joints hurt more and I feel run down. Also soybean oil gives me migrains sometimes. I only cheat with soy lecthin in chocolate and when I go out to a restaurant. I don't worry too much about whether they cook with soybean oil--gluten free is much more important than soy free to me, but I will ask if I'm getting something like a gluten free pizza crust if it has soy flour and I won't get it. I found out the hard way that Uno's gluten-free crust has soy flour in it and so I won't get pizza there anymore. The soy flour really does me in. I'll hurt for a week after having soy flour.

Skylark Collaborator

I am looking suspiciously at corn right now, but soy does not seem to be a problem for me.

wheeleezdryver Community Regular

I try to avoid soy when I can, but can eat it (at least in small doses) with no apparent issues. Yes, I have thyroid problems, but none of the 'bad' thyroid foods ever seem to bother me.

cahill Collaborator

My first exposure to soy after going rigorously gluten free/soy free was almost worse than a glutening. I avoid it like the plague.

yep, me too

cap6 Enthusiast

I am avoiding as I have read several articles on how bad it really is for you as we have genetically mutated soybeans to the point where they are no longer good for you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,985
    • Most Online (within 30 mins)
      7,748

    Seashells
    Newest Member
    Seashells
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.