Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did You Feel After 6-Months On A Gluten Free Diet?

gifree

By gifree
in Coping with Celiac Disease

  

31 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

gifree Apprentice
gifree
Posted

n/a

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Cheryl-C Enthusiast
Cheryl-C
Posted

I've just hit my 6-mos mark, actually. Aside from a little bloating lately (coming down after a gluten-free carb-fest, ugh) I have definitely been feeling a lot better. I can go out after eating now (before, I used to get hit with D a lot) and I don't feel so sluggish. Yay!

SGWhiskers Collaborator
SGWhiskers
Posted

My answer of poor is a huge step up from at death's door that would have been my baseline. Ask me the same question at the 12 and 18 month mark, and you would get better answers.

lisa25 Rookie
lisa25
Posted

I still didn't feel good at 6 months because I had other food sensitivites that I had not discovered yet. I felt different (slightly better) from pre-gluten free and could still tell when I got CC'ed.

sahm-i-am Apprentice
sahm-i-am
Posted

I voted great because I have my energy level back. I never got sick before so the only noticeable difference is my energy level. Oh, and I gained 24 lbs. that I desperately needed!

gifree Apprentice
gifree
Posted
  • Author

I voted great because I have my energy level back. I never got sick before so the only noticeable difference is my energy level. Oh, and I gained 24 lbs. that I desperately needed!

Yeah, I'd say I'm net neutral. My anxiety and headaches are less, but my stomach is more sensitive and the brain fog, fatigue and attention deficit remain. Some of the latter might not necessarily have to do with Celiac and/or may naturally resolve over time or with alternative measures. Regardless, this is definitely a journey, with much education along the way.

India Contributor
India
Posted

The six-month point was about the worst it ever was for me, especially for physical and mental energy. It's almost 11 months now and I realised the other day that I am feeling better, albeit on a rather restricted diet :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MelindaLee Contributor
MelindaLee
Posted

I voted, but I haven't reached 6 months yet. I'm at 4months and feel like a new woman! :lol:

gifree Apprentice
gifree
Posted
  • Author

I voted, but I haven't reached 6 months yet. I'm at 4months and feel like a new woman! :lol:

I just want to make sure I'm not doing any additional damage. I can manage the current buffet of symptoms...but I'd much rather feel 'great'. I tested slightly positive (1 out of 3) to a myriad of foods, including corn, which is a toughie!

Marz Enthusiast
Marz
Posted

I'm at around 6 months now, and really feeling great! I'm making most of my food from scratch, with a few processed items that I know are safe.

Once a month or so I try some new processed supposedly "naturally gluten-free" item, usually it back-fires on me and I chuck it out. But with feeling so much better, I can spot the problem immediately and remove it from my list of things I can eat :P

Still feeling down about the disease though, wonder when that improves? I can't eat out much without getting sick, so I always order the same "safe" pack of chips from one store, and my hubby orders awesome burgers/ribs (with sticky marinade containing soy sauce etc), etc etc. It just sucks :(

Looking forward to my first gluten-free, and symptom-free Christmas too! I may have to skip the Christmas cake, but I won't spend half of Christmas in the loo!!

Skylark Collaborator
Skylark
Posted

It took me about 18 months to fully recover my health once I'd gone gluten free. I was definitely better at six.

Newtoitall Enthusiast
Newtoitall
Posted

Lol.. reading down was starting to scare the S out of me XD I JUST started ..attempting gluten free... at first seemed like it got worse reading down, hope by 6 months this all seems like a nightmare I escaped.

gifree Apprentice
gifree
Posted
  • Author

Lol.. reading down was starting to scare the S out of me XD I JUST started ..attempting gluten free... at first seemed like it got worse reading down, hope by 6 months this all seems like a nightmare I escaped.

I gather we all heal at different rates. There's just so much to consider...am I getting cross-contaminated, are there other physical concerns to consider...or, is this just a lengthy process?

BethJ Rookie
BethJ
Posted

I voted "good" because I was feeling a lot better, but it took over a year - and maybe close to two years - before I could say "great." I think I was ultra sensitive to more than gluten at first and as I slowly healed, some of these sensitivities have abated. Or maybe I'm just more careful.

Cinnamongirl Rookie
Cinnamongirl
Posted

I think it depends on how long you've been sick (for me a long time). I was definitely improved at 6 mos, but not even close to where I hoped I'd eventually be. I've had to travel this past year and still find that to be very hard. I ate a lot of salads while in hotels. As long as I'm at home in a safe environment, I do pretty well.

cahill Collaborator
cahill
Posted

I voted neutral because even though I felt better at 6 months ,, it was not until about 9 months in that i realized that I was having issues with Soy (even though I did not eat soy per-say just that little in processed foods was to much )Oats ,Corn and Nightshades.I had some gallbladder issues that complicated things. Even now at a year + I am weeding out foods ,,,I am soooo afraid that my coffee will have to go and I have a REAL problem with that <_< ((ok to be honest I know coffee has to go :angry: )

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.